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A Cool Resource For Kids


mommyto2kids

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mommyto2kids Collaborator

Someone suggested I check out the GIG website. They have a neat magazine on line of kids. Please check it out. gluten.net Hope it helps. I'm going to share it with my kids. They don't have it but I do. It may help them in dealing with the life style we need to live.


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faithforlife Apprentice

Someone suggested I check out the GIG website. They have a neat magazine on line of kids. Please check it out. gluten.net Hope it helps. I'm going to share it with my kids. They don't have it but I do. It may help them in dealing with the life style we need to live.

hey thanks! much needed. the kids always feel they need to explain their less than yummy diet to people-i want them to see it as a good thing!

mommyto2kids Collaborator

I'm glad someone else thought it was good. I was starting to think I was the only one. I think the story of Sweet Hearts is our story too, don't you think? If you are the child or the parent, you can relate! Thanks so much to the mom and daughter who write it.

  • 2 weeks later...
azmontessoriteacher Rookie

Thank you! This is great. My daughter is newly diagnosed and I know that this will help her cope. I can't wait to show it to her!

mommyto2kids Collaborator

Glad it is of help to you. I think the message here is for adults almost more than kids. I'm thinking of getting involved in GIG's restaurant Awareness program. This would be a splendid way to teach adults in the restaurant industry what life is like for the celiac population. Don't you think?:D

azmontessoriteacher Rookie

Glad it is of help to you. I think the message here is for adults almost more than kids. I'm thinking of getting involved in GIG's restaurant Awareness program. This would be a splendid way to teach adults in the restaurant industry what life is like for the celiac population. Don't you think?:D

She was absolutely delighted about the Girl Scout cookie recipes. That was something she was already missing the thought of. This completely eliminated that complaint!

mommyto2kids Collaborator

Glad you like it. Spread the word how cool it is!


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    • trents
      Welcome to the forum, @Gill.brittany8! There are two main genes that have been identified as creating potential for developing celiac disease, HLDQ2 and HLDQ8. Your daughter has one of them. So, she possesses genetic the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the general population develops celiac disease. It takes both the genetic potential and some kind of triggering stress factor (e.g., a viral infection or another prolonged health problem or an environmental factor) to "turn on" the gene or genes. Unfortunately, your daughter's doctor ordered a very minimal celiac antibody panel, the tTG-IGA and total IGA. Total IGA is not eve a test per celiac disease per se but is a check for IGA deficiency. If the person being checked for celiac disease is IGA deficient, then the scores for individual IGA tests (such as the tTG-IGA will be abnormally low and false negatives can often be the result. However, your daughter's total IGA score shows she is not IGA deficient. You should consider asking our physician for a more complete celiac panel including DGP-IGA, TTG_IGG and DGP-IGG. If she had been avoiding gluten that can also create false negative test results as valid antibody testing requires having been consuming generous amounts of gluten for weeks leading up to the blood draw. Do you know if the GI doc who did the upper GI took biopsies of the duodenum and the duodenum bulb to check for the damage to the small bowel lining caused by celiac disease? Having said all that, her standard blood work shows evidence of possible celiac disease because of an elevated liver enzyme (Alkaline Phosphatase) and low values for hemoglobin.
    • Gill.brittany8
      Hi everyone  After years of stomach issues being ignored by doctors, my 9 y/o daughter finally had an upper endoscopy which showed a ton of stomach inflammation. The GI doctor ordered some bloodwork and I’m attaching the results here. Part will be from the CBC and the other is celiac specific. I’m not sure what’s relevant so I’m just including extra information just in case.   The results are confusing because they say “No serological evidence of celiac disease. tTG IgA may normalize in individuals with celiac disease who maintain a gluten-free diet. Consider HLA DQ2 and DQ8 testing to rule out celiac disease.” But just a few lines down, it says DQ2 positive. Can someone help make sense of this? Thanks so much.  result images here: https://ibb.co/WFkF0fm https://ibb.co/kHvX7pC https://ibb.co/crhYp2h https://ibb.co/fGYFygQ  
    • Mnofsinger
      Those are great points and some follow up thoughts and ideas. I think you're both stating the same thing in two different ways, but I appreciate the "accuracy" of what you're getting to.   1. Are you both stating that the "too salty of a taste" could be triggered by a histamine reaction, and the flavor is coming from the electrolytes? If that is the case, wouldn't the individuals mouth always be salty during a "Glutening" situation, or are we saying that the person could get "use to the flavor" until introducing food or beverage and that could be enough to "stir the pot" and notice the salty flavor? 2. To push back on "#1": If that were true anyone with issues of histamine releasing foods/treatments would experience the same thing. Also, I did not experience a situation where most beverages were "too salty". Thoughts?
    • trents
      The only vegetable sources of B12 are some fermented bean products using a certain microbiotic culture. It is next to impossible to get adequate B12 from vegetable sources without supplementation. Same with D3. Some mushrooms can make D3 when exposed to UV light. Are you vegetarian or vegan? Do you do dairy and eggs or no animal products at all? Low B12 and D3 could definitely cause or contribute to many of the symptoms you have been experiencing but would not cause celiac disease. It is more likely the other way around, especially if you are a vegetarian eating no animal products. Many of your symptoms seem neurological in nature. It is well known that the B vitamin complex is vital to neurological health but so is D3. https://pmc.ncbi.nlm.nih.gov/articles/PMC9820561/
    • trents
      Russ, can you link an article supporting your assertion that small amounts of gliadin are detectable in human breast milk? Not doubting you but it would be nice to have the whole text for reference.
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