Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Salicylate Question


bartfull

Recommended Posts

bartfull Rising Star

Well, I'm pretty depressed right now. I have a very painful jaw that is unrelated to food. But I need painkillers, and ALL over the counter tablets have either corn or wheat. I found BC Aspirin Powder, and the ingredients are: Asperin-742 mg, caffeine-38mg, salicylamide-222mg.

Well, I've been taking it for about a week now and my psoriasis is flaring BADLY, and the insomnia is back big time.

So my question is, do any of you who have salicylate intolerances have the SAME symptoms from them as you do to wheat or corn? What I read online leads me to believe that fatigue and muscle aches are the main symptoms. I don't have much in the way of digestive symptoms from anything, just the psoriasis and insomnia, which both kick up with wheat or corn. I'm wondering if the salicylates are causing this lastest round of misery, or if maybe SOMEHOW I have been CC'ed. Or maybe I'm reacting to the meat and peeled potatoes that I have been living on for the past couple of weeks.

AAAARGH!!! I want to thank you all for being here while I'm at it. I have been fighting back tears all day, and even though my friends are wonderful, I think they are getting tired of my tearful days and not being able to play guitar for more than a few minutes at a time because the psoriasis on my hands hurts so badly. It's nice to come to a place where people understand. Thanks again, to all of you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missmellie Newbie

Hi, sorry you're having so many problems right now.

I don't know anything about the rest of the problems, but the caffeine in the BC powder could certainly be responsible for your insomnia. Some people are very sensitive to caffeine. Maybe you are one of them?

I hope someone else has some answers for you and you get better soon. :)

pricklypear1971 Community Regular

The only time I've suspected (and when I realized they may be an issue) sals caused a huge DH flare and neuro issues. So yes, the reaction can be just as bad. The DH may have been from iodone (salt) or red food color....but the neuro was from something else.

I ate Riceworks chips, that are supposed to be gluten-free...so it was either sals or gluten that wasn't supposed to be there. But those chips were packed with every chemical created (which happened to be sals). It was BAD. Real bad.

11475 Apprentice

Salicylate reactions for me involve extreme fatigue, muscle and joint pain, difficulty sleeping, but also anxiety, brain fog, skin itching and rashes (not DH), and sometimes a feeling of being pumped full of too much energy, then having it quickly evaporate and being left asleep or almost asleep. They make me irritable also. There is certainly an overlap in the symptoms of having too many sals and getting cc'd with gluten for me, but they are also different enough to be able to tell apart. For example, if I have too many sals, the fatigue will mean that I need to have a sleep/rest/epsom salt bath, but after a few hours, it will fade. With gluten, that feeling of extreme fatigue is even worse and it feels like a struggle to even move. This will last for a few days. Essentially: "yes...but also no". Not very helpful, but it's the best I can offer.

At this stage, I think salicylate and other food chemical sensitivities are more difficult to deal with and much more disruptive to my life than trying to be gluten free. Obviously, everyone will have a different experience, but I can absolutely understand how difficult it can be with friends. To explain gluten intolerance/coeliac disease can be hard enough for some to understand, but to add to that the idea that fruit and vegetables aren't healthy for everyone is usually met with more disbelief (in my experience). What I want to say is that we here understand how isolating and frustrating these issues can be. And I hope you're feeling better soon and can get back to playing your guitar.

One last thing: there are also other food chemicals, like amines, oxalates and many more. If you're not quite sure about salicyaltes, you might benefit from doing a little more research to see if a different food chemical is bothering you, or if it's salicylates AND one of the others. Best of luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

    2. - Kirita replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    3. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

    5. - trents replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,286
    • Most Online (within 30 mins)
      7,748

    Molberry
    Newest Member
    Molberry
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scatterbrain
      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
    • Scott Adams
      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.