Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can An Infant Have Gluten Problems?


glutenfreemamax2

Recommended Posts

glutenfreemamax2 Enthusiast

I have been excluding bf'ing my 6 week old. I was gluten-free through my pregnancy, but started eating gluten te last 3 weeks of my pregnancy and 2 weeks after(I was doing a gluten challenge but started feeling so ba I went back gluten-free).

He has on and off green poop. It's also stringy and mucusy. When I get glutened, I notice that r is miserable, stomach gurgling, reflux is way worse, and it's like diareaha. E was on prevacid solutabs an I wondered if they were gluten-free because the reaction was so bad. I stopped them and switched o zantac.

I have a pedi gi appointment tomorrow an want to know what questions i should be asking. I will be loosing my insurance at the end of the month.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beebs Enthusiast

Yes they can absolutely. Even if its not gluten it sounds like he is reacting to something that you are eating. And the more you read on here lots of people also react to nightshades and soy...I'd start by taking your baby to a Dr that is good (recommended) with things like celiac and food intolerances. Good luck!

glutenfreemamax2 Enthusiast

Me pedi is no help and knows nothing about breastfeeding. He told me as long as there is no blood doesn't have a problem with food. I don't want there to be that much damage that he bleeds. Hopefully the gi is more knowlagable, but I really don't think she is. There is no one in the area who is knowlagable, and she is the only gastro pedi with in like 70 miles.

codetalker Contributor

I was DX

beebs Enthusiast

Me pedi is no help and knows nothing about breastfeeding. He told me as long as there is no blood doesn't have a problem with food. I don't want there to be that much damage that he bleeds. Hopefully the gi is more knowlagable, but I really don't think she is. There is no one in the area who is knowlagable, and she is the only gastro pedi with in like 70 miles.

You need a new Dr - that is the most ridiculous thing I have ever heard. Some Celiacs have no symptoms whatsoever! Not to mention my kids never had blood in their poo - and they were sick as anything and their stools were horrifying! :rolleyes: Yet another Dr giving out ridiculous advice.

jebby Enthusiast

Are you drinking milk or consuming dairy? We see tons of infants who react to casein, which is one of the major proteins in cow's milk, and can easily pass through breastmilk. My oldest had a severe milk protein intolerance in her first few months of life, with green stools with mucus, bad reflux, and we couldn't get her to gain weight. The latest statistics I've seen is that 3-5% of infants have some degree of reaction to cow's milk proteins.

M0Mto3 Rookie

I agree with pp that it sounds more like a dairy issue. My DD started to react to gluten that was passing through breastmilk, but the amount that passes through breastmilk is fairly small (some doc's don't believe it is enough to cause any issues). We had no idea that she was reacting until she started dropping in weight %. She started at the 50th% and maintained this until she was 2 months old. Then, as the gluten started to destroy her small intestine she started dropping in weight %. Her bms were always funky, but didn't get bad until she had destruction to the small intestine.

My ODS had the dairy intolerance and he would vomit if I ate any dairy products. This is extremely common in infants. Celiacs in infants is extrememly rare. It would probably benefit your LO to try a dairy/soy free diet. My ped GI told me that 50% of the time LOs who react to dairy also react to soy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

At 6 weeks it's highly unlikely to be a gluten thing.

richard

salexander421 Enthusiast

At 6 weeks it's highly unlikely to be a gluten thing.

richard

Sorry, but I totally disagree with this. My girly started having problems at 8 weeks. We first suspected dairy and took that out of my diet and she got better but her symptoms were not completely gone. It took a super strict elimination diet to get rid of all her symptoms and finally when she was around 12 months we finally realized that gluten was at the base of her issues. She has not had any testing yet (doctors have not been super supportive, it would be really good if you can find a more supportive doctor) but we know she carries at least one of the genes and she has major symptoms which include a rash that fits the profile of dermatitis hepertiformis so we definitely suspect celiac.

I think you have 3 options here; you could continue eating the way your eating and wait until your little one's older and the symptoms are worse and maybe a doctor would be willing to test, you could change your diet and try to figure out what's causing the symptoms and eliminate those foods, or you could give up breastfeeding and hope that formula is the answer (some baby's have problems with even hypoallergenic formula).

If I were in your shoe's I would take out dairy and gluten and give it a few weeks and see how things are, then go from there.

glutenfreemamax2 Enthusiast

I'm not drinking or eating any dairy, but have not cut the "hidden" dairy. All the gluten-free stuff I eat is dairy free. These lo's need owners manuals!

My last son was extremely allergic to dairy and eggs. No one believed me until there was blood in his stool, then they told me "must be salmonella". It was food allergies.

pricklypear1971 Community Regular

If you have one with a dairy/egg problem, there's a good chance you have two. Seems to go that way, unfortunately.

Keep eliminating til you figure out what works.

Good luck, I know it's awful to watch them not feel well and not know how to fix it.

glutenfreemamax2 Enthusiast

Gi was awesome. She said defiantly stay away from gluten fair and eggs. Upped the Zantac dose, and asked me to put him on a probioic.

Said I should get gene testing done for me since I

gluten-free and didn't tolerate the gluten challenge. What does everyone think about that?

beebs Enthusiast

Gi was awesome. She said defiantly stay away from gluten fair and eggs. Upped the Zantac dose, and asked me to put him on a probioic.

Said I should get gene testing done for me since I

gluten-free and didn't tolerate the gluten challenge. What does everyone think about that?

Sounds like a good GI - I was thinking about what people were saying about it unlikely to be gluten at this age. Who really knows- my son screamed from the day he was born, refluxy, colicky and bad stools. He vomited every single day of his life and it caused ulcers in is esophagus, it only stopped when he went gluten free after his biopsy at 18 months old. At first the Drs where like leave it, it'll be ok, he'll grow out of it etc etc. Fast forward 2 years later, he has since had a borderline biopsy, he has been tested for CF, and basically everything under the sun. It looks like there is more to the story than just the gluten - but there is deffo a problem with gluten there. Which is unsurprising, considering I, my mother and her father are all the same.

As for the genes - I just got mine done. I am the same that I can't do a challenge. The positive gene and the severity of my reaction to gluten leaves no doubt in either my or my Drs mind that it is celiac. Even though its not diagnostic for someone who can't do a challenge it can be as good as we can get iykwim.

come dance with me Enthusiast

My nephew was a screamer for the first 3 months of his life. His parents are vegan so they weren't having any dairy or eggs at all anyway then I said to try a gluten free diet since my LO is coeliac and it's genetic and it's from my side not her father's side. My brother's wife cut out gluten from her diet and now he poos easily and sleeps better and is a whole lot happier. His problems began in the first month of his life.

Roda Rising Star

When I breast fed my youngest son I had to eliminate all dairy, oats, rice and tree nuts. Reflux was still an issue, but I didn't know about gluten at that time. Funny how I look back now and realize I felt pretty darn good during those first 12 months of breastfeeding, I was gluten light without knowing it. He was almost 4 when I was diagnosed and he tested negative. He started having issues again at 5 1/2 that led us to retest for celiac and he was positive. In hindsite I believe he had gluten issues as an infant and obviously I did too.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,309
    • Most Online (within 30 mins)
      7,748

    jarheadmp3
    Newest Member
    jarheadmp3
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
    • Scott Adams
      Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
    • KDeL
      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
×
×
  • Create New...