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Back From Docs.. More Bad News


VydorScope

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VydorScope Proficient

Welp our son was 80-90% better on the gluten-free diet, so we took him to a allegist for some food testing. Turns out he is also alergic to egg! So now we have to learn ho to look for egg in everything! Ugh. :(


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KaitiUSA Enthusiast

:( Wow thats a bummer

Well at least he is doing well on the diet.

VydorScope Proficient
:( Wow thats a bummer

Well at least he is doing well on the diet.

<{POST_SNAPBACK}>

Im wodering now if that my problem... if maybe I am not celiac disease at all, but alegric to eggs. Like right now I am having problems and all I had for lunch was a chicken thing my wife cooked that uses cheese and egg for the "breading". Thats literly it. Oh and some coffee but if Im allegic to coffe, I guess I'll just be sick LOL

KaitiUSA Enthusiast
Im wodering now if that my problem... if maybe I am not celiac disease at all, but alegric to eggs. Like right now  I am having problems and all I had for lunch was a chicken thing my wife cooked that uses cheese and egg for the "breading". Thats literly it. Oh and some coffee but if Im allegic to coffe, I guess I'll just be sick LOL

<{POST_SNAPBACK}>

LOL...I'm with you on the coffee.....

Did the doctor say the severity of the allergy? Sometimes it can be very minor so you could have it in moderation, that can not be done of course if its a severe allergy. Like maybe he could have things that have a little bit of eggs in it but not like eggs straight or something with alot?

Maybe you should get allergy testing done and see what's going on with you..

VydorScope Proficient
LOL...I'm with you on the coffee.....

Did the doctor say the severity of the allergy? Sometimes it can be very minor so you could have it in moderation, that can not be done of course if its a severe allergy. Like maybe he could have things that have a little bit of eggs in it but not like eggs straight or something with alot?

Maybe you should get allergy testing done and see what's going on with you..

<{POST_SNAPBACK}>

We thing alot alike... after posting that I called and schedualed an apt for myself. I will be away on vaction, so it wont be til the 25th...

He gave it a 3 out of 4 for servitiy, so bad, but could be worse I guess. But he said that 80% of kids grow out of egg algeries. We are to get him re tested in a year.

KaitiUSA Enthusiast

Hopefully he does grow out of it. The gluten free diet may help him to outgrow the other allergy because his system will be stronger.

Looks like you have quite a handful...but your right it could be way worse.

Definitely smart to get you tested...another thing, if it is not eggs..when I first started the diet I was not sensitive to gluten and everything I ate gave me stomach aches until my intestines healed and the longer I was gluten-free the more sensitive I became.

Could it be possible, if its not another allergy causing you problems, that the damage you may have(if celiac) is making you randomly feel bad and it may all be linked to that? Just a thought

Or you maybe could have other allergies or intolerances in addition to gluten.

VydorScope Proficient
Hopefully he does grow out of it. The gluten free diet may help him to outgrow the other allergy because his system will be stronger.

Looks like you have quite a handful...but your right it could be way worse.

Definitely smart to get you tested...another thing, if it is not eggs..when I first started the diet I was not sensitive to gluten and everything I ate gave me stomach aches until my intestines healed and the longer I was gluten-free the more sensitive I became.

Could it be possible, if its not another allergy causing you problems, that the damage you may have(if celiac) is making you randomly feel bad and it may all be linked to that? Just a thought

Or you maybe could have other allergies or intolerances in addition to gluten.

<{POST_SNAPBACK}>

Yea, its possible I spose.. I just have alot of questions.. and no answers yet. I am going on three years of trying to solve this with no luck yet. So I have gotten a bit pesstimistic. I have been thinking of going back on gluten for a few months while saving for Entrolab. I am anemic, so the biposy SHOULD have been postive if it was celiac disease. Its hard to belive 2 seperate doctors missed durring 2 seperate endoscopies, but they could have even they admit that. Since my ins wont cover the blood tests I realy dont have much other recourse if I am to solve this. It could be mulpte things, and only testing is gonna discover that I think. I think I need to do somthing to at least eliminate a few mote possible ansers.


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jenvan Collaborator

vincent-

you may know all this already, but here is a good site on egg allergies--names for eggs in ingredients, places it can hide, substiutions etc:

Open Original Shared Link

VydorScope Proficient
vincent-

you may know all this already, but here is a good site on egg allergies--names for eggs in ingredients, places it can hide, substiutions etc:

Open Original Shared Link

<{POST_SNAPBACK}>

Thanks! I have not actull been looking much yet... this is less then 12 hours old diagnoses hehe. foodallergy.org is where the doc sent us so I have poked around there a bit.

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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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