Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Think? Entero Lab Results


Familytradition

Recommended Posts

Familytradition Rookie

So I am new here but I have been reading off and on here for a very long time. I figured I would throw out my Entero Lab test results to see what you all might think. Does it seem to be Celiac or just Gluten Intolerance? (The Million Dollar Question - you couldn't pay me that much to go back on gluten now for 'official diagnosis'!)

A little history...

I have been back & forth with gluten free (elimination diet) since approximately September 2007 (has it really been 4 years??). I actually eliminated gluten, dairy, soy, sugar, corn and probably more. I was only on this diet for about a month before I got pregnant and stopped because I was starving and tired of being limited in my diet. Fast forward to when that baby was born... He had reflux and barely slept at all during the day. He seemed miserable all the time and I suspected it was food related (my oldest son has multiple life-threatening food allergies but this son wasn't having any reactions like those) all along but never took the plunge back to gluten free until the end 2009/beginning 2010. Lo & behold, I was pregnant again within a month (seeing a trend here yet?). I initially stayed gluten free for a while during my pregnancy but then again saw the convenience of eating 'regular' so I dropped it again. After giving birth to my third son, I immediately starting seeing the same miserable, reflux baby I had seen before and slowly started eliminating gluten and dairy again. It quickly changed the way we all felt (my sons & I). I also ordered the Entero Lab in Feb 2011 and have had the following results since March 2011.

Fecal Anti-gliadin IgA 87 Units (Normal Range is less than 10 Units)

Fecal Anti-tissue Transglutaminase IgA 12 Units (Normal Range is less than 10 Units)

Quantitative Microscopic Fecal Fat Score 1400 Units (Normal Range is less than 300 Units)

Fecal Anti-casein (cow


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Technically, you are gluten intolerant, because you have not been formally diagnosed by a medical physician who did a biopsy of your small intestines and saw damage. You might even be celiac, but there's no seal of Medical Approval

pricklypear1971 Community Regular

I'm a halfy, too.

Half on the dq2, half on the dq8, and one hit on the dq9.

I have an Enterolab kit I haven't sent in yet. I had a hard time with my last lab results, mentally...so I'm procrastinating.

Skylark Collaborator

The TTG is so low it's hard to be sure it's a true positive. You're sure on the way to celiac if you're not.

Mari Contributor

I think it is clear from your lab tests and symptoms that you have Celiac Sprue. I had an elevated antigladin IgA but a normal TTG blood test. I had floating stools so I had sprue. I read that people with flattened villi would often show a normal TTG so if that test is used for diagnosis it misses some people who have extensive flattening of the villi. If you email enterolab they will tell you more about their TTG assay. Any elevation of the TTG antibodies is considered a positive test, even such a small elevation as you had.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,186
    • Most Online (within 30 mins)
      7,748

    zahera
    Newest Member
    zahera
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • WednesdayAddams13
      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
    • peg
      Thank you, Scott!  This is just what I needed.  Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
    • Hopeful1950
      Oh yes.  I would never recommend taking it for an extended period of time.  When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him.  I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago).  So the fact that it cleared the rash was diagnostic for me.     
×
×
  • Create New...