Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Ok To Be On gluten-free Diet Before Biopsy In 3 Weeks?

Jen Z

Recommended Posts

Jen Z Rookie
Jen Z
Posted

Confused based on what I am reading. Do I need to have gluten in my system for the biopsy? I did for the blood work which came back positive. I've been gluten-free for 3 days now and already feeling an improvement. My husband has a colonoscopy scheduled for this week and mine is in 3 weeks. I can switch out for his appt and load on gluten if need be but I can't go back on gluten for 3 weeks. My dr does the EGD and colonscopy so it's easy to switch appts. I am due for my 5 yr scope as a result of acid reflux so I'm getting a biopsy as additional confirmation of celiac and (lucky me) getting the colonoscopy to check for IBD.

I really don't want to go through all of this. I am slow to recover after anesthesia and usually end up sick for a day or two as a result.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Confused based on what I am reading. Do I need to have gluten in my system for the biopsy? I did for the blood work which came back positive. I've been gluten-free for 3 days now and already feeling an improvement. My husband has a colonoscopy scheduled for this week and mine is in 3 weeks. I can switch out for his appt and load on gluten if need be but I can't go back on gluten for 3 weeks. My dr does the EGD and colonscopy so it's easy to switch appts. I am due for my 5 yr scope as a result of acid reflux so I'm getting a biopsy as additional confirmation of celiac and (lucky me) getting the colonoscopy to check for IBD.

I really don't want to go through all of this. I am slow to recover after anesthesia and usually end up sick for a day or two as a result.

No. In 3 weeks gluten-free, lots of stuff can heal. You should really stay on a full gluten diet for 3 months before any tests. Switch for the close one. Make sure he takes many biopsy sample of the small intestine.

IrishHeart Veteran
IrishHeart
Posted

Poor babe---blood positive and DH..and still need to have the biopsy. Why on earth do doctors insist on doing this to people? Ya, ya--the "gold standard" blah blah blah... geesh. :rolleyes:

My vote? Load up on the gluten, kiddo and get it over with this week! Make sure he takes enough samples from various spots.

I have trouble with all these kinds of tests, too--but it will be over soon and you can resume your gluten-free diet and start healing! :)

Best wishes!

Jen Z Rookie
Jen Z
Posted
  • Author

I am really back and forth about doing further testing. I haven't been biopsied yet for the DH but I have had the most insanely itchy rash off and on for the past year that flares and disappears and then reappears in the exact same spot. Sometimes it gets little fluid filled spots that look like fire ant bites. Another doctor gave me 2 different meds for it and neither have made it go away completely. I can see the writing on the wall for this one.

I am willing to suffer through another endo because I am worried about barretts esophagus due to my reflux problem. My husbands first wife died unexpectedly very quickly from stomach cancer so we are a little sensitive to cancer issues. We both need peace of mind. I would put this off until next year but I think it's best to just get it over with.

IrishHeart Veteran
IrishHeart
Posted

I am really back and forth about doing further testing. I haven't been biopsied yet for the DH but I have had the most insanely itchy rash off and on for the past year that flares and disappears and then reappears in the exact same spot. Sometimes it gets little fluid filled spots that look like fire ant bites. Another doctor gave me 2 different meds for it and neither have made it go away completely. I can see the writing on the wall for this one.

I am willing to suffer through another endo because I am worried about barretts esophagus due to my reflux problem. My husbands first wife died unexpectedly very quickly from stomach cancer so we are a little sensitive to cancer issues. We both need peace of mind. I would put this off until next year but I think it's best to just get it over with.

You cannot put it off, Jen. You'd have to resume eating gluteny foods for months for that test to be valid.

Just do it now and be done with it.

They can biopsy the DH, too...look under the DH section and see how that works.

Skylark Collaborator
Skylark
Posted

You will always be second-guessing a negative biopsy. Go back on gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,502
    • Most Online (within 30 mins)
      7,748
    Tootie62
    Newest Member
    Tootie62
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Art Maltman
      My 5 months of Struggle

      By Art Maltman · Posted

      I did a test already not exactly sure if it was the right one the doctor I went to at first refused to give me the test but i evantail convinced him but he wasnt exactly sure what test to do. I didn't eat gluten on sunduy monday tuesday and i had the test on thursday. Is it possible the test will still be accuret
    • JA917
      A year and a half of test confusion...

      By JA917 · Posted

      I was just thinking this same thing - requesting repeat testing prior to giving up gluten. Makes sense. Thanks!
    • knitty kitty
      A year and a half of test confusion...

      By knitty kitty · Posted

      Since you're having a last hurrah with gluten, request another round of blood tests for celiac antibodies.  Make sure you're eating ten grams or more daily for those few weeks before your capsule endoscopy.  You probably weren't eating a sufficient amount of gluten needed to provoke sufficient antibody production.   
    • cristiana
      Christmas Cake

      By cristiana · Posted

      Hello all I am taking some time out from work today to make my annual Christmas cake along the lines of a tried and tested English recipe which means a fruit cake, with marzipan  and icing.   As usual, I've left it too late - we're meant to bake these things some time  in advance to improve the flavour.    I never remember.  But it never seems to matter! I thought I'd share it in case any UK coeliacs still haven't made theirs and don't have a recipe, or any of my friends across the Pond want to try making one.  Do you make iced fruit cakes like this in the US for Christmas? - I have no idea! I adapt it slightly as instead of fondant icing I make Royal Icing which sets hard and you can create exciting snow scenes with it if you can find any tiny model houses, churches and trees to put on it!  (my Mum used to do this).   https://www.coeliac.org.uk/information-and-support/your-gluten-free-hub/home-of-gluten-free-recipes/1511804/ With thanks to the charity Coeliac Uk for this recipe. Cristiana  
    • trents
      My 5 months of Struggle

      By trents · Posted

      Welcome to the forum, @Art Maltman! Ask your physician to order serum antibody tests specifically designed to detect celiac disease. That's the place to start but you shouldn't be on a gluten free diet some weeks before the blood draw. You certainly have some symptoms that are characteristic of celiac disease and you have a first degree relative that has celiac disease. So, I think this would be an appropriate request to bring to your physician. Here is an article outlining the various serum antibody tests that can be ordered when checking for celiac disease:   The physician may not be open to ordering a full panel but push for at least these two: total IGA and tTG-IGA. By the way, absence of gut pain is very common in the celiac population. We call them "silent" celiacs as they have no or very minor symptoms. There are over 200 symptoms and spinoff health issues that have become associated with celiac disease and the range of symptoms and effects produced by the disease in different individuals various tremendously. 
×
×
  • Create New...