Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yet Another Post About Fatigue


Guest jhmom

Recommended Posts

Guest jhmom

Ok ladies and gents, I have a question about fatigue:

I was diagnosed last Sept through enterolab and have been gluten free since 9/13/03.

Since I have been gluten-free for 4 months I thought some of these symptoms would be gone by now. Do any of you suffer from extreme fatigue? I worked one day last week for 4 hours, came home and was wiped out! :huh: I ended up in bed for the rest of the day resting. I can't do too much housework at one time bacause that wipes me out.

I do not take a multi-vitamin; I have to be careful because I am on thyroid replacement and cannot take anything with chromium in it, because it speeds up your metabolism.

I just want to feel normal. Any suggestions??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Talking about a brain fog, I totally forgot about the article about the 80mg of Vit B-6 for depression. I am going to try that maybe it will help with the fatigue too!

Guest shar4

Stacie,

After I was diagnosed, my doctor told me to continue to take the iron supplements, and then she had me start taking B12 injections and the difference was been nothing short of AMAZING. I have so much energy that I'm almost giddy, I'm sleeping better, and feeling better overall than I have in such a long time. I have to get one more B12 and then she is going to check my bloodwork again to see if my body will begin to be able to absorb it through the digestive tract or if I will continue to need the shots.

More details as they become available, and hope this helps.

sharon :lol:

Guest jhmom

Sharon:

Thanks for your reply, I will mention it to my docs. I go next week for some more bloodwork to check everything because the fatigue is bad. Thanks again

Guest eileen

I also get very fatigued. I am anemic and am hypothryoid. My md tried me on iron and i just got diarrhea most people get constipated not me and I am on thyroid supplement and have been for years. I think this all goes along with Celiac.

I am putting thing together now all the different symtoms, got them all.

I have to rest every day in the afternoon, but I don't sleep well at night either.

I am not sure but I think the fatigue goes along with everything else.

Thanks for mentioning the fatigue I though I was just getting old and having to nap every afternoon.

eileen :rolleyes:

tarnalberry Community Regular

besides vitamin levels, low testosterone can also make you very tired.

Guest jhmom

Hi Eileen:

I am also hypothyroid and been on meds for it since 1999. My levels have been good for a while and I go to the doc on a regular basis for it, so I don't think it's my thyroid. I think the fatigue is a part of this mysterious disease. I am having blood-work done tomorrow, I am interested to know how my iron level looks like.

I too have to rest in the afternoon, usually around 2-3.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tagger Rookie

I fell like I'm always fatigued. I have trouble with takinf Vit B because it gives me the "jitters". Does anyone elde experience this? Also, which Vit B am I suppoed to take B6 or B12?...Thanks..Tagger

  • 1 month later...
beelzebubble Contributor

hi all,

a synopsis: diagnosed 11 months ago via enterolab, been gluten free since, am hypothyroid-but i'm on meds and i tested normal a month ago, was borderline anemic and deficient in b vitamins and some others before diagnosis.

i am always so tired. i'm finding it really difficult to be productive. the fatigue can be overwhelming. i don't notice it so much when i'm at home, but i am completely and totally wiped out after 8 hours of work. i've only been working one day a week for the last few months, and even that knocks me out for a day or two. last week i worked two full days in a row and the next day i slept for 16 hours. is this usual? and is there anything i can do to help myself feel less tired?

most of my symptoms have subsided quite a bit, but the tiredness keeps hanging on. any thoughts?

carrie

seeking-wholeness Explorer

Carrie,

I wonder if you might be experiencing what's known as "adrenal exhaustion." You might want to do a Google search on the term. A website that I have found very informative is Open Original Shared Link. Nutritional support and some supplements (like pregnenolone for women or DHEA for men) can help a lot, but the specifics differ depending on each individual's present condition. I hope you find some helpful information in your search!

  • 3 months later...
chipsnsalsa Newbie

Beelzebubble, I have similar symptoms but they vary. Most weeks I have sustained energy throughout the day, but other weeks by 2PM I'm shot for the day. Even taking a nap doesn't help. I don't know what causes it, but it is frustrating and I'm sure related to celiac and/or the gluten-free diet. Have you had any luck diagnosing and/or treating yourself since you posted on 3/17?

  • 2 months later...
CoolCat1 Rookie

I would like to know too. I am still tired and can't get to sleep at night. I work mornings only. I sometimes rest afternoons for awhile but whether I do or not I can' t get to sleep unless I use a sleeping pill. I had Iron injections when I was anemic in May. I am still low normal and have been gluten-free for 2 months.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,073
    • Most Online (within 30 mins)
      7,748

    David Croft
    Newest Member
    David Croft
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @KRipple, thank you for the lab results from your husband's celiac disease blood antibody testing. The lab result you share would seem to be the tTG-IGA (Tissue Transglutaminase IGA) and the test result is in excess of 10x normal. This is significant as there is an increasing tendency for physicians to grant a celiac disease diagnosis on the basis of antibody testing alone when the scores on that particular test exceed 10x normal. This trend started in the UK during the COVID pandemic when there was tremendous pressure on the medical system over there and it has spread to the USA. The tTG-IGA is the centerpiece of celiac disease blood antibody testing. All this to say that some doctors would grant a celiac disease diagnosis on your husband's bloodwork alone and not feel a need to go forward with an endoscopy with biopsy. This is something you and your husband might wish to take up with his physicians. In view of his many health issues it might be wise to avoid any further damage to his small bowel lining by the continuing consumption of gluten and also to allow healing of such to progress. The lining of the small bowel is the place where essentially all of our nutrition is absorbed. This is why celiac disease when it is not addressed with a gluten free diet for many years typically results in additional health problems that are tied to nutritional deficiencies. The millions and millions of tiny finger-like projections that make up the nutrient absorbing surface of the small bowel lining are worn down by the constant inflammation from gluten consumption. In celiac disease, the immune system has been tricked into labeling gluten as an invader. As these finger-like projections are worn down, the efficiency of nutrient absorption becomes more and more compromised.
    • KRipple
      Thank you so much! And sorry for not responding sooner. I've been scouring the hospital records and can find nothing other than the following results (no lab info provided): Component Transglutaminase IgA   Normal Range: 0 - 15.0 U/mL >250.0 U/mL High   We live in Olympia, WA and I will be calling University of Washington Hospital - Roosevelt in Seattle first thing tomorrow. They seem to be the most knowledgeable about complex endocrine issues like APS 2 (and perhaps the dynamics of how APS 2 and Celiacs can affect each other). His diarrhea has not abated even without eating gluten, but that could be a presentation of either Celiac's or Addison's. So complicated. We don't have a date for endoscopy yet. I will let my husband know about resuming gluten.    Again, thank you so much for sharing your knowledge with me!
    • Jmartes71
      Ginger is my best friend, it helps alot with tummy issues..
    • aattana
      Hi Phosphone, did you ever figure out what elevated your DGP?  I am in the same boat. 
    • trents
      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
×
×
  • Create New...