Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Weight Loss

DanielleR

By DanielleR
in Related Issues & Disorders

Recommended Posts

DanielleR Rookie
DanielleR
Posted

font="Times New Roman"] I was told I have Celiacs in May of this year. I noticed around the middle of June that I was losing some weight. At first, I was all to thrilled to lose some extra but, then I could not wear any of my clothing. Since May I have lost 36lbs. I know that might not be alot to some, but I can't stop losing it. I keep a food journal, and I am eating the right and correct amount of food, but I can't seem to find the problem. My question would be is this normal? If so, how do I control it, and maintain my weight or, even gain some.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AVR1962 Collaborator
AVR1962
Posted

Are you at a normal weight now or underweight?

Gfresh404 Enthusiast
Gfresh404
Posted

What does your diet look like? How old are you? How much do you weigh? M/F?

It will take a while for your absorption to get back where it should - so until then you might not be absorbing everything you're putting in your body.

DanielleR Rookie
DanielleR
Posted
  • Author

I am a 5'8 female and 29 years old . I was 160lbs. Just slightly over weight. Now I am 124lbs underweight. I normally start off eating fruit or cereal for breaskfast. I can not have dairy so I use rice milk. For snakcks I will eat some type of nuts or chips (I know there are bad)and more fruit. Lunch I do Chicken salad, or a salad that actually has chicken in it, or chili. Then I usually have another snack bfore dinner, which is normally rolled up sliced ham or boiled eggs. Then for dinner I eat a meat, veg and some kind of potato. I also drink water and soda. Just recently started a vegan multi vitiam.

domesticactivist Collaborator
domesticactivist
Posted

I am a 5'8 female and 29 years old . I was 160lbs. Just slightly over weight. Now I am 124lbs underweight. I normally start off eating fruit or cereal for breaskfast. I can not have dairy so I use rice milk. For snakcks I will eat some type of nuts or chips (I know there are bad)and more fruit. Lunch I do Chicken salad, or a salad that actually has chicken in it, or chili. Then I usually have another snack bfore dinner, which is normally rolled up sliced ham or boiled eggs. Then for dinner I eat a meat, veg and some kind of potato. I also drink water and soda. Just recently started a vegan multi vitiam.

It sounds like you are eating a very low fat diet. Here are some ideas:

  • Eat soups based in bone broth. They should be gelatenous when they are cold. You can skim off the fat for cooking or just eat the soup with the fat left in it.
  • Eat avocados - they go great in chicken salad.
  • Sautee veggies with generous portions of coconut oil or duck, or other rendered saturated fat.
  • Make sure your breakfast includes protein and fat. Right now it's just sugar!
  • Eat nutbutters (You can make your own very easily in the food processor and might be able to get more nuts in than you currently eat).
  • Stop counting calories - are you feeling very full and sated? If not, you are not eating enough, or enough of the right foods.

DanielleR Rookie
DanielleR
Posted
  • Author

I am still new to this, what soup can I eat that is Gluten Free? I have 3 super markets where I live so I may have to order off the internet. The problem is I have tried different foods that are not very good so I hate to order something and have one item shipped. I googled the nearest whole foods store and it's an hour and a half away, so we are planning a trip there soon.

domesticactivist Collaborator
domesticactivist
Posted

Are there any farmers in your area? We get bones from them or from local butchers. Then you just add water and simmer the bones. Then you take the bones out and boil veggies in the stock to make soup.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missy'smom Collaborator
missy'smom
Posted

Danielle,

I lost weight immediately after going gluten-free. That left me back at my prior weight before I had gotten sick. However after 2 yrs gluten-free, I suddenly lost alot more weight. That left me dangerously thin and even though being gluten-free gave me back so much energy, I was still more fatigued than I wanted to be. I knew those 2 things were indications that I might have blood sugar problems, as well as the fact that I had other risk factors. Sudden, unexplained weight loss is a sign of diabetes and we here are at greater risk. I suggest that you get tested. If it comes back no problem you will have not wasted anything. Diabetes often goes undx too long. It is also not a cut and dried T1 or T2, there are several more kinds and a spectrum of blood sugar issues. Know where you fall on that specturum. It is SO much easier to manage the earlier it is detected. If you do get tested ask for an A1C and maybe an OGTT. A fasting blood sugar or any 1 time reading is not a good indicator. The more data the better.

As for diet, I recommmend that you have a sizeable amount of protein at each meal, preferably from eggs or meat. Vegeterain sources of protein, often count more as carbs from a blood sugar perspective(I'm not anti-veg. I'm a wannabe, but my BG does the talking ;). I was able to GAIN weight on a low-carb diet by increasing pro(from meat), when others usually LOSE weight on low-carb.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,037
    • Most Online (within 30 mins)
      7,748
    Chowes
    Newest Member
    Chowes
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Are they close to a drug that will help celiacs with cross contamination

      By kate g · Posted

      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
    • KRipple
      Celiac or Addison's complications? Can someone share their experience?

