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Is It True Or Not?

scaredparent

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scaredparent Apprentice
scaredparent
Posted

I took my almost 8 year old to the dr today to be tested for celiac disease. A dr from Kansas City ordered all the tests Iga, Ttg, Anti-edo??, T free, and a thyrod test in the first of July but she couldn't have the test because she had been gluten-free for a week. My daughter had her tonsil out and could only have popscles and ice cream. I saw the dr 1 week post op and she wanted her on glutten for another month for sure. It has been 6 weeks so I went to our ped office and she ordered the tests for the other dr and they said the anti-edo?? test doesn't even exists. That the test is the same as the Iga and Ttg. I don't know if there is a difference or not. The lab would not run the test. Please let me know if there is diffence so I can call the dr and have them talk to the lab.

She weighs about 82 lbs and she lost 7 lbs in one week and being gluten-free. Her stomache went back normal and started pooping normal. Then I but her back on glutten and started complaining about her stomach hurting and she couldn't poop and her distended stomach cameback. I am almost positive that she has celiac disease but I want to make sure that all the test were done.

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tarnalberry Community Regular
tarnalberry
Posted
I took my almost 8 year old to the dr today to be tested for celiac disease.  A dr from Kansas City ordered all the tests Iga, Ttg, Anti-edo??, T free, and a thyrod test in the first of July but she couldn't have the test because she had been gluten-free for a week.  My daughter had her tonsil out and could only have popscles and ice cream.  I saw the dr 1 week post op and she wanted her on glutten for another month for sure.  It has been 6 weeks so I went to our ped office and she ordered the tests for the other dr and they said the anti-edo?? test doesn't even exists.  That the test is the same as the Iga and Ttg.  I don't know if there is a difference or not.  The lab would not run the test.  Please let me know if there is diffence so I can call the dr and have them talk to the lab. 

She weighs about 82 lbs and she lost 7 lbs in one week and being gluten-free.  Her stomache went back normal and started pooping normal.  Then I but her back on glutten and started complaining about her stomach hurting and she couldn't poop and  her distended stomach cameback.  I am almost positive that she has celiac disease but I want to make sure that all the test were done.

<{POST_SNAPBACK}>

Of course there's such a thing as the anti-endomyosial antibody test (EMA), but if it was misspelled, they may have been confused. The anti-gliandin IgA and IgG tests are separate, as is the total IgA test and the tissure trans-glutimerase (tTg) test. There is also an anti-reticulin IgA and IgG, but it is not used nearly as often these days.

While it's important that you pay attention to your daughters reaction from the diet, if you feel the need for a physician's diagnosis, please continue to follow up with the doctor to get the right tests ordered. I'm sorry the lab wasn't being more cooperative, though. If you don't need any more evidence than the changes in your daughter's symptoms with the dietary changes, then stick with the gluten-free diet!

VydorScope Proficient
VydorScope
Posted

You at a cross roads here. If you push now and get all the tests you can then imdetiatly go gluten-free once the tests are done. If you wait and go gluten-free first then at some point she will have to spend at least 3 months back on gluten to get the "offical" test results.

If you think at any time you might want the offical test results, then NOW is the time to get it. You will not want to return to this mess once your clear of it!

So I highly suggest you get the tests done and then your daughter can be free and clear of Gluten for ever with no reason to ever go back. :D

Thats just my non-doctor opinion....

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