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Genetics Of Celiac And Dh

maitrimama

By maitrimama
in Dermatitis Herpetiformis

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maitrimama Apprentice
maitrimama
Posted

My daughter has been diagnosed with celiac (and ibd). I (her mom) had the bloodwork done and it came back negative. Unfortunately it looks like I have DH despite the blood tests. My question is can celiac run in families in different forms? Like me and my daughter or perhaps sisters where one has celiac and the other celiac in the form of DH?

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pricklypear1971 Community Regular
pricklypear1971
Posted

Sure. Why not? Supposedly only 25% of Celiacs have DH.

They think there may be specific DH genes but so far there's no solid research. Can't remember where I read that-I've read a zillion things it seems.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yes celiac is strongly genetic. DH is celiac but not everyone that has DH will have the gut symptoms. I had DH for years before any gut issues developed. Other celiacs will never develop DH. There is still an awful lot to be learned about the associated genetics of celiac so I don't know if there really is any specfic gene that contributes to the development of it.

maitrimama Apprentice
maitrimama
Posted
  • Author

Thx - I figured as much!

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