Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! So Confused About Ingredients

CeliacMom

Recommended Posts

CeliacMom Rookie
CeliacMom
Posted

I am very new to the gluten-free diet - my 2 1/2 yr old was diagnosed 2 weeks ago.

I have the "safe" list and "forbidden" lists of ingredients, and I also have the 79-page list of foods by manufacturer that are gluten-free, but after reading posts on this board, I am even more confused.

If all the ingredients listed on a product are on the "safe" list, why is a particular product not considered gluten-free? Is it because there could be cross-contamination from the factory, and if so, is that enough to do damage? How can I go to the grocery store with my lists and safely buy foods that won't hurt my daughter, both short-term and long-term? (I don't know what will affect her based on a reaction, because up to this point her only symptom of celiac disease is lack of weight gain).

One example: I read that Kraft will clearly label all foods with wheat, rye, barly and oats. I bought Grey Poupon mustard which is distributed by Kraft, and did not list these ingredients; then I read somewhere last night that Grey Poupon is NOT gluten-free.

I am feeling completely overwhelmed :( .

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jnkmnky Collaborator
Jnkmnky
Posted

Open Original Shared Link

Which one are you wondering about and why? :)

CeliacMom Rookie
CeliacMom
Posted
  • Author

I guess I am confused about the "vinegar" which I thought was okay.

This is what I found last night:

"Grey Poupon 1-800-622-4726 (Nabisco says that their white distilled vinegar source changes and may sometimes include the use of gluten grains)"

KaitiUSA Enthusiast
KaitiUSA
Posted

Yes, some vinegars are grain based but the gluten does not get through the distillation process. Distilled vinegar will be ok...it was thought to be bad before but it is pretty much agreed on that it is safe now.

Nabisco won't hide anything on labels though and will clearly indicate gluten.

lovegrov Collaborator
lovegrov
Posted

That's a CYA. Because distilled vinegar was on the possily bad list for so many years, and because some people with celiac still don't believe it's OK, some companies still warn about it. I ignore it.

richard

  • 2 weeks later...
Sophie's mom Newbie
Sophie's mom
Posted
I am very new to the gluten-free diet - my 2 1/2 yr old was diagnosed 2 weeks ago. 

I have the "safe" list and "forbidden" lists of ingredients, and I also have the 79-page list of foods by manufacturer that are gluten-free, but after reading posts on this board,  I am even more confused.

 

If all the ingredients listed on a product are on the "safe" list, why is a particular product not considered gluten-free?  Is it because there could be cross-contamination from the factory, and if so, is that enough to do damage?  How can I go to the grocery store with my lists and safely buy foods that won't hurt my daughter, both short-term and long-term?  (I don't know what will affect her based on a reaction, because up to this point her only symptom of celiac disease is lack of weight gain).

One example: I read that Kraft will clearly label all foods with wheat, rye, barly and oats.  I bought Grey Poupon mustard which is distributed by Kraft, and did not list these ingredients; then I read somewhere last night that Grey Poupon is NOT gluten-free.

I am feeling completely overwhelmed :( .

<{POST_SNAPBACK}>

I, too, am feeling a little overwhelmed. I plan to start my 3 yr. old daughter on a "diagnostic/test" diet on Monday. Where/how can I get my hands on these lists?? Thanks for any help.

Lisa

Jnkmnky Collaborator
Jnkmnky
Posted

https://www.celiac.com/st_prod.html?p_prodi...-37105147544.d9

https://www.celiac.com/st_prod.html?p_prodi...-15105157944.8e

https://www.celiac.com/st_prod.html?p_prodi...-39105157944.78

Here are the lists I believe were being referred to.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

For the safe/forbidden ingredients lists, go here: https://www.celiac.com/st_main.html?p_catid...-30105116344.41

For the 79-page food list, e-mail me :P. I've been distributing it--there's a post called Delphi Lists or something under the products section...either add your name there, or preferably, send me an e-mail with the e-mail button thingy below the post. Just ask for the Delphi/food list or the Silly Yak/restaurants list. I'm sending both, so it's confusing when I sometimes get asked for "the list", lol :lol: . Thank you!

mstrain Rookie
mstrain
Posted
Just ask for the Delphi/food list or the Silly Yak/restaurants list.  I'm sending both, so it's confusing when I sometimes get asked for "the list", lol :lol: .  Thank you!

