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Mjohnson73

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Mjohnson73 Apprentice
Mjohnson73
Posted

Hey All,

I just got tested last week for celiac disease and am waiting for the results... I have a ton of the symptoms (not going to go through them here) but my Rheumatologist (who i see for Fibromyalgia) suggested that even if the tests come back negative (not sure which tests he did) I should follow the gluten-free diet anyway... so here I am :)

I am working on getting completely gluten-free...

I do have a question... My son who is 6 who is about the size of a 4 year old, just went and saw the endocrinologist at Children's Hospital in Boston due to his Short Stature and Slow growth... when I mentioned that I was tested for Celiac, the Dr. said as soon as I find out my results, that i should call her cause it might be celiac that is causing his growth delay (he was on the charts until about the time I started feeding him solid foods and then he dropped off the growth charts)...he doesn't seem to have any symptoms but she said it might be a silent form of celiac....

Does this sound right? that celiac disease could make him not gain weight and not grow properly???

Thanks for the info that you might be able to give me and hope I am welcome here :)

--maya

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cgd Newbie
cgd
Posted

Yes, it sounds right! celiac disease can most definitely slow growth and cause failure to thrive in children. You're wise to get him tested, since immediate relatives are at risk of having this genetic thing we share. You've come to the right place for support and information. Welcome!

KaitiUSA Enthusiast
KaitiUSA
Posted

Yep, celiac can do that. Growth delay and lack of weight gain are symptoms of celiac. That is due to the malnutrition. He should be checked even if you do not have it.

You were not gluten free when the tests were done right? That can screw up test results.

Mjohnson73 Apprentice
Mjohnson73
Posted
  • Author
Yep, celiac can do that. Growth delay and lack of weight gain are symptoms of celiac. That is due to the malnutrition. He should be checked even if you do not have it.

You were not gluten free when the tests were done right? That can screw up test results.

<{POST_SNAPBACK}>

Nope I was eating gluten right up through the testing... I stopped after the tests...

I just hate having to wait for an entire week to find out...sigh... He said the tests were very specific and had to be sent out to I think he said California or something...

I will mention to his Pediatrician as well...

--Maya

tarnalberry Community Regular
tarnalberry
Posted
Does this sound right? that celiac disease could make him not gain weight and not grow properly???

Thanks for the info that you might be able to give me and hope I am welcome here :)

<{POST_SNAPBACK}>

It's absolutely true that celiac disease could keep him from absorbing nutrients and hence not gaining weight and grow properly! I say get him tested regardless of your results!

And you're definitely welcome to the board! :-)

Mjohnson73 Apprentice
Mjohnson73
Posted
  • Author

Hey all,

Thanks for the welcomes :)

I am still working on getting 100% gluten-free... but I am having trouble reading labels for "Hidden gluten"... is there a list somewhere that I might be able to take to the grocery store with me?

thanks!

--Maya

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