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Is It Celiac Or Allergy

timbalou

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timbalou Newbie
timbalou
Posted

Hello,

I have been getting allergy symptoms after eating gluten lately. Nasel stuffyness, sinus pressure, achy teeth, etc. When I take clariten in the morning, I do not get these symptoms.

I got tested to Celiac last year and I was told I was negative.

Can this just be an allergy to wheat or the onset of gluten Intolerance?

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Lisa Mentor
Lisa
Posted

Hello,

I have been getting allergy symptoms after eating gluten lately. Nasel stuffyness, sinus pressure, achy teeth, etc. When I take clariten in the morning, I do not get these symptoms.

I got tested to Celiac last year and I was told I was negative.

Can this just be an allergy to wheat or the onset of gluten Intolerance?

Welcome! And yes, it can just be a wheat allergy. What type of test did you have for Celiac?

timbalou Newbie
timbalou
Posted
  • Author

Welcome! And yes, it can just be a wheat allergy. What type of test did you have for Celiac?

Thanks for responding.

I had the blood tests.

IGA serum was a little low 66 scale (88-453)

TTg AB IgA<20 - range is less than 20

nora-n Rookie
nora-n
Posted

This was the total IgA test, and the ttg IgA test, so the ttg test is not valid, and they should have automatically ran the ttg IgG test.

Good on them for testing for the total IgA in the first place.

timbalou Newbie
timbalou
Posted
  • Author

This was the total IgA test, and the ttg IgA test, so the ttg test is not valid, and they should have automatically ran the ttg IgG test.

Good on them for testing for the total IgA in the first place.

Thanks Nora,

So the response I got was that my Celiac test game back negative. Does this seem right?

salexander421 Enthusiast
salexander421
Posted

Thanks Nora,

So the response I got was that my Celiac test game back negative. Does this seem right?

Your total IgA was low which makes the ttG IgA test invalid, you need to have them run a ttG IgG test. You can not determine from these results whether or not you have celiac disease. From what I understand it is very common for people with celiac to be IgA deficient. Hope this helps!

Pac Apprentice
Pac
Posted

Hello,

I have been getting allergy symptoms after eating gluten lately. Nasel stuffyness, sinus pressure, achy teeth, etc. When I take clariten in the morning, I do not get these symptoms.

I got tested to Celiac last year and I was told I was negative.

Can this just be an allergy to wheat or the onset of gluten Intolerance?

If you have allergy symptoms after eating wheat and claritin helps, then it's probably allergy. On the other hand that doesn't mean you cannot have celiac or gluten intolerance. Did you get tested for wheat or gluten allergy?

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nora-n Rookie
nora-n
Posted

Any IgA type test will be false since you make too little of IgA.

The antibody tests from Enterolab will also be negative since they all are IgA based, so that won

  • 2 months later...
timbalou Newbie
timbalou
Posted
  • Author

Thanks for all the feedback.

I have talked with my Dr. and he is adamant that I do not need anymore testing (must be insurance based)and that I do not have celiac disease due to the blood results. He told me to refrain from eating gluten if that will mak me feel better. I have tried with mixed results.

Now I am being told I have borderline B12 levels, where last year my levels were good.

RandallPotter Newbie
RandallPotter
Posted

Time for another doctor.

You can contact the Celiac foundation to see what doctors they recommend.

That's what I did and I found a new one, first appointment is next week.

The doctor has to do whatever you ask. Most patients don't know that.

If you want more tests, and they won't endanger you, they have to give them to you. If they refuse then move on.

I want to encourage and empower you. A doctor does not control your medical life, no matter that they are a "doctor" - that doesn't mean they are right. My doctor diagnosed me with IBS without testing for Celiac, then told me to go Gluten free before my blood test... big no-no's.

Here's the website for the Celiac foundation:

Open Original Shared Link

I just called and asked, they also have a section where you can search for a doctor.

Prayed for you!

Curlyqueen Rookie
Curlyqueen
Posted

Thanks for all the feedback.

I have talked with my Dr. and he is adamant that I do not need anymore testing (must be insurance based)and that I do not have celiac disease due to the blood results. He told me to refrain from eating gluten if that will mak me feel better. I have tried with mixed results.

Now I am being told I have borderline B12 levels, where last year my levels were good.

May I suggest that you go to GI ( if your insurance allows you to go without referral). If you need a referral your doctor shouldn't really be opposed to it. I think GI have a better understanding of this. If that GI isn't familar with gluten and celiac he/she might know a specialist who would. It sounds like the doctor you are going to doesn't have the same level of concern that you have and I don't think that means you should leave him but just be more proactive about your health and research. It took me a while to realize that my issue was digestive related and I needed to see a GI because both of my internist couldn't figure it out. One internist was pretty sure it wasn't celiac and I felt like I couldn't talk to her about my concerns without feeling silly. So going to a GI is the best thing I could have done.

Even my GI has determined so far it doesn't look like celiac but maybe a gluten sensitivity. Shes understands why I would suspect celiac and is concerned that maybe these symptoms are the result of something else. She is determine to figure it out and appreciate that because it could be something else thats more serious. Its nice to have a doctor who shares your concern.

If you don't want to go to a GI even going to see an Allergist would probably be more helpful. If you think that its more of allergy related issue than a digestive thing an allergist would be help to help you determine that. For example you could have a wheat allergy. For example My boyfriend is allergic to soy and didn't realize until he had some soy milk and felt his throat tighten. Once we eliminated all the hidden soy his daily sneezing, stuffyiness went away. So food allergies can present themselves in many different ways.

Sorry for writing so much but I also wanted to touch on your point about your b12. I have also had some issues with my b12. It was low and then I got it back up and it seemed to sustain itself for a while and then it got really low again. Having a low b12 sucks because of the neurological symptoms that accompany it so make sure you get a b12shot when needed and get the b12 sublinguals from whole foods (Jarrow brand is gluten free). My vitamin D is low so I'm on a supplement for that too. So I know how it can be baffling and annoying trying to make sense of all of your symptoms in addition to having a doctor that seems to not be too concerned. Hang in there you will figure it out.

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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