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How Long Does An Immune Reaction Last After Glutening?

AllergicToEverything

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AllergicToEverything Rookie
AllergicToEverything
Posted

I was diagnosed with gluten intolerance about a month and a half ago and have tried to be gluten free since then. Unfortunately, I have experienced little improvement in most of my symptoms, most notably eczema, canker sores, and itching attacks. My wife and 2 year old son are not gluten free, so that adds another challenge.

Here's my concern. I remember seeing a video from a doctor specializing in celiac disease on YouTube where she claimed getting gluten'd will trigger an immune system response that will last for 3 months! As careful as I'm trying to be, I'm sure that I'm getting gluten'd from time to time. If each occurrence triggers this long of a response, it's no surprise that I'm not feeling an improvement in my symptoms. Is this accurate or overblown?

Thanks,

Bruce

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Kquad Apprentice
Kquad
Posted

I am also relatively new, but a real gluten event ( not cross contamination) last more than 6 weeks for me and then fades into the background slowly. First the GI symptoms with some dizziness for a 2-3 weeks, followed by neuro symptoms like MS. They include dizziness, visual disturbances, poor balance, occasional neuropathy and a few other fun things. I put myself on steroids finally and they really seemed to help. My neurologist admits he has no experience here, but is presenting me at the next neuro conference. I have decided to never eat out again, if this is what I risk. I seem to be especially sensitive, so most do not seem to have this. My MRI was normal, and it only follows gluten. We are going to upgrade our RV as soon as we can afford it, and that is how we will travel. The house is also now gluten free for me and my son. I have become a good cook with people asking me for my bread and pancakes ( the pancakes are packaged, so i cant take credit there.)

JoshB Apprentice
JoshB
Posted

I'm very ill the first day -- generally a very painful and upset stomach. The second I have an upset stomach, and possibly some other elevated symptoms. From the third day to about a week out I may or may not be just a little "off".

I felt much worse for more than a month after starting gluten free. It would not surprise me that you're not feeling great yet. Keep at it.

Kquad Apprentice
Kquad
Posted

I was diagnosed with gluten intolerance about a month and a half ago and have tried to be gluten free since then. Unfortunately, I have experienced little improvement in most of my symptoms, most notably eczema, canker sores, and itching attacks. My wife and 2 year old son are not gluten free, so that adds another challenge.

Here's my concern. I remember seeing a video from a doctor specializing in celiac disease on YouTube where she claimed getting gluten'd will trigger an immune system response that will last for 3 months! As careful as I'm trying to be, I'm sure that I'm getting gluten'd from time to time. If each occurrence triggers this long of a response, it's no surprise that I'm not feeling an improvement in my symptoms. Is this accurate or overblown?

Thanks,

Bruce

do you have a link?

AllergicToEverything Rookie
AllergicToEverything
Posted
  • Author

Thank you for your insights. I guess that I just need to stick with my diet and hope for the best. My wife, although supportive, is growing impatient. She's having to make a lot of sacrifices, too, and is probably even more frustrated than me with my lack of definitive progress.

Here's the link:

During the first 2 1/2 minutes, she talks about the dangers of fluoride (not really related to gluten or celiac disease, so you might want to skip ahead). At about 2:30, she starts talking about the tooth polish that many dentists use contains gluten. At 2:50, she mentions the after effects can last up to 3 months. She has lots of videos on YouTube and seems reputable to me.

I guess her mention of "3 months" stuck with me. In fact, she said "up to 3 months", so this might vary person to person, or even event to event.

Thanks,

Bruce

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