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T.H.

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T.H. Community Regular

This was mentioned in another forum, and I thought it might be of interest to some here: an article by another super sensitive gal, and what it's been like for her.

Open Original Shared Link

It's from a Canadian perspective, but definitely interesting. I was intrigued by her comments on having prescription tryptophan after she's been glutened, and how that helped with her seratonin crash.


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GFreeMO Proficient

Thanks for sharing that. It was a pretty good article. It's comforting to know that there are other super sensitives like us out there.

GlutenFreeManna Rising Star

Thank you for sharing Shauna.

lovegrov Collaborator

Despite occasional bouts of gas, I think I can survive without the charcoal underwear liners.

richard

Jestgar Rising Star

Despite occasional bouts of gas, I think I can survive without the charcoal underwear liners.

richard

They could come in handy on camping trips, if you have trouble lighting the campfire.

dilettantesteph Collaborator

I don't think that she was talking about gas when she suggested the charcoal liners. Some of us have pretty severe symptoms when we're glutened.

weluvgators Explorer

There is a whole thread for "The Funny Pages . . . " - here is the link:

The Flat-D site looks good, and they have a clip from The Doctors where it was mentioned: Open Original Shared Link . From the site,

Flat-D Innovations, an FDA registered and Better Business Bureau Accredited company, is the market leader for over 8 years in flatulence odor control products, feminine odors, and clothes odor. The company's patented products feature activated charcoal cloth that has improved the quality of life for people in over 50 countries worldwide. Flat-D intestinal gas or flatus deodorizing products are in a thin cloth form and are similar to charcoal underwear or a flatulence ( fart ) filter are doctor recommended and used by individuals with gastric bypass odor, ostomy smells, irritable bowel syndrome, lactose intolerance, celiac, crohn's and other rectal issues.

I really enjoyed how the OP article addressed the value of EZ Gluten tests - it was really cool how she articulated that she originally dismissed their value . . . only to turn around and find them so useful. And I appreciated her summary of her test results - invaluable information IMHO!!


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lovegrov Collaborator

Sorry if I misunderstood.

richard

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    • ChrisSeth
      Okay thanks Scott. So based on my results will they order more tests to be done? Kind of confused.
    • Scott Adams
      Yes, this sounds right. Let us know when you find out your results.
    • ChrisSeth
      Hi thanks for your response! This is the only other info that’s on my test results for the IgA. The initial testing performed in the Celiac Disease Reflex Panel is the total IgA. If the total IgA is <10 mg/dL, the reflex tests that will be ordered are the Tissue Transglutaminase IgG Antibody and the Deamidated Gliadin Peptide IgG Antibody. If the total IgA is >=10 mg/dL, the reflex test that will be ordered is the Tissue Transglutaminase IgA Antibody. Does that give some insight?  following up with my Dr early next week… thanks again.  And I didn’t eat more gluten than usual during the last 6-8 weeks on purpose. Just a normal diet prior to testing. I had gluten everyday for 6-8 weeks though I’m sure.
    • Scott Adams
      Have you tried sheep's milk and goat's milk cheeses? After my diagnosis I could not tolerate cow's milk for ~2 years until my villi healed, but for some reason I did not have issues with sheep milk or goat milk cheeses.  I also had temporary issues with chicken eggs, but could eat duck eggs.
    • Scott Adams
      This is not a test for celiac disease, but your total IgA levels. This test is usually done with other celiac disease blood tests to make sure the results are accurate. Did they do a tTg-IgA test as well? Were you eating lots of gluten in the 6-8 weeks leading up to your blood tests? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
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