Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long After Gluten Before Reaction?

Staceyshoe

Recommended Posts

Staceyshoe Apprentice
Staceyshoe
Posted

My oldest ds just went gluten-free for 10 weeks and started back on gluten yesterday. He was fine yesterday, but having diarrhea today (about 24 hours after gluten exposure). Does this sound like a gluten reaction? I was expecting a quicker reaction if gluten was the problem, but I don't really know how quickly someone with celiac might react to gluten either.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

It's taken me as long as three days to have my anxiety reaction to gluten, and it usually takes at least six hours for my GI effects to appear. 24 hours is well within the realm of normal.

JoshB Apprentice
JoshB
Posted

Used to take me about a day. Now it seems to be ~3 hours.

Twinklestars Contributor
Twinklestars
Posted

A reaction to gluten depends on the individual. I notice a reaction as soon as a couple of minutes of being exposed but can still feel the effects of the glutening a couple of days later. I'm newly gluten free though, so I've got no idea if I'm continually glutening myself without realizing, I'm still learning about it all.

Your son's reaction seems fairly typical from what I've read. My doctors are still finding out whether I have an allergy to wheat as well as an intolerance, so my instant reaction could be more allergy related.

Staceyshoe Apprentice
Staceyshoe
Posted
  • Author

Thank you for your responses. My biggest worry was not having a clear gluten-related reaction and still feeling like we don't know for sure. We have a pretty clear reaction. Ds has had diarrhea all afternoon, barely making it to the bathroom at times. He's never had anything remotely like this before, so I'm pretty sure it's the gluten.

cougie23 Explorer
cougie23
Posted

One member lost her brother when he was 15 to celiacs...and a perant I beleive...people just don't realize!

Thank you for your responses. My biggest worry was not having a clear gluten-related reaction and still feeling like we don't know for sure. We have a pretty clear reaction. Ds has had diarrhea all afternoon, barely making it to the bathroom at times. He's never had anything remotely like this before, so I'm pretty sure it's the gluten.

Not to be harsh...but WHY would anyone with Celiacs PURPOSELY POISON THEMSELVES or why would you allow it!(if hes a minor...you weren't clear on that)

ITS POISON!!! :blink::blink::blink::angry::huh:

Take it from me and all those of us who were unkowingly poisoned from an early age and now have Really BAD nerological side affects...we'd have given ANYTHING to have been diagnosed EARLY..BEFORE the LONG TERM DAMAGE THAT DOES"NT SHOW UP TILL YOUR OLDER...BELEIVE ME!!!!

WTF...YOUR HIS MOM!!! sorry to be harsh...but THIS IS REALLY IMPORTANT....MAYBE EVEN LIFE CHANGING!!!

If Someone had even THOUGHT to test me for food alergies...let alone GLUTEN...MY life definatly would be different!!! It may olnly be diarrea now...but later if not checked...who knows..are you willing to take that chance...hes your BABY!!! :blink::D

One of the members lost her brother at the age of 15 to celiacs...and a parent too I think...but you get my point! :huh:

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

One member lost her brother when he was 15 to celiacs...and a perant I beleive...people just don't realize!

Not to be harsh...but WHY would anyone with Celiacs PURPOSELY POISON THEMSELVES or why would you allow it!(if hes a minor...you weren't clear on that)

ITS POISON!!! :blink::blink::blink::angry::huh:

Take it from me and all those of us who were unkowingly poisoned from an early age and now have Really BAD nerological side affects...we'd have given ANYTHING to have been diagnosed EARLY..BEFORE the LONG TERM DAMAGE THAT DOES"NT SHOW UP TILL YOUR OLDER...BELEIVE ME!!!!

WTF...YOUR HIS MOM!!! sorry to be harsh...but THIS IS REALLY IMPORTANT....MAYBE EVEN LIFE CHANGING!!!

If Someone had even THOUGHT to test me for food alergies...let alone GLUTEN...MY life definatly would be different!!! It may olnly be diarrea now...but later if not checked...who knows..are you willing to take that chance...hes your BABY!!! :blink::D

One of the members lost her brother at the age of 15 to celiacs...and a parent too I think...but you get my point! :huh:

Calm down! Sounds like they didn't have the positve tests to prove he has celiac so they were testing it via dietary response. Lots of people here have to do that when they are trying to figure things out. I'm sure they plan to keep him gluten-free for good now that he has a clear reaction. No need to accuse people of poisioning their kids. ETA: This is the PRE-diagnosis forum. And based on her siggy her son is 5 with negative tests. Dietary response and positive genes is all some people have to get a diagnosis.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Staceyshoe: It does sound like a very clear reaction. My reactions take anywhere from 24 to 48 hours to manifest themselves so his delayed reaction is normal as others said.

cougie23 Explorer
cougie23
Posted

Calm down! Sounds like they didn't have the positve tests to prove he has celiac so they were testing it via dietary response. Lots of people here have to do that when they are trying to figure things out. I'm sure they plan to keep him gluten-free for good now that he has a clear reaction. No need to accuse people of poisioning their kids. ETA: This is the PRE-diagnosis forum. And based on her siggy her son is 5 with negative tests. Dietary response and positive genes is all some people have to get a diagnosis.

