Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Supportive Spouses?


Mjohnson73

Recommended Posts

Mjohnson73 Apprentice

Thanks everyone for your input...

I think for now I will continue to have gluten in the house for him, my daughter and my son (verdict is still out on him)... I just got my blood test results back and they came back negative for Celiac but my Rheumatologist said I should stay gluten-free since it is helping and that the tests are not 100% accurate so he is not ruling it out that I have it...

so I think what i will do is have a shelf for my stuff and a shelf for everyone else's stuff...

I might ask him if he would mind doing Gluten Free at dinner just cause it is easier to make one dish than to cook twice...

but the rest of the time he can eat as much as he wants.....

--Maya


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

Maya-

I'm neg for celiac disease as well, but was dx with endometriosis last year after a year+ of horrifying pain. All my pain went away the first month gluten free. I stayed gluten-free for four months then went back to gluten since ALL my pain was gone. I was good for about 2 months when all of a sudden the pain came back full force. I read the book Dangerous Grains and considered the quality of my life and decided to go gluten free. Pain disappeared again. So, I support your drs recommendation to remove gluten from your diet to see if it helps your other problem. It may not be as quick a solution as I found mine to be.... but hang in there for a few months and give it time to work. For me it was easy, no accidental glutenings because I've had years of experience to go on having done this with my son for years now. Good luck.

ianm Apprentice
As one of the few HUSBANDS that read threads like this, I am always tempted to scream at ppl that say stuff so harshly about men....

<{POST_SNAPBACK}>

Eloquently put.

Divorce is pretty extreme but in my case I realized that my brain fog was keeping me from seeing all of the other problems in my marriage. When I went gluten-free and the brain fog lifted I could clearly see that our marriage was by for and about her and only her. Jerks come in all shapes, sizes, ethnicities AND genders. When something like celiac disease happens you find out who your freinds are and who you can trust real quick.

cgilsing Enthusiast

To the men reading this:

I hope you guys don't really think that the women on this board are unhappy with their men or consider them to be jerks incapable of caring or support. My husband is the best support I have. He has been a partner for me in this disease. He knows just as much about it as I do and watches out for my diet on an equal level. He reads the labels on everything. When I'm too shy to ask the hostess about the ingredients in a dish he is already doing it for me. On top of it all he loved me enough to marry me before I was diagnosed, when I was bloated, loosing my hair, and sleeping 14 hours a day. No, I don't consider him an incapable jerk at all. I'm not sure I could be as caring as he is. Let's face it, it's not always easy being married to someone with celiac disease. But here's to the husbands (and wives) that support us in sickness and in health.

pixiegirl Enthusiast

My boyfriend is similar.... he starts talking to restaurants before I do. This weekend we are leaving on a week trip to upstate new york and he has already mapped out where the gluten-free places (chains and places that we found by writing to the various celiac groups in the area. He also mapped out health food stores and called them to see if they have gluten-free food. I've said to him a million times leading up to this trip that I'm afraid I'm going to be glutened and he has assured me I won't be. I actually believe him, with all the research and work he's done for this trip, I'll be as safe as I can be while traveling.

I often travel but its usually to larger cities where I can get to chain gluten-free restaurants or very high end places and this is going to be a trip to a very rural area with smaller mom and pop places. But we are also going to picnic a lot, so we'll see how it goes!

Susan

Pegster Apprentice

I praise of supportive spouses: My husband is a wonderful cook. He has been great about converting our favorite recipes just for me. I am the only one with celiac disease at my house, but our main dishes at dinner are always gluten-free. I stopped making two batches of pasta about a year ago. Sometimes the others have bread that I can't have, but I can have my own bread or eat my special crackers. I would NEVER make them eat gluten-free bread--that would be cruel.

emeraldskies Rookie
Instead of appealing to your husband the way you understand it, aproach it like its a game, or a challenge. Go to him with a PROBLEM, that he can FIX. Most men love to FIX things for thier wives. So present "gluten-free" as a issue that needs fixing. Istead of stuff like "Honey YOU CANT DO THATT! AKLSJFLKSA!! DONT YOU CARE???" , try stuff like "Honey, we need to find a way to keep the butter from getting crumbs in it, what do you think we should do?" Once he sees it as a problem that needs his fixing, most of the time most men will love to "fix" it. Thats actually the main way most men show how much love they have.

