Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Allow Me To Rant...


Pamela B.

Recommended Posts

Pamela B. Apprentice

Yay for Labor Day picnics, right?

...

...

...

Yeah; didn't think so.

I've been gluten free, minus being glutened a few times from CC, for almost 6 months now. I used to have the same mindset with gluten CC when I went out to eat with my friends that I used to have about alcohol ("Sure, I might have a hangover the next day, but the bonding with friends and good times will be worth it!"), but I've found that the gluten CC just doesn't make it worth it.

A bunch of my friends are getting together for a BBQ today. Normally I'd be excited, but now meetups that center around food like this just fill me with dread. I'm not even going to bother going. It still upsets me too much to be around all this food that I can't even eat. One person is bringing praline pecan brownies... something I'll never be able to eat unless I make them myself, and I really, really hate cooking.

Also, in a couple of weeks, my boss is taking all of his employees to Buca di Beppo. An Italian restaurant. It's a biannual thing, and this is the first outing there since finding out I'm gluten intolerant. There do have a small gluten free menu, but there's no way I'll be able to handle being around all that fettucine alfredo, spaghetti, and the absolute best cake I've ever had in my entire life. Probably won't go there, either, unless I stuff myself with food and then go at the very end.

I just feel like curling up into a ball and crying.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zus888 Contributor

I feel your pain, Sista!! Right there with you!! I've bowed out of many a picnic and gatherings this year due to the same thing. I'll be gluten-free for 6 months in just 4 days. Nope, not counting the days over here...

ravenwoodglass Mentor

Sorry this is so hard for you right now. Hopefully at some point you will be able to go to functions like this and enjoy the company of your freinds or coworkers. If the restaurant has a gluten-free menu you may want to rethink going. It is hard when so many social functions involve food but you don't want to isolate yourself. Eventually the invitations will stop coming if you do.

Hang in there and cry if you need to. We're here for you.

((((((((((((((((((((((((((HUGS)))))))))))))))))))))))))))))

rosetapper23 Explorer

Ah, the bitterness of accepting the gluten-free diet. I remember it well. It took me about three years to get over the pain of watching other people enjoy foods that I used to love to eat. However, I eventually either forgot how things tasted or had come to terms with the fact that those foods were poison to me...because I no longer feel tempted by those foods. When I go to potlucks, I eat before I go, bring a nice bottle of wine and some gluten-free salad or appetizers...and simply enjoy chatting with people. It doesn't bother me any more that they're eating poison. Now that I follow the primal/paleo diet, I feel even more in control of my diet. Because followers of the primal/paleo diet are eating a certain way voluntarily, they don't seem to feel deprived. Unfortunately, when the choice is made FOR us (as with celiac), that feeling of being deprived can stay with us for a while. However, now I feel as though my diet is my choice voluntarily, and I feel much less deprived, as a result.

In a way, we're all pretty lucky that we live in a time when some restaurants actually have gluten-free menus--something that was rare even five years ago. Also, as people become more cognizant and understanding of conditions like celiac, the more educated among them tend to kindly bring gluten-free dishes to potlucks for their celiac friends. I'm always touched when this happens. At a recent high school reunion potluck, two former classmates brought gluten-free dishes because they knew I would be there and would need something to eat. What kindness!

Please know that the bitterness will probably resolve eventually...and there's always the hope that the vaccine will become available in the next few years for those of us who wish to return to eating gluten. Personally, I have no interest in returning to my former diet.

rustycat Rookie

I guess we all find our ways to deal with it. Some days it seems easy and other days I'd give anything to eat "normal" food.

Monael Apprentice

I haven't been gluten free for a very long time, maybe 6 months or less? So maybe this will bother me more and more as time goes on, and also I might not be supersensitive so I don't know when I have been a victim of cc? But I have had luck so far. At a recent bbq, I just ate meat, corn on the cob, salad and fruit. I even had a hot dog without the bun.