<{POST_SNAPBACK}>

Hi celiac3270:

I think I asked for "the list" - sorry for not being clear! Could you please e-mail me both lists? Thank you so much!

michelek@hotmail.com

  • 1 year later...
bellabrit7 Rookie
bellabrit7
Posted

hi! I was wondering if you might be able email me the 79-page food list as well as the delphi list and silly yak/restaurant lists?! thanks soooo much, i am a recent

For the safe/forbidden ingredients lists, go here: https://www.celiac.com/st_main.html?p_catid...-30105116344.41

For the 79-page food list, e-mail me :P. I've been distributing it--there's a post called Delphi Lists or something under the products section...either add your name there, or preferably, send me an e-mail with the e-mail button thingy below the post. Just ask for the Delphi/food list or the Silly Yak/restaurants list. I'm sending both, so it's confusing when I sometimes get asked for "the list", lol :lol: . Thank you!

tiffjake Enthusiast
tiffjake
Posted
hi! I was wondering if you might be able email me the 79-page food list as well as the delphi list and silly yak/restaurant lists?! thanks soooo much, i am a recent

Hi Bella, just wanted to let you know that thread is nearly a year old, so you might not get a reply from that person..You might want to Private Message them, by clicking on their name (celiac3270) on the left, and scrolling down to "send message" :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,587
    • Most Online (within 30 mins)
      7,748
    Travel Celiac
    Newest Member
    Travel Celiac
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Kipman
      Indeterminate transglutaminase iga

      By Kipman · Posted

      I did for a week, though that was 4 weeks before I had the test done. The doctor told me the lab rang her and said they hadn't seen results like it in their lab. Them being nearly all indeterminate that is. I also tested positive for a multiple connective tissue disease but when they did further testing it was all indeterminate too (I've only just realised that celuac is a connective tissue disease)
    • trents
      Indeterminate transglutaminase iga

      By trents · Posted

      So, it sounds like you may have already been avoiding gluten before the blood draw was done for the antibody testing. Is this correct?
    • trents
      Test says no, but body says Yes?

      By trents · Posted

      Welcome to the forum, @Travel Celiac! The high total IGA does not indicate that your celiac disease is actively flaring up. Total IGA is not a test for celiac disease per se but rather is test given to determine if you are IGA deficient, which you are not. IGA deficient people will experience artificially low individual IGA antibody tests such as the tTG-IGA and can result in false negatives.  The other question is why is your total IGA count high? That can indicate other health issues besides celiac disease so I suggest you research that question and also talk to your physician about it. Here is an article that explains the various tests that can be run to detect celiac disease and the significance of the total IGA test: Having said all that, I gather that for some reason you are under the mistaken impression that, having been diagnosed with celiac disease some years ago, your recent antibody test should still show elevated levels if you actually do have celiac disease, at least when you have accidental gluten exposure. I think you misunderstand how this all works and what the testing is designed to detect.  When someone has celiac disease, the consumption of gluten triggers an autoimmune response that, typically, causes inflammation in the lining of the small bowel. This inflammation produces specific antibodies that can be detected by serum testing specifically designed to look for these antibodies. Upon the onset of celiac disease, it can take weeks or months of consistent exposure to gluten for the serum antibody levels to build up to the point where they are detectable by the tests. Once gluten is  removed from the diet, inflammation begins to subside and antibody levels begin to drop. An occasional gluten exposure will not result in restoring antibody levels to detectable amounts once they have receded to normal levels after going gluten free. Again, it takes weeks or months of consistent gluten ingestion for the antibody counts to reach sufficient levels to produce a positive test result. Yes, you still have celiac disease but it looks like from your recent tTG-IGA test result that you are doing a good job with the gluten free lifestyle.
    • Kipman
      Indeterminate transglutaminase iga

      By Kipman · Posted

      Thank you. Yes I was referring to total iga - it came back as <0.15 I've also had the deamidated gliadin peptide IgA and IgG both of which were indeterminate on 2 tests. Third test the IgG was <1. I'm having the biopsy in two days. Pretty much anything I eat apart from vegetables makes me quite sick now.
    • Travel Celiac
      Test says no, but body says Yes?

      By Travel Celiac · Posted

      New here, and came for answers to this.  I was diagnosed in the Summer of 2007, at the same time two of my kids also tested positive. Actual doctor, actual tests. Have lived as clean as possible for 17 years, with the inevitable accidents (and symptoms and recovery), none recent, thankfully.  I have accepted that I am celiac and have lived accordingly – as have my now-grown kids. Last week, along with loads of other tests, my primary ordered a Celiac Disease Antibody panel and I just saw the results.  The summary stated "no antibodies detected," although my IgA total was quite high at 425.  The Tissue Transglutaminase IgA was less than <1.0.  My question is whether antibodies would be found in my body after all this time living gluten-free? To be clear, if I get gluten and do NOT know it, I will get sick later no matter what. So any psychological element is right out of it; I get nailed every time if there's gluten in my food. Later, we will trace everything and find it.  Small wonder I work so hard to keep gluten out of my diet. I am a senior citizen, and watch my health very carefully.  But now this test seems to indicate I don't have celiac disease... or do I?  LIke the title says, the test says no, but my body says yes and has for 17 years. Any thoughts on what's going on?  Happy to answer question. Thank you.
×
×
  • Create New...