<{POST_SNAPBACK}>

My husband is definitely the way you describe. He feels best if he can constantly help me or fix my life somehow. The arrangement is working out for both of us. Also, he doesn't have any problems doing any traditional female-type activities to help me out, such as buying me feminine products or doing housework.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WLJOHNSON Newbie

Maya, Ianm and Jnkmnky,

Yay!!! Finally, a message board where people are real. It was so refreshing to read all the posts you put in, and I had to laugh, which really felt GOOD, so please keep up the dialogue, and Maya, please keep posting.

Ianm I applaud you for your forthrightness and courage in taking care of yourself. I, too, recently asked my spouse to leave, and life is so much better now. Jnkmnky I think your openness is great.

Life with Celiac is a challenge, an adventure, and a quest which leads us to always be exploring, searching for new and better foods as we attempt to be healthy, happy, and satisfied human beings.

I really enjoyed all your posts. Thanks! Welda Lou (Celiac since age 8, now 60, with 2 year old grandson, 61 year old sister, and 55 year old cousin recently diagnosed Celiac as well)

luvs2eat Collaborator

Make him come into the bathroom with you after you've been glutenized! That'd make a supportive person out of anyone who was with ME!! haha

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,550
    • Most Online (within 30 mins)
      7,748

    Bethann Sheridan
    Newest Member
    Bethann Sheridan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @LynnM, when you say, "today, his numbers were high", what numbers do you refer to? Are you speaking of celiac antibody scores? Can you be more specific and can you post the test names, the numbers and the reference ranges for the tests? So, I am understanding you to say that topical exposure to gluten doesn't cause him GI reactions but ingestion of gluten does but at the same time you are attributing the "high numbers" to the topical exposure?
    • Ginger38
      So I recently had blood work and my hemoglobin, hematocrit, protein and alkaline phosphatase were all low. They have never been low in the past but since august of last year I have been on the in and off gluten rollercoaster as I mentioned in previous posts. Should I be concerned with these new findings? I am worried I have made myself really sick and done damage or something this past year 
    • LynnM
      Thank you Scott. My son doesn't have a reaction topically, only when ingested. Interestingly though, the doc told us the face cream getting gluten into his bloodstream doesn't do the damage akin to when gluten is ingested. He had no reaction when using the face cream, it only presented in blood-work. I'm hopeful from all the comments today and will wait for the GI doc to reply. If he is cleared to use it, I will encourage SHIELD to get a gluten-free certification 
    • Scott Adams
      It’s great that you’re taking the time to research products carefully for your son with celiac disease—especially since accidental gluten exposure through skincare can be a real concern for sensitive individuals. Based on the ingredient lists you’ve shared, none of the products appear to contain obvious sources of gluten like wheat, barley, or rye derivatives. Ingredients like glycerin and tocopherols (not listed here but often a concern) can sometimes be derived from wheat, but many manufacturers use plant-based or synthetic sources. SHIELD’s transparency and willingness to share their full ingredient list is a good sign, and their note about not intentionally adding gluten is reassuring. Still, because ingredient sourcing can vary and sensitivities differ from person to person, it’s wise that you’ve reached out to your GI specialist to be sure these products are safe for your son’s specific needs. In the meantime, if you do try any of the products, consider patch-testing them first and watching closely for any signs of skin irritation or reactions. PS - Most people with celiac disease won't react to skin products that may contain gluten, but I still recommend finding gluten-free products.
    • LynnM
      Greetings Trents and Scott. This is the first time I'm posting here so I apologize in advance if I'm not replying properly. My 13 YO was diagnosed at age 5 and once gluten was removed from his diet, he grew 3" in a year, skin became much better and dark circles around his eyes disappeared. Today his numbers were very high and our new dietician discovered his face cream (Clinique dramatically different lotion) contained gluten. My fault for not checking.    His acne really has only just started and he's using OCT gluten-free products but the SHIELD is nothing short of miraculous for my 16 YO son and the 13 YO is eager to start. I will await his dietician's reply or google each ingredient.    I don't want to put him on that Rx as it's not that bad and isn't painful either. Just a boy starting 8th grade and doesn't want bad acne.    When I hear back I will circle back. 
×
×
  • Create New...