But I think I would be pretty bummed out at Buca di Beppo's too! They have the best italian food. I wouldn't want to go either. I didn't know they had a gluten free menu.

Gemini Experienced

Yay for Labor Day picnics, right?

...

...

...

Yeah; didn't think so.

I've been gluten free, minus being glutened a few times from CC, for almost 6 months now. I used to have the same mindset with gluten CC when I went out to eat with my friends that I used to have about alcohol ("Sure, I might have a hangover the next day, but the bonding with friends and good times will be worth it!"), but I've found that the gluten CC just doesn't make it worth it.

A bunch of my friends are getting together for a BBQ today. Normally I'd be excited, but now meetups that center around food like this just fill me with dread. I'm not even going to bother going. It still upsets me too much to be around all this food that I can't even eat. One person is bringing praline pecan brownies... something I'll never be able to eat unless I make them myself, and I really, really hate cooking.

Also, in a couple of weeks, my boss is taking all of his employees to Buca di Beppo. An Italian restaurant. It's a biannual thing, and this is the first outing there since finding out I'm gluten intolerant. There do have a small gluten free menu, but there's no way I'll be able to handle being around all that fettucine alfredo, spaghetti, and the absolute best cake I've ever had in my entire life. Probably won't go there, either, unless I stuff myself with food and then go at the very end.

I just feel like curling up into a ball and crying.

Why wouldn't you go to Buca's? They have the gluten-free menu and the food from that menu is pretty good! I don't mind attending anything if they offer a good gluten-free menu. I have never had any trouble with their food and I am extremely sensitive to CC.

You are lucky that they chose a restaurant that has a gluten-free menu...they never accommodate me at work....ever. They always pick places where I couldn't get a safe meal, period.

Once you get into the gluten-free diet more, you won't care if everyone else is eating all that crappy pasta and cake. One thing I noticed early on in the diet is that everyone who ate like that didn't feel so great after the meal....all bloated and full. When you stick to proteins and veggies, that won't happen...you feel great after wards. I think Buca has some desserts for Celiacs but I don't know what they are because I never eat dessert. The red wine I drink has enough sugar to satisfy my cravings! :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Flasaltwater Apprentice

Why wouldn't you go to Buca's? They have the gluten-free menu and the food from that menu is pretty good! I don't mind attending anything if they offer a good gluten-free menu. I have never had any trouble with their food and I am extremely sensitive to CC.

You are lucky that they chose a restaurant that has a gluten-free menu...they never accommodate me at work....ever. They always pick places where I couldn't get a safe meal, period.

Once you get into the gluten-free diet more, you won't care if everyone else is eating all that crappy pasta and cake. One thing I noticed early on in the diet is that everyone who ate like that didn't feel so great after the meal....all bloated and full. When you stick to proteins and veggies, that won't happen...you feel great after wards. I think Buca has some desserts for Celiacs but I don't know what they are because I never eat dessert. The red wine I drink has enough sugar to satisfy my cravings! :P

Not to stray from the topic but which red wine do you drink that's safe for your tummy.

Gemini Experienced

Not to stray from the topic but which red wine do you drink that's safe for your tummy.

I drink all types of red wine....malbec, cabernet, syrah....you name it, I drink it.

I tend to buy American, Australian and South American reds and not so much European reds because I think the wines from these countries are every bit as good as their European counterparts. I could not drink alcohol at all before I was diagnosed because my stomach was too inflamed but once I healed, I found I can drink red wine without any issues.

I know there has been a lot of talk on this forum about the possibility of wine containing gluten but I have a lot trouble buying into that because I am one of those very sensitive Celiacs..I can't eat from shared lines or from non-dedicated facilites because I get sick. If there were any gluten in wine, I just would be sick because I have a glass every night with my dinner. Alcohol can be very irritating to the GI tract so that might be a problem for some.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    2. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    3. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    4. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

    5. - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,238
    • Most Online (within 30 mins)
      7,748

    tcpb
    Newest Member
    tcpb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.