Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Does An Immune Reaction Last After Glutening?

AllergicToEverything

Recommended Posts

AllergicToEverything Rookie
AllergicToEverything
Posted

I was diagnosed with gluten intolerance about a month and a half ago and have tried to be gluten free since then. Unfortunately, I have experienced little improvement in most of my symptoms, most notably eczema, canker sores, and itching attacks. My wife and 2 year old son are not gluten free, so that adds another challenge.

Here's my concern. I remember seeing a video from a doctor specializing in celiac disease on YouTube where she claimed getting gluten'd will trigger an immune system response that will last for 3 months! As careful as I'm trying to be, I'm sure that I'm getting gluten'd from time to time. If each occurrence triggers this long of a response, it's no surprise that I'm not feeling an improvement in my symptoms. Is this accurate or overblown?

Thanks,

Bruce

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kquad Apprentice
Kquad
Posted

I am also relatively new, but a real gluten event ( not cross contamination) last more than 6 weeks for me and then fades into the background slowly. First the GI symptoms with some dizziness for a 2-3 weeks, followed by neuro symptoms like MS. They include dizziness, visual disturbances, poor balance, occasional neuropathy and a few other fun things. I put myself on steroids finally and they really seemed to help. My neurologist admits he has no experience here, but is presenting me at the next neuro conference. I have decided to never eat out again, if this is what I risk. I seem to be especially sensitive, so most do not seem to have this. My MRI was normal, and it only follows gluten. We are going to upgrade our RV as soon as we can afford it, and that is how we will travel. The house is also now gluten free for me and my son. I have become a good cook with people asking me for my bread and pancakes ( the pancakes are packaged, so i cant take credit there.)

JoshB Apprentice
JoshB
Posted

I'm very ill the first day -- generally a very painful and upset stomach. The second I have an upset stomach, and possibly some other elevated symptoms. From the third day to about a week out I may or may not be just a little "off".

I felt much worse for more than a month after starting gluten free. It would not surprise me that you're not feeling great yet. Keep at it.

Kquad Apprentice
Kquad
Posted

I was diagnosed with gluten intolerance about a month and a half ago and have tried to be gluten free since then. Unfortunately, I have experienced little improvement in most of my symptoms, most notably eczema, canker sores, and itching attacks. My wife and 2 year old son are not gluten free, so that adds another challenge.

Here's my concern. I remember seeing a video from a doctor specializing in celiac disease on YouTube where she claimed getting gluten'd will trigger an immune system response that will last for 3 months! As careful as I'm trying to be, I'm sure that I'm getting gluten'd from time to time. If each occurrence triggers this long of a response, it's no surprise that I'm not feeling an improvement in my symptoms. Is this accurate or overblown?

Thanks,

Bruce

do you have a link?

AllergicToEverything Rookie
AllergicToEverything
Posted
  • Author

Thank you for your insights. I guess that I just need to stick with my diet and hope for the best. My wife, although supportive, is growing impatient. She's having to make a lot of sacrifices, too, and is probably even more frustrated than me with my lack of definitive progress.

Here's the link:

During the first 2 1/2 minutes, she talks about the dangers of fluoride (not really related to gluten or celiac disease, so you might want to skip ahead). At about 2:30, she starts talking about the tooth polish that many dentists use contains gluten. At 2:50, she mentions the after effects can last up to 3 months. She has lots of videos on YouTube and seems reputable to me.

I guess her mention of "3 months" stuck with me. In fact, she said "up to 3 months", so this might vary person to person, or even event to event.

Thanks,

Bruce

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,219
    • Most Online (within 30 mins)
      7,748
    LookingForAnswers101
    Newest Member
    LookingForAnswers101
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By trents · Posted

      Scott, I know full well that celiac disease is an autoimmune disorder and gluten sensitivity is not. And I agree that there is inconsistency in the use of the terms. But my contention is that "gluten intolerance" should not be used of NCGS since "gluten sensitivity" is actually found in the gluten disorder known as Non Celiac Gluten Sensitivity and, therefore, "gluten intolerance" should be reserved as a common/nonmedical equivalent for celiac disease. It also seems to me that "intolerance" implies something more severe than does "sensitive". And it just seems to me that, though there is still a lot of inconsistency in the use of these terms, there is a movement toward using "gluten intolerant" to refer to celiac disease rather than NCGS. But that is just my opinion and perhaps, to be honest, a bit of a personal crusade. Actually, we would all be better off if we quit using the those informal terms "intolerance" and "sensitivity" and just speak of celiac disease and NCGS.
    • Jason Dyer
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By Jason Dyer · Posted

      Wow. I mean, I REALLY don't want to give up beer, but I NEVER cheat. I get caught (glutenized in my vernacular), but I never cheat. I didn't even know that was a thing...
    • trents
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By trents · Posted

      I wonder why they put dextrose in it?
    • Scott Adams
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By Scott Adams · Posted

      PS - Many new celiacs report that they can go gluten-free, with the exception of giving up beer. That seems to be a bridge too far from many celiacs, and may be why nearly 20% cheat on their diets:  
    • Scott Adams
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By Scott Adams · Posted

      For those with celiac disease we know that there is a huge range in sensitivity, for example we've had many members here who report that even smelling wheat bread cooking in a bakery, for example a bakery in a supermarket, triggers an immediate gluten reaction that can last days or longer. Is there science to back this up--not that I've seen. Does this mean that it can't happen? Since it does seem to happen to some people, I can't say that there isn't something real happening to these folks.  Similarly there seems to be celiacs who can drink even regular beers, many of which have detectable gluten at under 20ppm, without issues, and many drink gluten reduced beers made from barley on a daily basis without issues, and without elevated antibodies or damaged villi. I also know that some celiacs report getting very sick from a single sip of gluten reduced beer. To be on the safe side it's probably best to stick with a naturally gluten-free beer, however, many of them lack the real beer taste, thus, some celiacs cheat on their diets and just drink regular beer. In this case I think having a choice is important, and drinking a gluten reduced option would be better than regular beer. 
×
×
  • Create New...