SOOOOOORRRRRY......... :(:(:( !!!

Bad cougar!!!! :unsure:

Now I'm SAD!!!...I'm going to go pout now!!! :(

Find a good ROCK to crawl under!!! :(

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

SOOOOOORRRRRY......... :(:(:( !!!

Bad cougar!!!! :unsure:

Now I'm SAD!!!...I'm going to go pout now!!! :(

Find a good ROCK to crawl under!!! :(

It's okay girl! I'm with you on gluten being poison, but sometimes you need to learn all the details before you pounce on someone. This a friendly board--we try to give people the benefit of the doubt. Some people do come here and admit they can't stop eating gluten (or can't stop their kids from sneakign it) even though it makes them sick. Those people need help. Scolding them isn't going to help them. Giving them the facts about what it's doing to them might help. Giving them ways to deal (like suggesting gluten-free alternatives) can help too.

cougie23 Explorer
cougie23
Posted

It's okay girl! I'm with you on gluten being poison, but sometimes you need to learn all the details before you pounce on someone. This a friendly board--we try to give people the benefit of the doubt. Some people do come here and admit they can't stop eating gluten (or can't stop their kids from sneakign it) even though it makes them sick. Those people need help. Scolding them isn't going to help them. Giving them the facts about what it's doing to them might help. Giving them ways to deal (like suggesting gluten-free alternatives) can help too.

Sniff...sniff....OK !! :(

After every thing I've read, Learned, been through and discovered latley.....It kinda FREAKED me out that after ALL the HORROR stories...someone would KNOWINGLY give a kid that they KNEW was celiac...gluten...especially after the poor kid just went 10 weeks without! I mean...REALLY! :blink:

I'm sorry I've only been on this site for 2 weeks or so.... and am still detoxing myself!!! Its making me a little HYPER..and overly sensitive...I'll have to watch that..I didn't realize what a spaz I've been lately..!!!

I was diagnosed 8/3/11 . :(

I'll be more careful...

I'm still sad and very depressed though!!! :(:(:(

I promise..No Pouncing... :unsure:

I'm still going to pout though! :(<_<

cougie23 Explorer
cougie23
Posted

I'm sorry Staceyshoe...I was out of line! sorry to be so harsh! :blink::(:(

come dance with me Enthusiast
come dance with me
Posted

I took mine to a bakery for a few minutes yesterday which was enough obviously to make her sick :(

We went in and I bought one of the loaves that they have out already in the bag then paid then left.

This afternoon my poor baby has been really sick :'( all because I told my mum I'd pick up bread for her on the way home!

But yeah it took about 20 hours before the complaint started but I know she'll be really vague for the next few days and irritable too.

No it wasn't on purpose! I won't have it in the house normally but it was for my mum who threw it at me after a 10 hour shift to pick it up on the way home otherwise we haven't been into a bakery all year.

  • 4 years later...
gem1030 Rookie
gem1030
Posted
On ‎9‎/‎18‎/‎2011 at 1:45 PM, Skylark said:

It's taken me as long as three days to have my anxiety reaction to gluten, and it usually takes at least six hours for my GI effects to appear. 24 hours is well within the realm of normal.

I know this was from 5 years ago but my reaction is the same I get bloated and tummy troubles with in a few hours but crazy anxiety about 48 hours later. Skylark how long before your anxiety stops this last time it took almost 5 days before I started to feel like myself. Is there a way to get the gluten out of our system faster so we don't suffer for days?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,311
    • Most Online (within 30 mins)
      7,748
    SWilson
    Newest Member
    SWilson
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      I’m terrified it’s too late for me😭

      By trents · Posted

      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’m terrified it’s too late for me😭

      By Cathijean90 · Posted

      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      diagnostic testing variance

      By trents · Posted

      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
    • Scott Adams
      diagnostic testing variance

      By Scott Adams · Posted

      Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
    • KDeL
      diagnostic testing variance

      By KDeL · Posted

      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
×
×
  • Create New...