Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Reaction After A Year Plus Of gluten-free

beebs

Recommended Posts

beebs Enthusiast
beebs
Posted

The other thread about worse reactions a few weeks after gluten free got me thinking. Has anyone been badly glutened a year plus after going gluten-free and had more severe symptoms than before? My GP said that my reaction probably wouldn't be as bad as last time because I have had time to heal. The last time I ate gluten was 6 weeks after going gluten free and it was awful.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JoshB Apprentice
JoshB
Posted

I don't think I'm fully healed yet, but reactions do seem to be getting worse the longer I've been gluten free. Very annoying. I wish they got better as you were more repaired and able to take the damage.

beebs Enthusiast
beebs
Posted
  • Author

Damn!

GFreeMO Proficient
GFreeMO
Posted

I have been gluten free for almost 2 years. I recently have had to give up casein (dairy) and soy. My reactions to those 2 things are as bad as gluten. You may have gotten a secondary food intolerance on top of gluten. It is very common.

ravenwoodglass Mentor
ravenwoodglass
Posted

I've been gluten free for 9 years and my reaction is still severe. I hadn't been glutened in over a year and then ended up getting glutened due to my own stupidity a few weeks ago. The only thing that was less severe was my DH, the gut symptoms were just as severe as when I was new to the diet. Not everyone will have the same experience though.

beebs Enthusiast
beebs
Posted
  • Author

As some of you know my reactions include intussusception its kind of considered a miracle that I've had it four times and each time it resolved on its own. Usually you have surgery and they remove part of your bowel :blink: I find it hard living with this constantly over my head. The last time I ate a lot of gluten I had it...I don't tend to get it due to contamination in small amounts...but I have to say - being scared of eating outside my house is getting kind of annoying. I'm sick of feeling worried that I could die every time I eat elsewhere! I guess this is kind of like what anaphalactic people feel like - although I'm obviously not as bad!

Also as some of you know I am toying with the idea of a gluten challenge. But if I thought I would get the Intussusception again then I wouldn't of course...

Roda Rising Star
Roda
Posted

My reactions have definately gotten worse and changed! I used to get constipated and have horrible reflux. Now I bloat up so bad and end up with violent D and steatorrhea.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sreese68 Enthusiast
sreese68
Posted

A friend of mine who's been gluten-free for 5 years says that she doesn't react as much to CC as she used to.

I haven't been at it long enough to give any input.

Judy3 Contributor
Judy3
Posted

I have been gluten free almost a year and recently was given antibiotics that contained a weird starch. It was apparently a new name (new to me and my pharmacy) for a derived wheat starch. I have had stomach pain, the 'gurgling' again, excess gas, muscle and joint aches, and diarrhea since day 3 of taking the drug, mildly at first and then horrid. I stopped taking them on day 5 when I realized what was happening and it's now a week past that and I'm still having the pain etc... not as bad as it was on day 5 when I stopped them but still noticable. :( Hopefully, it will stop soon.

Medication is so difficult because Augmentin the name brand is considered gluten free but the generic's can vary by manufacturer. I'm going to talk to my doctors about an alternative to pills should I need antibiotics again in the future.. This is crazy to be so sick from a drug that's supposed to make me better. GRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR

JoshB Apprentice
JoshB
Posted

I have been gluten free almost a year and recently was given antibiotics that contained a weird starch. It was apparently a new name (new to me and my pharmacy) for a derived wheat starch. I have had stomach pain, the 'gurgling' again, excess gas, muscle and joint aches, and diarrhea since day 3 of taking the drug, mildly at first and then horrid. I stopped taking them on day 5 when I realized what was happening and it's now a week past that and I'm still having the pain etc... not as bad as it was on day 5 when I stopped them but still noticable. :( Hopefully, it will stop soon.

Medication is so difficult because Augmentin the name brand is considered gluten free but the generic's can vary by manufacturer. I'm going to talk to my doctors about an alternative to pills should I need antibiotics again in the future.. This is crazy to be so sick from a drug that's supposed to make me better. GRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR

Medical starch is supposed to be corn unless marked otherwise now, and even wheat starch should be gluten free when processed to medical standards. Upset stomach and diarrhea are pretty much the #1 side effects of any anti-biotic.

beebs Enthusiast
beebs
Posted
  • Author

I answewed my own question... :( I accidently got glutened yesterday and ended up getting intussusception again...ugh.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,809
    • Most Online (within 30 mins)
      7,748
    Iain Maddox
    Newest Member
    Iain Maddox
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Iris Kraft
      Inhaler problem

      By Iris Kraft · Posted

      I do not use menthol lozenge, but I have found a brand of oral probiotics that has same ingredients as Prodentim but without spending $50  bottle. I bought Naturewise Oral probiotics from Amazon at $29 a bottle for 50 chewables instead of the 30 qty. The Simbicort upset the bacteria is my mouth, had white tongue and created a dental problem with a tooth, plus the inflammation in throat, vocal cords. Used the chewable and rested it along the gum where tooth hurts 4 x on Monday. Tuesday, went to dentist and she looked at what I thought was my problem tooth and she said all looked pink and happy. No problem.  Also, I spoke with my Allergist and he said instead of two puffs am and pm, try one puff only in am.Can always add one puff in PM if needed. Rinse mouth twice and gargle twice, and brush tongue. Use the Rescue inhaler Albuterol if needed (which I didn't need to). Know that Flucasolone, Simbicort, Advair are interchangeable.
    • Ann13
      Inhaler problem

      By Ann13 · Posted

      I have the exact same symptoms for a couple of wks now but I've been taking Symbicort for quite awhile at this point. I read you can get yeast infection in the vocal cords so I may ask my Dr. for antifungal meds cos I cant wait for an ENT exam. Also read on this site the connection between Vit D and K2 deficiency and asthma...doesn't apply to me cos mine is from mold in a house years ago but still might try and see if my asthma improves. I am Celiac and gluten causes the same symptoms but it says this inhaler is gluten free and it only started acting up so that option is out. I use Ventolin on occasion but using that for many many years. For me I will see if can switch inhalers to a brand that doesn't affect vocal cords as much, Advair is NOT one of them, plus will try the supplements. Do not suck on menthol lozenges cos menthol dries out cords more...sleeping elevated and sucking on ice chips gets the swelling down...at night this can really help especially. I can't continue like this so will get on everything this coming week.  
    • Rhenriksen
      Just diagnosed with Celiac! Scared and feel alone.

      By Rhenriksen · Posted

      Did a little more research just now and found out that even though the max methane should not exceed 10. It is normal to be around 3 and not rise. Again, I was at 13 so this does make me a bit suspicious. This was done back in May of 2024. I do recall being put on 14 day Antibiotic called Rifaximin but I'm really not sure if it made a difference, but if it did, then the problems still came back:( 
    • Rhenriksen
      Just diagnosed with Celiac! Scared and feel alone.

      By Rhenriksen · Posted

      I did a SIBO Test about a year ago, and I barely elevated on the Methane portion (max was 10 and I hit 13). Dr wasn't too concerned.    
    • trents
      Just diagnosed with Celiac! Scared and feel alone.

      By trents · Posted

      Have you looked into SIBO (Small Intestine Bacterial Overgrowth)?  Also, MCAS (Mast Cell Activation Syndrome)/histamine intolerance (they go together like a hand and glove).  Both of the above are common in the celiac community.
×
×
  • Create New...