Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Celiac Or Allergy

timbalou

Recommended Posts

timbalou Newbie
timbalou
Posted

Hello,

I have been getting allergy symptoms after eating gluten lately. Nasel stuffyness, sinus pressure, achy teeth, etc. When I take clariten in the morning, I do not get these symptoms.

I got tested to Celiac last year and I was told I was negative.

Can this just be an allergy to wheat or the onset of gluten Intolerance?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Hello,

I have been getting allergy symptoms after eating gluten lately. Nasel stuffyness, sinus pressure, achy teeth, etc. When I take clariten in the morning, I do not get these symptoms.

I got tested to Celiac last year and I was told I was negative.

Can this just be an allergy to wheat or the onset of gluten Intolerance?

Welcome! And yes, it can just be a wheat allergy. What type of test did you have for Celiac?

timbalou Newbie
timbalou
Posted
  • Author

Welcome! And yes, it can just be a wheat allergy. What type of test did you have for Celiac?

Thanks for responding.

I had the blood tests.

IGA serum was a little low 66 scale (88-453)

TTg AB IgA<20 - range is less than 20

nora-n Rookie
nora-n
Posted

This was the total IgA test, and the ttg IgA test, so the ttg test is not valid, and they should have automatically ran the ttg IgG test.

Good on them for testing for the total IgA in the first place.

timbalou Newbie
timbalou
Posted
  • Author

This was the total IgA test, and the ttg IgA test, so the ttg test is not valid, and they should have automatically ran the ttg IgG test.

Good on them for testing for the total IgA in the first place.

Thanks Nora,

So the response I got was that my Celiac test game back negative. Does this seem right?

salexander421 Enthusiast
salexander421
Posted

Thanks Nora,

So the response I got was that my Celiac test game back negative. Does this seem right?

Your total IgA was low which makes the ttG IgA test invalid, you need to have them run a ttG IgG test. You can not determine from these results whether or not you have celiac disease. From what I understand it is very common for people with celiac to be IgA deficient. Hope this helps!

Pac Apprentice
Pac
Posted

Hello,

I have been getting allergy symptoms after eating gluten lately. Nasel stuffyness, sinus pressure, achy teeth, etc. When I take clariten in the morning, I do not get these symptoms.

I got tested to Celiac last year and I was told I was negative.

Can this just be an allergy to wheat or the onset of gluten Intolerance?

If you have allergy symptoms after eating wheat and claritin helps, then it's probably allergy. On the other hand that doesn't mean you cannot have celiac or gluten intolerance. Did you get tested for wheat or gluten allergy?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nora-n Rookie
nora-n
Posted

Any IgA type test will be false since you make too little of IgA.

The antibody tests from Enterolab will also be negative since they all are IgA based, so that won

  • 2 months later...
timbalou Newbie
timbalou
Posted
  • Author

Thanks for all the feedback.

I have talked with my Dr. and he is adamant that I do not need anymore testing (must be insurance based)and that I do not have celiac disease due to the blood results. He told me to refrain from eating gluten if that will mak me feel better. I have tried with mixed results.

Now I am being told I have borderline B12 levels, where last year my levels were good.

RandallPotter Newbie
RandallPotter
Posted

Time for another doctor.

You can contact the Celiac foundation to see what doctors they recommend.

That's what I did and I found a new one, first appointment is next week.

The doctor has to do whatever you ask. Most patients don't know that.

If you want more tests, and they won't endanger you, they have to give them to you. If they refuse then move on.

I want to encourage and empower you. A doctor does not control your medical life, no matter that they are a "doctor" - that doesn't mean they are right. My doctor diagnosed me with IBS without testing for Celiac, then told me to go Gluten free before my blood test... big no-no's.

Here's the website for the Celiac foundation:

Open Original Shared Link

I just called and asked, they also have a section where you can search for a doctor.

Prayed for you!

Curlyqueen Rookie
Curlyqueen
Posted

Thanks for all the feedback.

I have talked with my Dr. and he is adamant that I do not need anymore testing (must be insurance based)and that I do not have celiac disease due to the blood results. He told me to refrain from eating gluten if that will mak me feel better. I have tried with mixed results.

Now I am being told I have borderline B12 levels, where last year my levels were good.

May I suggest that you go to GI ( if your insurance allows you to go without referral). If you need a referral your doctor shouldn't really be opposed to it. I think GI have a better understanding of this. If that GI isn't familar with gluten and celiac he/she might know a specialist who would. It sounds like the doctor you are going to doesn't have the same level of concern that you have and I don't think that means you should leave him but just be more proactive about your health and research. It took me a while to realize that my issue was digestive related and I needed to see a GI because both of my internist couldn't figure it out. One internist was pretty sure it wasn't celiac and I felt like I couldn't talk to her about my concerns without feeling silly. So going to a GI is the best thing I could have done.

Even my GI has determined so far it doesn't look like celiac but maybe a gluten sensitivity. Shes understands why I would suspect celiac and is concerned that maybe these symptoms are the result of something else. She is determine to figure it out and appreciate that because it could be something else thats more serious. Its nice to have a doctor who shares your concern.

If you don't want to go to a GI even going to see an Allergist would probably be more helpful. If you think that its more of allergy related issue than a digestive thing an allergist would be help to help you determine that. For example you could have a wheat allergy. For example My boyfriend is allergic to soy and didn't realize until he had some soy milk and felt his throat tighten. Once we eliminated all the hidden soy his daily sneezing, stuffyiness went away. So food allergies can present themselves in many different ways.

Sorry for writing so much but I also wanted to touch on your point about your b12. I have also had some issues with my b12. It was low and then I got it back up and it seemed to sustain itself for a while and then it got really low again. Having a low b12 sucks because of the neurological symptoms that accompany it so make sure you get a b12shot when needed and get the b12 sublinguals from whole foods (Jarrow brand is gluten free). My vitamin D is low so I'm on a supplement for that too. So I know how it can be baffling and annoying trying to make sense of all of your symptoms in addition to having a doctor that seems to not be too concerned. Hang in there you will figure it out.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Flash1970
      - Flash1970 commented on Scott Adams's article in Additional Concerns
      1

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

      He should have gotten millions. How much is your life worth?
    2. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      @cristiana, I react the same way. Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies. This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies. We have opioid receptors throughout our...
    3. knitty kitty
      0

      About Celiac Remission

    4. TheDHhurts
      - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated. So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly. I came off dairy completely next and it worked like a charm...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748
    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      need help understanding testing result for Naked Nutrition Creatine please

      By TheDHhurts · Posted

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      Insomnia help

      By cristiana · Posted

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      nothing has changed

      By wellthatsfun · Posted

      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.