      By KRipple · Posted

      Hello, My husband has had issues with really bad diarreah for over nine months now. In mid November, he went to the doctor for what they thought was a bad cold, which two weeks later was diagnosed as bronchitis. A week later, in December, I had to take him back to urgent care and from there, to the emergency room cause his vitals were too low. They said he was having an Addisionan crisis and he spent five days in the ICU. Since my husband has Autoimmune Polyendocrine Syndrome Type II (type 1 diabetes, Addison's and Hashimoto's), I fought for a blood test to determine if he had Celiacs. Given the results of the test, he was told to go to a gastro for an endoscopy. It took two months to get his first appointment with the gastro. Still waiting for the endoscopy appointment. He stopped eating gluten in the hospital and has followed a gluten-free diet since. His diarreah continues to be as bad as before he stopped eating gluten. Still has a horrible cough that makes him hack. His energy is so depleted he pretty much goes to work, comes home and goes lie in bed. He is having issues regulating body temperature. He is barely eating (he's lost 20 pounds since mid-December). Body aches. Totally run down. He has been taking more prednisone lately to try to counter the symptoms.  Today, we went to his endo to discuss these things. She said to continue taking increased amount of prednisone (even though I explained that the increased dosage is only allowing him to do the bare minimum). According to the endo, this is all related to Celiacs. I am concerned because I know that both Celiacs and Addison's can have similar symptoms, but don't know if he would still be having these many symptoms (worsening, at that) related to the Celiac's after stopping gluten two months ago. If anyone in this group has a combination of Celiacs and Addison's, could you please share your experience? I am really concerned and am feeling frustrated. His primary care provider and endocrinologist don't seem to consider this serious enough to warrant prompt attention, and we'll see about the gastro.  Thanks.
    • cristiana
      Celiac pain relief

      By cristiana · Posted

      Hi @Karmmacalling I'm very sorry to hear you are feeling so unwell.  Can you tell us exactly what sort of pain you are experiencing and where the pain is?  Is it your lower abdomen, upper abdomen etc?  Do you have any other symptoms? Cristiana
    • trents
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By trents · Posted

      The NIH article you link actually supports what I have been trying to explain to you: "Celiac disease (celiac disease) is an autoimmune-mediated enteropathy triggered by dietary gluten in genetically prone individuals. The current treatment for celiac disease is a strict lifelong gluten-free diet. However, in some celiac disease patients following a strict gluten-free diet, the symptoms do not remit. These cases may be refractory celiac disease or due to gluten contamination; however, the lack of response could be related to other dietary ingredients, such as maize, which is one of the most common alternatives to wheat used in the gluten-free diet. In some celiac disease patients, as a rare event, peptides from maize prolamins could induce a celiac-like immune response by similar or alternative pathogenic mechanisms to those used by wheat gluten peptides. This is supported by several shared features between wheat and maize prolamins and by some experimental results. Given that gluten peptides induce an immune response of the intestinal mucosa both in vivo and in vitro, peptides from maize prolamins could also be tested to determine whether they also induce a cellular immune response. Hypothetically, maize prolamins could be harmful for a very limited subgroup of celiac disease patients, especially those that are non-responsive, and if it is confirmed, they should follow, in addition to a gluten-free, a maize-free diet." Notice that those for whom it is suggested to follow a maize-free diet are a "very limited subgroup of celiac disease patients". Please don't try to make your own experience normative for the entire celiac community.  Notice also that the last part of the concluding sentence in the paragraph does not equate a gluten-free diet with a maize-free diet, it actually puts them in juxtaposition to one another. In other words, they are different but for a "limited subgroup of celiac disease patients" they produce the same or a similar reaction. You refer to celiac reactions to cereal grain prolamins as "allergic" reactions and "food sensitivity". For instance, you say, "NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing" and "IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. I need to remind you that celiac disease is not an allergy, it is an autoimmune disorder. Neither allergy testing nor food sensitivity testing can be used to diagnose celiac disease. Allergy testing and food sensitivity testing cannot detect the antibodies produced by celiac disease in reaction to gluten ingestion.  You say of me, "You must be one of those who are only gluten intolerant . . ." Gluten intolerance is synonymous with celiac disease. You must be referring to gluten sensitivity or NCGS (Non Celiac Gluten Sensitivity). Actually, I have been officially diagnosed with celiac disease both by blood antibody testing and by endoscopy/positive biopsy. Reacting to all cereal grain prolamins does not define celiac disease. If you are intent on teaching the truth, please get it straight first.
×
×
  • Create New...