Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Salicylate Question


bartfull

Recommended Posts

bartfull Rising Star

Well, I'm pretty depressed right now. I have a very painful jaw that is unrelated to food. But I need painkillers, and ALL over the counter tablets have either corn or wheat. I found BC Aspirin Powder, and the ingredients are: Asperin-742 mg, caffeine-38mg, salicylamide-222mg.

Well, I've been taking it for about a week now and my psoriasis is flaring BADLY, and the insomnia is back big time.

So my question is, do any of you who have salicylate intolerances have the SAME symptoms from them as you do to wheat or corn? What I read online leads me to believe that fatigue and muscle aches are the main symptoms. I don't have much in the way of digestive symptoms from anything, just the psoriasis and insomnia, which both kick up with wheat or corn. I'm wondering if the salicylates are causing this lastest round of misery, or if maybe SOMEHOW I have been CC'ed. Or maybe I'm reacting to the meat and peeled potatoes that I have been living on for the past couple of weeks.

AAAARGH!!! I want to thank you all for being here while I'm at it. I have been fighting back tears all day, and even though my friends are wonderful, I think they are getting tired of my tearful days and not being able to play guitar for more than a few minutes at a time because the psoriasis on my hands hurts so badly. It's nice to come to a place where people understand. Thanks again, to all of you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missmellie Newbie

Hi, sorry you're having so many problems right now.

I don't know anything about the rest of the problems, but the caffeine in the BC powder could certainly be responsible for your insomnia. Some people are very sensitive to caffeine. Maybe you are one of them?

I hope someone else has some answers for you and you get better soon. :)

pricklypear1971 Community Regular

The only time I've suspected (and when I realized they may be an issue) sals caused a huge DH flare and neuro issues. So yes, the reaction can be just as bad. The DH may have been from iodone (salt) or red food color....but the neuro was from something else.

I ate Riceworks chips, that are supposed to be gluten-free...so it was either sals or gluten that wasn't supposed to be there. But those chips were packed with every chemical created (which happened to be sals). It was BAD. Real bad.

11475 Apprentice

Salicylate reactions for me involve extreme fatigue, muscle and joint pain, difficulty sleeping, but also anxiety, brain fog, skin itching and rashes (not DH), and sometimes a feeling of being pumped full of too much energy, then having it quickly evaporate and being left asleep or almost asleep. They make me irritable also. There is certainly an overlap in the symptoms of having too many sals and getting cc'd with gluten for me, but they are also different enough to be able to tell apart. For example, if I have too many sals, the fatigue will mean that I need to have a sleep/rest/epsom salt bath, but after a few hours, it will fade. With gluten, that feeling of extreme fatigue is even worse and it feels like a struggle to even move. This will last for a few days. Essentially: "yes...but also no". Not very helpful, but it's the best I can offer.

At this stage, I think salicylate and other food chemical sensitivities are more difficult to deal with and much more disruptive to my life than trying to be gluten free. Obviously, everyone will have a different experience, but I can absolutely understand how difficult it can be with friends. To explain gluten intolerance/coeliac disease can be hard enough for some to understand, but to add to that the idea that fruit and vegetables aren't healthy for everyone is usually met with more disbelief (in my experience). What I want to say is that we here understand how isolating and frustrating these issues can be. And I hope you're feeling better soon and can get back to playing your guitar.

One last thing: there are also other food chemicals, like amines, oxalates and many more. If you're not quite sure about salicyaltes, you might benefit from doing a little more research to see if a different food chemical is bothering you, or if it's salicylates AND one of the others. Best of luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,861
    • Most Online (within 30 mins)
      7,748

    MEK5
    Newest Member
    MEK5
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.