Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

18 Weeks Pregnant B-12 Very Low


Lindsay630

Recommended Posts

Lindsay630 Rookie

Hi Ladies,

I am 18w1d and had labs drawn last week to check vitamin levels. I found out today that my B12 level is extremely low and my vitamin D level is 31 when 30-100 is normal. I am really stressed out about the B12 and my OB doesn't seem to get why I am insistent on more monitoring. I have been Celiac my who life I believe but diagnosed 1 year ago. I had to insist OB even do these tests as she felt they were unnecessary. I have asked to be referred to a high risk OB/perinatoligist(sp?.

Anyone have these issues? What happened?

Thanks

Lindsay


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Angels Newbie

I am now 35 weeks pregnant and my ob didn't seem to really say much about celiac, other than just stay on the vitamins that are prescribe to me by my general dr, calcium and vitamin D. I think as long as you stay away from any sources of gluten your body tends to make it easier to absord the proper nutrients. I thought I would maybe have to double up on prenatal but that was a no too. My Ob did start to schedule monthly ultrasounds after 18 weeks to monitor the babys growth. But other than that it seemed like she wasn't to overly concerned. Take care and let us know how things are going.

cyberprof Enthusiast

Hi Ladies,

I am 18w1d and had labs drawn last week to check vitamin levels. I found out today that my B12 level is extremely low and my vitamin D level is 31 when 30-100 is normal. I am really stressed out about the B12 and my OB doesn't seem to get why I am insistent on more monitoring. I have been Celiac my who life I believe but diagnosed 1 year ago. I had to insist OB even do these tests as she felt they were unnecessary. I have asked to be referred to a high risk OB/perinatoligist(sp?.

Anyone have these issues? What happened?

Thanks

Lindsay

Hi Lindsay, did you have your vit levels tested before you go pregnant? If you didn't, they may have been low all along. If you are going to see a high-risk OB, then hold off. Otherwise I'd get a sublingual B12 tablet (gluten-free of course) and take that daily. Sub-lingual means "under the tongue" and is sometimes the only way we can take it as the damage to the digestive tract lingers and may prevent absorption in normal ways: Try GNC or a health food store. Trader Joe's has one. The most easily absorbed/used form is Cyanocobalamin but if you can't get that, then get the more common Methylcobalamin, which is harder for the body to use, as I understand it (but I'm not an expert). But it will still help.

As I said, I'm not a doctor but I find that if I skip the sublingual, my energy goes down and I don't feel well.

For vitamin D, you may have to take higher levels. I think the maximum limit now is 10,000 units a day, but I'd be worried about taking that much while pregnant without talking to an expert. B vitamins are different- there's less risk at higher levels. So you should talk to a specialist or a nutritionist on this one. Some people who are deficient in D get infusions monthly. And get as much sun as you can without sunburn.

Lindsay630 Rookie

Hi,

Thanks for your great responses. I finally talked to OB who was not very nice at all. She said well obviously you need B12 injections but my office doesn't do them so figure it out. I was so outraged! Told her I needed a referral for high risk and she said fine! So I called my GI Dr who gave me a B12 injection yesterday and I will take them every other day for 2 weeks and retest and see what is happening. He was not as concerned with the vitamin D. I will see the high risk Dr tomorrow and see what they think.

Thanks again.

  • 2 weeks later...
organicmama Contributor

You can get a prescription and inject the b12 yourself or have your partner do it. It goes in the arm or bottom and is super cheap (free on our not so great HMO). I have been doing it for years. There's no reason to have to go to a doctor for that.

I personally don't see the need for a high risk OB, although I do think you need a new OB period that has a little better demeanor. Many high risk docs primarily end up doing c-sections, so you greatly increase your risk of getting one. The studies indicate that you and the baby are much more at risk typically with a c-section, especialy when they constitute about a third of US births. The estimated rate that they are really needed is 5 - 10%.

B12 often comes combined with folic acid, which is very important to pregnancy. Have you had that checked?

sb2178 Enthusiast

at 18w, the critical point for folate is past (not that you shouldn't fix any deficiencies, just that it's not incredibly time sensitive at this point).

I would also recommend trying to talk someone into testing the infant after birth, or at least discussing whether supplementation might be helpful. Infants of mothers with depleted B12 are sometimes born with insufficint stores since they get it from mama. You'll need a pediatrician with serious knowledge about nutrition or possibly an RD, as that's one thing that was briefly mentioned in a clinical class i had but would not be brought in the vast majority of MD training programs given they get very little nutrition.

31's a bit on the lower side, but the med community is all over the place on where they think it should be, so some would treat, some wouldn't. I'd be sure you are taking an MVI and/or calcium with it, and again, make sure you give the baby vitamin D drops in the recommended amount.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jess270 replied to AnnaNZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Bitters for digestion?

    2. - cristiana commented on Jefferson Adams's article in Origins of Celiac Disease
      7

      Why Bananas No Longer Cure Celiac Disease

    3. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    4. - GeoPeanut replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    5. - trents replied to KRipple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac or Addison's complications? Can someone share their experience?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,050
    • Most Online (within 30 mins)
      7,748

    SabrinaD85
    Newest Member
    SabrinaD85
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
×
×
  • Create New...