Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Synthroid Brand


Skylark

Recommended Posts

Skylark Collaborator

I just went to the Dr. this morning and he's willing to switch me to either Levoxyl or Synthroid from my generic. I strongly prefer Synthroid because it is a sugar base. Most other tablets including Levoxyl are made of microcrystalline cellulose which can bind T4, making it harder to absorb and I still have some malabsorption issues. I have to chew up my generic thyroid tablets and pray. Sugar dissolves completely and it doesn't bind the thyroid hormone so I'm willing to pay a bit more and give it a go. Problem is, Abbot does not test Synthroid for gluten. People have asked and they basically say the ingredients should be naturally gluten-free but they have no control over their suppliers. Standard legal wiggle words. Levoxyl tests and guarantees their pills are gluten-free.

The Synthroid sample package lists: acacia, confectioner's sugar (contains corn starch), lactose monohydrate, magnesium stearate, providone, and talc. My strength also has FD&C blue no. 2 aluminum lake.

I don't see anything in that tablet that would give me pause at the grocery store and I tolerate lactose without any trouble. I cook with confectioners sugar and corn starch that haven't been specially tested for gluten. The generic thyroid I'm taking now has blue coloring so that won't be a problem.

Is anyone taking Synthroid brand comfortably? I just want to check that some other folks on the board are doing OK on it before I get the scrip filled.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I'm on a compounded version from my compounding pharmacy. I asked if it was gluten-free and iodine free and they said yes. Haven't asked about anything else.

Interesting thought re: absorption.

Link to comment
Share on other sites
Skylark Collaborator

This is where I learned about thyroid and cellulose. I'm assuming if it's bad in dessicated, it's probably also bad in synthetic. It's also one of the places I learned about T3 and while I'm not on a natural thyroid I do take synthetic T3 as well as T4.

Open Original Shared Link

Open Original Shared Link

Link to comment
Share on other sites
pricklypear1971 Community Regular

This is where I learned about thyroid and cellulose. I'm assuming if it's bad in dessicated, it's probably also bad in synthetic. It's also one of the places I learned about T3 and while I'm not on a natural thyroid I do take synthetic T3 as well as T4.

Open Original Shared Link

e-is-a-problem-with-desiccated-thyroid/

Open Original Shared Link

Wow. Yes, I was on Armour and had to switch.

I will definitely ask about this next time I have my meds made.

Thanks for bringing this up!

Link to comment
Share on other sites
kimis Collaborator

I take a combo of Synthroid and Cytomel. Are you on generic T3? I always wondered if the Synthroid was gluten free because I have heard so many different things about it. If you don't mind me asking.....how much T4 and T3 do you take? I take 25mcg of Synthroid and 70mcg of cytomel. I do plan on switching things up soon. I hear good things about natural.

Link to comment
Share on other sites
Skylark Collaborator

I'm on the Mylan generic T3. I'm less worried about generic T3 than T4 though that might be a mistake. :lol: My Dr. just took me up to 150 mcg of T4 and I'm on 25 of T3. My poor thyroid gland is shot.

Link to comment
Share on other sites
wjp Newbie

I was on Synthroid for the lst year I was gluten free. I didn't realize at the time that Synthroid for causing a problem. I am very strict with my diet and did not realize that the dizziness/vertigo I was still getting was caused by Synthroid. When I read back in the Spring about Synthroid possibly having cross contamination, I switched to Levoxyl. Stopped the dizziness/vertigo. Have not had a problem since. Good luck in your decision.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



boysmom Explorer

I've been taking Synthroid (25 mcg) for 20 years now, and was only diagnosed celiac just over 2 years ago. I read that the makers of Synthroid don't guarantee Gluten-free status, but my doctors have always insisted that I stay with the brand name. When I'd asked I was told that the balance of hormone was so delicate that you couldn't be assured it was accurate in generics, so it's possible newer technologies have improved that situation. At any rate, I haven't had any problems with it that I can tell. I do have occasional symptoms that I can't pin down, but since I take Synthroid every day and these are only occasional occurrences I don't think there's a connection.

Luanne

Link to comment
Share on other sites
kimis Collaborator

I've been taking Synthroid (25 mcg) for 20 years now, and was only diagnosed celiac just over 2 years ago. I read that the makers of Synthroid don't guarantee Gluten-free status, but my doctors have always insisted that I stay with the brand name. When I'd asked I was told that the balance of hormone was so delicate that you couldn't be assured it was accurate in generics, so it's possible newer technologies have improved that situation. At any rate, I haven't had any problems with it that I can tell. I do have occasional symptoms that I can't pin down, but since I take Synthroid every day and these are only occasional occurrences I don't think there's a connection.

Luanne

I agree with your Dr. about the fluctuation in generics, but you have other brand name T4 options.

Link to comment
Share on other sites
Tigercat17 Enthusiast

HI everyone!

