Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Allow Me To Rant...


Pamela B.

Recommended Posts

Pamela B. Apprentice

Yay for Labor Day picnics, right?

...

...

...

Yeah; didn't think so.

I've been gluten free, minus being glutened a few times from CC, for almost 6 months now. I used to have the same mindset with gluten CC when I went out to eat with my friends that I used to have about alcohol ("Sure, I might have a hangover the next day, but the bonding with friends and good times will be worth it!"), but I've found that the gluten CC just doesn't make it worth it.

A bunch of my friends are getting together for a BBQ today. Normally I'd be excited, but now meetups that center around food like this just fill me with dread. I'm not even going to bother going. It still upsets me too much to be around all this food that I can't even eat. One person is bringing praline pecan brownies... something I'll never be able to eat unless I make them myself, and I really, really hate cooking.

Also, in a couple of weeks, my boss is taking all of his employees to Buca di Beppo. An Italian restaurant. It's a biannual thing, and this is the first outing there since finding out I'm gluten intolerant. There do have a small gluten free menu, but there's no way I'll be able to handle being around all that fettucine alfredo, spaghetti, and the absolute best cake I've ever had in my entire life. Probably won't go there, either, unless I stuff myself with food and then go at the very end.

I just feel like curling up into a ball and crying.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zus888 Contributor

I feel your pain, Sista!! Right there with you!! I've bowed out of many a picnic and gatherings this year due to the same thing. I'll be gluten-free for 6 months in just 4 days. Nope, not counting the days over here...

ravenwoodglass Mentor

Sorry this is so hard for you right now. Hopefully at some point you will be able to go to functions like this and enjoy the company of your freinds or coworkers. If the restaurant has a gluten-free menu you may want to rethink going. It is hard when so many social functions involve food but you don't want to isolate yourself. Eventually the invitations will stop coming if you do.

Hang in there and cry if you need to. We're here for you.

((((((((((((((((((((((((((HUGS)))))))))))))))))))))))))))))

rosetapper23 Explorer

Ah, the bitterness of accepting the gluten-free diet. I remember it well. It took me about three years to get over the pain of watching other people enjoy foods that I used to love to eat. However, I eventually either forgot how things tasted or had come to terms with the fact that those foods were poison to me...because I no longer feel tempted by those foods. When I go to potlucks, I eat before I go, bring a nice bottle of wine and some gluten-free salad or appetizers...and simply enjoy chatting with people. It doesn't bother me any more that they're eating poison. Now that I follow the primal/paleo diet, I feel even more in control of my diet. Because followers of the primal/paleo diet are eating a certain way voluntarily, they don't seem to feel deprived. Unfortunately, when the choice is made FOR us (as with celiac), that feeling of being deprived can stay with us for a while. However, now I feel as though my diet is my choice voluntarily, and I feel much less deprived, as a result.

In a way, we're all pretty lucky that we live in a time when some restaurants actually have gluten-free menus--something that was rare even five years ago. Also, as people become more cognizant and understanding of conditions like celiac, the more educated among them tend to kindly bring gluten-free dishes to potlucks for their celiac friends. I'm always touched when this happens. At a recent high school reunion potluck, two former classmates brought gluten-free dishes because they knew I would be there and would need something to eat. What kindness!

Please know that the bitterness will probably resolve eventually...and there's always the hope that the vaccine will become available in the next few years for those of us who wish to return to eating gluten. Personally, I have no interest in returning to my former diet.

rustycat Rookie

I guess we all find our ways to deal with it. Some days it seems easy and other days I'd give anything to eat "normal" food.

Monael Apprentice

I haven't been gluten free for a very long time, maybe 6 months or less? So maybe this will bother me more and more as time goes on, and also I might not be supersensitive so I don't know when I have been a victim of cc? But I have had luck so far. At a recent bbq, I just ate meat, corn on the cob, salad and fruit. I even had a hot dog without the bun.

But I think I would be pretty bummed out at Buca di Beppo's too! They have the best italian food. I wouldn't want to go either. I didn't know they had a gluten free menu.

Gemini Experienced

Yay for Labor Day picnics, right?

...

...

...

Yeah; didn't think so.

I've been gluten free, minus being glutened a few times from CC, for almost 6 months now. I used to have the same mindset with gluten CC when I went out to eat with my friends that I used to have about alcohol ("Sure, I might have a hangover the next day, but the bonding with friends and good times will be worth it!"), but I've found that the gluten CC just doesn't make it worth it.

A bunch of my friends are getting together for a BBQ today. Normally I'd be excited, but now meetups that center around food like this just fill me with dread. I'm not even going to bother going. It still upsets me too much to be around all this food that I can't even eat. One person is bringing praline pecan brownies... something I'll never be able to eat unless I make them myself, and I really, really hate cooking.

Also, in a couple of weeks, my boss is taking all of his employees to Buca di Beppo. An Italian restaurant. It's a biannual thing, and this is the first outing there since finding out I'm gluten intolerant. There do have a small gluten free menu, but there's no way I'll be able to handle being around all that fettucine alfredo, spaghetti, and the absolute best cake I've ever had in my entire life. Probably won't go there, either, unless I stuff myself with food and then go at the very end.

I just feel like curling up into a ball and crying.

Why wouldn't you go to Buca's? They have the gluten-free menu and the food from that menu is pretty good! I don't mind attending anything if they offer a good gluten-free menu. I have never had any trouble with their food and I am extremely sensitive to CC.

You are lucky that they chose a restaurant that has a gluten-free menu...they never accommodate me at work....ever. They always pick places where I couldn't get a safe meal, period.

Once you get into the gluten-free diet more, you won't care if everyone else is eating all that crappy pasta and cake. One thing I noticed early on in the diet is that everyone who ate like that didn't feel so great after the meal....all bloated and full. When you stick to proteins and veggies, that won't happen...you feel great after wards. I think Buca has some desserts for Celiacs but I don't know what they are because I never eat dessert. The red wine I drink has enough sugar to satisfy my cravings! :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Flasaltwater Apprentice

Why wouldn't you go to Buca's? They have the gluten-free menu and the food from that menu is pretty good! I don't mind attending anything if they offer a good gluten-free menu. I have never had any trouble with their food and I am extremely sensitive to CC.

You are lucky that they chose a restaurant that has a gluten-free menu...they never accommodate me at work....ever. They always pick places where I couldn't get a safe meal, period.

Once you get into the gluten-free diet more, you won't care if everyone else is eating all that crappy pasta and cake. One thing I noticed early on in the diet is that everyone who ate like that didn't feel so great after the meal....all bloated and full. When you stick to proteins and veggies, that won't happen...you feel great after wards. I think Buca has some desserts for Celiacs but I don't know what they are because I never eat dessert. The red wine I drink has enough sugar to satisfy my cravings! :P

Not to stray from the topic but which red wine do you drink that's safe for your tummy.

Gemini Experienced

Not to stray from the topic but which red wine do you drink that's safe for your tummy.

I drink all types of red wine....malbec, cabernet, syrah....you name it, I drink it.

I tend to buy American, Australian and South American reds and not so much European reds because I think the wines from these countries are every bit as good as their European counterparts. I could not drink alcohol at all before I was diagnosed because my stomach was too inflamed but once I healed, I found I can drink red wine without any issues.

I know there has been a lot of talk on this forum about the possibility of wine containing gluten but I have a lot trouble buying into that because I am one of those very sensitive Celiacs..I can't eat from shared lines or from non-dedicated facilites because I get sick. If there were any gluten in wine, I just would be sick because I have a glass every night with my dinner. Alcohol can be very irritating to the GI tract so that might be a problem for some.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748

    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.