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Tmj?

jessthirtytwo

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jessthirtytwo Apprentice
jessthirtytwo
Posted

Hey guys!

I am fairly newly diagnosed with Celiacs (less than 2 months), but I have had TMJ problems for a long time (4+ years). My mom, who also has Celiacs has TMJ as well. I was just curious as to whether anyone else has TMJ problems along with Celiacs, and if you saw them clear up after a while eating gluten-free.

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lynnelise Apprentice
lynnelise
Posted

I have terrible TMJ. It's related to inflammation and gluten causes an increase in inflammation so the diet does help a lot! When I get glutened I will always get a TMJ flare.

jerseyangel Proficient
jerseyangel
Posted

I have both--diagnosed with TMJ about a year before Celiac. I don't know if they're connected though.

ECUmom3 Explorer
ECUmom3
Posted

I hadn't thought of it before. I have both. Diagnosed with TMJ around 15 yrs. ago. Diagnosed in January with Celiac.

jmrogers31 Contributor
jmrogers31
Posted

That's interesting. I never thought of them being related but I had TMJ long before my gluten intolerance diagnosis. The doctors thought that wearing the mouthpiece for TMJ would cause my headaches to go away. Well, that combined with eating gluten free finally did cause the headaches to get better.

pricklypear1971 Community Regular
pricklypear1971
Posted

TMJ dx aonth before gluten-free.

Mine was started with wisdom teeth removal at 18....one tooth didn't want to come out and they pulled really hard.

It has improved greatly off gluten.

jessthirtytwo Apprentice
jessthirtytwo
Posted
  • Author

thanks everyone! heres to hoping theyre related so my TMJ will go away!

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mushroom Proficient
mushroom
Posted

I have read a lot, though with no references to give you, about the relationship between TMJ and gluten. Hope yours goes away. :)

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    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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      My journey is it gluten or fiber?

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      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      My journey is it gluten or fiber?

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      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
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      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
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