I know I was getting some CC of gluten from the synthriod brand about two years ago. I called the Abbott company twice & they told me the same thing - "They didn't add gluten to the synthriod but they didn't test for gluten & they couldn't guarantee it was gluten free." Last year after being on the gluten free diet for three months, I didn't get any better at all & I was taking synthyiod at the time. When I got my new prescription for that third month, I suddenly felt worse. I started to suspect that it was the synthryiod. So, I called the Abott company again & the rep. told that "Synthriod was not advertised as a gluten free product." That really made me wonder even more. So, I started eating nothing but natural whole foods & still I was feeling worse. I weeded out all of the processed foods & I was really worried that I was never going to get better, maybe I had other food allergies or even another disease. I was sooo sick. I really didn't want to change my thyroid hormone med, but I called my doctor & told them how I was feeling. My Endo doctor called the Abbott company also & they told him the same thing, so they switched me to Levoxyl from King Pharmaceuticals.

Today, I feel great! I've been taking Levoxly for the last almost two years and I've never had any problems with it. I have realized that I'm super sensitive and I still haven't found a multi vitamin that I haven't had a reaction to. But I feel great - haven't taking any multi vitamins and all I take now is Levoxyl and iron and some Nature made calcium once in a while.

My TSH levels didn't change much when I switched brands. The only thing that changed is I didn't need as much thyroid hormone anymore since I started to absorb nutrients a lot better since I was newly gluten free. It's a good idea to get tested every 6 weeks if someone is new at the gluten free diet and you're taking thyroid hormones. You'll start absorbing meds and nutrients a lot better.

I hope this helps someone... :)

Link to comment
Share on other sites
Skylark Collaborator

Boy, it sounds like everything else. Some people are OK on Synthroid and others react. How confusing. Thanks a million for your input, kimis, wjp, Luann, and Lisa!

My Dr. did give me two weeks of samples and so far I have no weird GI issues or canker sores. If I get a canker sore I'll know for sure it's gluten!

Link to comment
Share on other sites
mushroom Proficient

Our synthroid down here contains gluten :(

Link to comment
Share on other sites
Skylark Collaborator

Our synthroid down here contains gluten :(

It's different from country to country? That explains a LOT. I don't see how the US form, which is basically a sugar pill, would contain gluten.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,790
    • Most Online (within 30 mins)
      7,748

    Sesroach
    Newest Member
    Sesroach
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      68.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • GeordieGeezer
      Update: Just realised i never updated this post with a major development. since May 2023 i can now eat whatever i want 7 days a week. I accidentally ate the same type of food two days in a row and suffered no reaction so immediately realised my body had recovered. And of all places to discover it i was in a 5 star resort in Greece where there was all you can eat breakfast lunch and dinner buffets so yeah you can maybe imagine i tucked in nicely after so many years of not being able to. Been about 18 months now with zero reactions so even though the modern medical way of thinking is that auto immune disease cant be cured....my stomach says different.
    • sh00148
      Thanks.  So something has come up on his blood tests and I have an appointment to discuss the findings on Monday. My son has been soya free and dairy free for a while as we did York food testing to check for allergies intolerances.     
    • cristiana
      Hi @sh00148 I am so glad that your son is going to have a blood test next week.    If the blood test is that soon, and he has been consuming normal levels of gluten up until now, he should have had enough exposure to gluten to test positive should you decide to stop the gluten immediately, as Scott suggest.  However, one thing you may wish to change in the short term instead/as well is to stop him consuming dairy products.  If he is a coeliac, he may have become temporarily dairy intolerant.  The tips of the villi, which line the gut and are damaged in coeliacs, produce lactase, an enzyme essential for the digestion of dairy.  If they are damaged it can contribute to diarrhea and gas.  I had this some months after my own coeliac diagnosis, and it improved no end when I gave up dairy for a while.  Once on a gluten free diet they heal, and most coeliacs can return to consuming dairy. I would have thought that with those bowel issues in a young child what is happening to him is entirely normal.    
    • Scott Adams
      It’s understandable to feel frustrated, especially when you’re managing celiac well but still experiencing new, unexplained symptoms. Many people with celiac notice sensations around the neck and jaw area, even without visible swelling. Sometimes, lymph node sensitivity or a tight feeling in the throat can linger as part of the body’s inflammatory response, even if your thyroid and other tests come back normal. It sounds like you’ve been thorough with testing and have seen multiple specialists, which is great. A few things might be worth considering: for some people with celiac, there can be lingering sensitivities to trace gluten, cross-reactive foods, or even certain environmental factors that can cause persistent inflammation. Since you’ve tried antihistamines and a humidifier, you might want to discuss options like different allergy medications or seeing an ENT specialist if you haven’t already. Some find that supplements (like anti-inflammatory options or probiotics) help support overall inflammation reduction, though you should always check with your doctor first. It’s frustrating when you feel the symptoms without an obvious cause, but trust your instincts—hopefully, with persistence, you’ll find answers and some relief soon.
    • Scott Adams
      It sounds like you’re really going through it—accidental gluten exposure can definitely take a toll, and when it happens twice close together, it can feel like it drags on even longer. Many people find that each glutening is a bit unpredictable in terms of recovery, and it could take a little extra time if your body hasn’t fully cleared out the first exposure before the second one hit. Staying hydrated, avoiding other potential irritants (like alcohol and spicy foods), and resting can help ease the symptoms as your gut heals. Hopefully, things start to settle soon! In the meantime, it could be helpful to communicate with friends about specific brands to look out for, even when it’s hard to ask in the moment. Hang in there—hope you’re feeling much better soon! This article, and the comments below it, may be helpful:    
×
×
  • Create New...