Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Is Still Sneaking In On Me

Roda

By Roda
in Coping with Celiac Disease

Recommended Posts

Roda Rising Star
Roda
Posted
  • Author

Rhoda - sorry to see you have been struggling with cc or fat issues. You were kind enough to encourage me when I was miserable about fat digestion issues last week. As you suggested, digestive enzymes seem to work a treat with gas reducing by maybe 80 or 90% and I've been able to eat some salmon and a little non-dairy chocolate without suffering any further problems so far, so thank you for your help.

I looked into gallbladder problems and I am not convinced that it is linked to the fat issue. It seems more likely to be problems with its neighbour, the pancreas. I am not sure there is any proven link between pancreatitis and celiac, but if there is still inflammation/villi damage in the gut, then it seems possible that the pancreas might also be affected. Inflammation in the pancreas can also have an auto-immune basis. Treatment for mild pancreatitis is just to avoid alcohol, eat a low-fat diet and take digestive enzymes when needed. Autoimmune pancreatitis apparently responds well to steriod treatment. If you continue to have problems with this and you are sure it is not gluten cc, perhaps it is something to think about? I am going to mention it to doc at my follow up appt next week.

Thanks, that means a lot. I do still have creon and I have to be careful and not take to much. The symptoms right now are very subtle. My husband has been sick with GI virus, URI and now sinus infection so there is sickness going around. I may eventually pay a visit back to the GI to at least get my blood drawn again. I'm curious to know what my levels are since last year.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

Rhoda - sorry to see you have been struggling with cc or fat issues. You were kind enough to encourage me when I was miserable about fat digestion issues last week. As you suggested, digestive enzymes seem to work a treat with gas reducing by maybe 80 or 90% and I've been able to eat some salmon and a little non-dairy chocolate without suffering any further problems so far, so thank you for your help.

I looked into gallbladder problems and I am not convinced that it is linked to the fat issue. It seems more likely to be problems with its neighbour, the pancreas. I am not sure there is any proven link between pancreatitis and celiac, but if there is still inflammation/villi damage in the gut, then it seems possible that the pancreas might also be affected. Inflammation in the pancreas can also have an auto-immune basis. Treatment for mild pancreatitis is just to avoid alcohol, eat a low-fat diet and take digestive enzymes when needed. Autoimmune pancreatitis apparently responds well to steriod treatment. If you continue to have problems with this and you are sure it is not gluten cc, perhaps it is something to think about? I am going to mention it to doc at my follow up appt next week.

The small intestine sends out messenger enzymes to the pancreas during normal digestion, calling for whatever enzymes are needed to break down food. When villi become atrophied, these messengers lose their ability to send out the message and pancreatic enzymes are not released. Over time, portions of the pancreas can atrophy because they are not active. This becomes pancreatic insufficiency.

This can be the cause of trouble with fat digestion. It can give you the same symptoms as a gluten hit. Taking enzymes in pill form can help as some people do not regain their ability to digest fats well. I am one of them.

UKGail Rookie
UKGail
Posted

Gemini - that's really helpful. It makes a lot of sense, as I have been trying really hard to avoid gluten. I am sorry to hear that the damage to the pancreas can become permanent. Thank you for sharing.

dilettantesteph Collaborator
dilettantesteph
Posted

Canola oil. I've never thought to check for CC in oil. Something to consider.

Canola can be grown in rotation with wheat:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

That might be responsible for enough cc to bother a super sensitive.

Gemini Experienced
Gemini
Posted

Gemini - that's really helpful. It makes a lot of sense, as I have been trying really hard to avoid gluten. I am sorry to hear that the damage to the pancreas can become permanent. Thank you for sharing.

Everyone in life will sustain some level of malfunction in their bodies and, for the most part, it will not be a big problem. People sweat this too much.

There are much bigger problems you can have that I wouldn't want. I just follow a lower fat diet than most and make sure I don't eat what will not agree with me...that's not so hard to do. Unless my pancreas stops functioning all together, I don't worry about it. I have made a remarkable recovery considering I nearly died from this disease so I am happy with the way things are. Although I cannot eat lamb anymore as it's too high in fat and I miss that sometimes. :(

Lori2 Contributor
Lori2
Posted

I'm going to guess CC from the factory. Hubby is really good when it comes to the food. Other than not eating them he and I have not done anything different. I'm hoping it isn't all the brands. My favorite is the On The Border and we like to crush them up, mix them with taco seasoning, coat chicken strips with them, and bake them in the oven with butter drizzled over them. Everyone has been wanting these, but I have been very hesitant.

Did you check the taco seasoning. As I recall, that is one of the things I gave away when I cleaned out my gluten-containing products.

Roda Rising Star
Roda
Posted
  • Author

Did you check the taco seasoning. As I recall, that is one of the things I gave away when I cleaned out my gluten-containing products.

Taco seasoning is fine. I was having this problem without consuming it. I have been feeling pretty good lately.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,128
    • Most Online (within 30 mins)
      7,748
    Richard Hooper
    Newest Member
    Richard Hooper
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Mama trying to help 3 year old!!!

      By trents · Posted

      Welcome to the forum, @Stuartpope! With Marsh 3b damage to the villous lining of the small bowel, your son is likely deficient in a number of vitamin and minerals due to poor absorption, not just iron. B12 and all the other B vitamins are likely low. I would suggest looking into a high quality gluten-free B complex, D3, magnesium glycinate (the form of magnesium is important) and zinc. A children's multivitamin likely will not be potent enough. We commonly recommend this combo of vitamins and minerals to new celiacs as adults. Thing is, you would want to consult with a pediatrician about dosage because of his young age. In time, with the gluten-free diet his villi will rebound but he may need a kick start right now with some high potency supplements.
    • Stuartpope
      Mama trying to help 3 year old!!!

      By Stuartpope · Posted

      Hey yall!  New Celiac mama trying to help my son! My 3 year old was just diagnosed with Marsh 3b by a biopsy. We started this journey due to him being severely anemic (ferritin levels 1.2) He has had  3 iron infusions to help with the anemia. He has also been gluten free for a month. He is still having leg/ joint pain( he described a burning/ hurting) Im trying to help with his leg pain. He has trouble playing ( spending most days on the couch) He tells me 5/6X a day that his legs are hurting. Gets worse when walking or  playing. We have done OTC pain meds/ heating pad/ warm baths. What else can I do to help him be a kid.     Thanks for the help 
    • trents
      Help Interpreting My Lab Results? (updated)

      By trents · Posted

      Not sure about the state of my osteopenia. I haven't had a DEXA scan done since about age 50 and I'm now 74. No fractures, though. I have significant curvature of the upper spine (kyphosis) but that was well along by the time I was diagnosed with celiac disease almost 25 years ago. So, I think it may have been arrested at least.
    • trents
      Getting sick much more often

      By trents · Posted

      Zinc is also a very important supplement when it comes to infection resistance.
    • Jessica H
      Help Interpreting My Lab Results? (updated)

      By Jessica H · Posted

      I've got my initial appointment with a gastro for a month from now and then I'm assuming we'll schedule my endoscopy from there for a confirmation of the diagnosis. I feel like it's pretty clear since my results are 18x the normal range but I know an endoscopy is the standard. I'll definitely post how that goes. How are you doing with your osteopenia since your diagnosis? Have you found any relief? Thank you for the support and answering my questions. This is all kind of overwhelming. 
×
×
  • Create New...