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Spouse Is Nonsupportive


heyteacher

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heyteacher Newbie

Ollie's Mom---you made me smile :rolleyes: Thanks for your reply!

Maybe I should apologize for my post causing some feathers to get ruffled. Maybe I shouldn't have given info regarding my husband, I should have kept it about me and my issues.

I don't need his permission to go see a Dr. That being said, I can't hide the fact that I went to the Dr either. We are limited, actually quite limited financially. I am sure there are plenty of people who are members of this group who can identify with that. I am not suggesting that I am "special" when it comes to finances. We (my hubs and I)are very conservative when it comes to spending.

I want to say thanks again for all of your wonderful suggestions. We have had a good conversation about my "issues" without fighting, so that is progress. I don't know if I would had as much success without reading your supportive comments/replies. He still does not think a Dr appointment is in order, but we did have a good discussion.

I have never posted a question on a forum/discussion group so I'm not sure exactly what you consider appropriate/applicable to your discussions about celiac disease. Maybe I should have left the husband out of it? Anywhoo---I appreciate your support, this is the first time I have experienced any support (regarding by health) in a long time. :D


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kitgordon Explorer

HeyTeacher - you don't owe anyone an apology! There was absolutely NOTHING inappropriate in your post, and you are not responsible when people disagree with each other's advice to you. It's fine to mention your husband's lack of support; we get a lot of similar posts.

I think you should tell your husband you absolutely need his support in either going to a doctor, or implementing a strict gluten-free diet - one or the other. Use the "in sickness and in health" line. And in the meantime, if you are too sick to function... DON'T! Let the kids miss some activities, let him pick up some slack in whatever your responsibilities are - let him SEE how ill you are. As long as you suck it up and keep a stiff upper lip and he is not inconvenienced by your illness, he is going to maintain the status quo because it is comfortable for him. Don't let anyone maintain their comfort at the cost of your own health. Good luck!

ravenwoodglass Mentor

HeyTeacher - you don't owe anyone an apology! There was absolutely NOTHING inappropriate in your post, and you are not responsible when people disagree with each other's advice to you. It's fine to mention your husband's lack of support; we get a lot of similar posts.

This was very well said. Heyteacher do feel free to post whatever you need to post and ask any questions you need to. This is a great place to vent or to ask for or give advice. You did nothing wrong.

GlutenFreeManna Rising Star

HeyTeacher - you don't owe anyone an apology! There was absolutely NOTHING inappropriate in your post, and you are not responsible when people disagree with each other's advice to you. It's fine to mention your husband's lack of support; we get a lot of similar posts.

I think you should tell your husband you absolutely need his support in either going to a doctor, or implementing a strict gluten-free diet - one or the other. Use the "in sickness and in health" line. And in the meantime, if you are too sick to function... DON'T! Let the kids miss some activities, let him pick up some slack in whatever your responsibilities are - let him SEE how ill you are. As long as you suck it up and keep a stiff upper lip and he is not inconvenienced by your illness, he is going to maintain the status quo because it is comfortable for him. Don't let anyone maintain their comfort at the cost of your own health. Good luck!

Exactly! Thank you for saying so well what I was trying to say. Heyteacher don't worry about us--I've seen much worse ruffled feathers before. I'm glad you are having good discussions with your husband. Mentioning him was important and maybe it helped you get it off your chest so you can deal with talking to him more about this. Please feel free to ask more questions here in the future! :)

gailc Newbie

I have found the gluten-free diet to be traumatic, not the diet itself but searching for foods. In order not to go thru this again when I eventually get diabetes I decided to do that diet now too. (DIET=the food we eat and the liquids we eat).

The diabetic diet is pretty much gluten-free except for substituting gluten-free bread, but I'd rather have rice.

One raw food like a tomato, fruit veggies and protein and salad. Where's the gluten in that? I think this is easier than focusing on what I cannot have. I have not baked for 7 months. Soon.

Food when I am out alone is a trip to the grocery produce dept. for an apple or banana, or now since my gluten intolerance went away some yogurt which I count as a dessert.

Try to cook meals that you can eat JUST the gluten-free parts.

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    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
    • Levi
      When I was first Dg’d I researched like mad. One thing I remember from then, which may have changed with advancement in medical science, is that Coeliac is a first generation disease which means either you or your husband need be Coeliac for your daughter to have inherited it. Far as I know, and I’m not a scientist just a victim, the amount of gluten (wheat, rye, or barley) one consumes does not cause a person to contract Coeliac Disease. So if neither of you as her biological parents have Coeliac then your daughter cannot pass any blame should she contract this horrific disease.     It’s humbling, and sometimes I believe GOD allows such as these autoimmune diseases for those who need it most. 
    • Lori Lavell
      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
    • Scott Adams
      Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones that trigger an autoimmune response in people with celiac disease. For individuals with celiac disease, the primary concern is avoiding gluten from wheat, barley, and rye, as these are the grains scientifically proven to cause damage to the small intestine. While some people with celiac disease or non-celiac gluten sensitivity may also react to other grains, this is not universal and varies from person to person. For most people with celiac disease, grains like corn and rice are considered safe and are widely recommended as part of a gluten-free diet. That said, you raise an important point about systemic inflammation and individual tolerance. Some people may indeed have sensitivities to other grains or find that eliminating additional grains helps them feel better. However, it’s crucial to differentiate between celiac disease, which requires strict avoidance of wheat, barley, and rye, and other conditions or sensitivities that may involve broader dietary restrictions.
    • trents
      I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins found in these other cereal grains. It's like the term "kleenex" has come to refer to all facial tissues.
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