Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice


NewToGlutenFreeLife

Recommended Posts

NewToGlutenFreeLife Newbie

Hello,

After hearing about many improved lifes of celiac-positive friends, and many symptoms I learned may be related to allergies, I decided to do an elimination diet this month. I am already a lifelong vegan, so, in addition, I cut out soy, peanuts, corn, gluten, sulfur-rich food (onion & garlic), chilies, citrus (except lemon) and nightshades (potatoes, tomatoes, peppers, cherries and eggplant). I also gave up coffee, processed food, sugar etc.

After 10 days of this diet I spoke with a doctor that reported a high rate of clinical success with a food allergy panel (blood test). I had heard otherwise previously & still read that poitive results by blood are 55% accurate. Nonetheless, I was convinced by this doctor that a blood test may be a more accurate route to take because I could be allergic to something I was still eating. The Dr. also told me to add back all the food I had elliminated for at least 2 weeks in order to get an accurate test. So that night I had stir-fry with wheat noodles. I was very sick within minutes. My symptoms came back dramatically, along with new symptoms: Diarrhea, Vomiting, loud tinnitus (it had gotten fainter on the elimination diet), all-over body malaise, extreme fatigue, mental "fog," instant stomach bloating, epigastric bloating...in short, I feel aweful. NOW, 4 DAYS LATER, and 100% gluten-free I still feel aweful. I feel worse that when I began the elimination diet. I'm eating very little but my digestive system is in uproar. So now I'm commited to remaining on this strict diet instead of getting testing because I cannot bare to feel this way.

Sidenote: before trying the elimination diet I felt healthy but had fatigue, mental fog, achy (like a flu-but I felt this way over a year), and bloated. I felt hungry but wonderful when I began the diet. My stomach wasn't distended & I felt hollow and clean (like I feel when fasting) even though I was eating enough calories.

Any thoughts? Similar experiences? Suggestions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Was the stir fry homemade and msg-preservative free? I ask because most premade ones have nasty nasty stuff in them and you may have a problem with that, too.

MissKris2 Newbie

My symptoms got worse (and I developed some new ones) after I eliminated gluten and then added back in. I think that's pretty common. If the gluten free diet makes you feel better, stick with it!

domesticactivist Collaborator

I'm so sorry! It can be really hard to tell what the problem is when you add everything back at once. I'd go back on the diet that was helping you and then slowly add one thing back in (waiting a few days each time).

Our family has been doing the GAPS diet. It starts off very basic and then adds foods in slowly. We thought more things were a problem than actually are. For instance, we thought nightshades were an issue for our son but he's actually fine with them now that grains are out. Also, foods I thought were NOT a problem for me have shown themselves to be the causes of some of my symptoms. For example, cheese was my bad breath and mental instability, and my parasthesia is hypoglycemia due to spiking my blood sugar and then it dropping in the night.

We're all so individual... it takes experimenting to figure out what works and what doesn't. Our experience with allergy testing was that the IgE tests were useful, but IgG isn't a reliable indicator of an underlying problem.

NewToGlutenFreeLife Newbie

Was the stir fry homemade and msg-preservative free? I ask because most premade ones have nasty nasty stuff in them and you may have a problem with that, too.

Yes, the dish was homemade & organic. I stir-fried with a little organic sesame oil, ginger & added ground sesame seeds to the dish. The veggies were organic too & nothing new (organic zuccinni, carrot, red cabbage)

NewToGlutenFreeLife Newbie

I'm so sorry! It can be really hard to tell what the problem is when you add everything back at once. I'd go back on the diet that was helping you and then slowly add one thing back in (waiting a few days each time).

Our family has been doing the GAPS diet. It starts off very basic and then adds foods in slowly. We thought more things were a problem than actually are. For instance, we thought nightshades were an issue for our son but he's actually fine with them now that grains are out. Also, foods I thought were NOT a problem for me have shown themselves to be the causes of some of my symptoms. For example, cheese was my bad breath and mental instability, and my parasthesia is hypoglycemia due to spiking my blood sugar and then it dropping in the night.

We're all so individual... it takes experimenting to figure out what works and what doesn't. Our experience with allergy testing was that the IgE tests were useful, but IgG isn't a reliable indicator of an underlying problem.

Thanks for sharing, My daughters are on the diet with me but they were fine with the wheat pasta. I removed gluten foods from the house for now. I'm still feeling ill from the pasta.

NewToGlutenFreeLife Newbie

My symptoms got worse (and I developed some new ones) after I eliminated gluten and then added back in. I think that's pretty common. If the gluten free diet makes you feel better, stick with it!

Thanks. I didn't realize this was common. I'm at a loss for what I can eat now...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,499
    • Most Online (within 30 mins)
      7,748

    Kabotabob
    Newest Member
    Kabotabob
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Soleihey
      @Scott Adams Recently got blood work back and TTG antibodies went from 168.8 to 16.7 and deaminated gliadin was 22 (was not measured the first time). Is this a good start for an 11 month time frame? Just having a hard time with why my symptoms seemed to be flaring up again when my blood work has improved. 
    • dublin555
      I’ve been through something similar recently, and I know how frustrating it can be when nothing seems to work. Based on what you’ve described, it might be worth considering dermatitis herpetiformis, especially with the family history of celiac disease. Testing could give you some answers, and while online kits aren’t as reliable as a GP, they’re a good start if appointments are hard to get. I also found relief through medical cannabis for my eczema, at Releaf, a clinic in the UK that offers eczema medical cannabis treatment. They start with a low dose, adjust weekly, and track progress through online consultations.
    • trents
      Welcome to the forum, @Jaylan! Almost all of the symptoms and medical conditions you describe have been found to be associated with celiac disease. But they can also be caused by other things as well. There certainly is enough circumstantial evidence in your list of medical problems to warrant being tested for celiac disease. Ask your physician to order a celiac panel consisting of, at the very minimum, these two blood antibody tests: total IGA and tTG-IGA. Please do not attempt to limit your gluten intake before the blood draw is taken or you will invalidate the testing. Incidentally, celiac disease is often misdiagnosed as IBS.
    • Jaylan
      Hi there!  I’ve recently been tested for celiac disease, along with other autoimmune diseases. My symptoms started back in 2018 with joint pain in my knees. Since then, it has progressively worsened. I now have joint pain in both knees, elbows, and sometimes my shoulders. The pain is almost unbearable. I feel so stiff in the mornings, and this stiffness can last the whole day. I also experience swelling and warmth around those areas.   Other symptoms include IBS (diagnosed at age 16), restless legs, chest pain, tiredness, miscarriages, bloating, and sharp pain on the right side of my stomach. In the past, I’ve also had problems with a vitamin D deficiency, and my serum folate levels recently came back very low.   My question is: How likely is it that I have celiac disease?    
    • Rebeccaj
×
×
  • Create New...