Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Lactose Free Necessary

RVluvin

By RVluvin
in Coping with Celiac Disease

Recommended Posts

RVluvin Apprentice
RVluvin
Posted

It's been about 3 weeks since I was diagnosed celiac, and have been both gluten free and lactose free, and feeling great. I don't mind the soy milk, and the lactose free coffee creamer, but I do miss the chocolat bar and have been unable to find lactose free chocolat, if it even exist. How important is it I remain lactose free while my small intestent heals itself. I have not yet been to my follow up appointment with the doc since the diagnose to ask this question.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kitgordon Explorer
kitgordon
Posted

You could try a little and see if it upsets you. Some people cannot tolerate lactose at all in the beginning, others can. I did OK with very small amounts (like what would be in chocolate). It may depend on how badly damaged your intestines are. That's wonderful that you are feeling great!

lovegrov Collaborator
lovegrov
Posted

No, it's not necessary for everybody with celiac to avoid lactose. I never had the first problem with it.

richard

Lisa Mentor
Lisa
Posted

No, it's not necessary for everybody with celiac to avoid lactose. I never had the first problem with it.

richard

Yup...only if it bothers you. And many times, after a few weeks you can reintroduce it with out any issue.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I saw a dietician and asked this same question. She said to eat dairy if it doesn't cause problems. She said I could even take a lactaid suppliment if I wanted to drink milk or use it with cereal.

She said if adding a little butter or cheese made things taste better so I'm more inclined to eat..go ahead.

*Some people find they don't tolerate dairy after going gluten-free. Let your body be your guide.

sandsurfgirl Collaborator
sandsurfgirl
Posted

If it does upset your stomach, it may be temporary. I had to go off of dairy, soy and nighshades. Soy still bothers me but dairy and nightshades have been fine for me for a long time. I'm a fan of eating a really clean diet while you're healing anyway. Give your body every tool you can give it to heal and rebuild all that broken stuff in your system. The docs just focus on the GI tract damage, but we celiacs know that inflammation from gluten damages many parts of our bodies. It's important that your little team of rebuilders has great fuel and they don't have to contend with anything they can't deal with.

If dairy does bother you, there is chocolate that doesn't have dairy in it.

Cathey Apprentice
Cathey
Posted

Yup...only if it bothers you. And many times, after a few weeks you can reintroduce it with out any issue.

I was told 3-4 weeks Lactose free, giving the Villi a chance to start healing. I plan on waiting the 4 weeks and then a nice Grilled Cheese Sandwich. Can't wait.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I was told 3-4 weeks Lactose free, giving the Villi a chance to start healing. I plan on waiting the 4 weeks and then a nice Grilled Cheese Sandwich. Can't wait.

Just a word of advice....choose your bread carefully. Some gluten free breads suck up the cheese and you're left with cheesy bread....grill quickly.

granolagal Apprentice
granolagal
Posted

I gave up dairy for a whole 3 days and then gave in. I'm a vegetarian and dairy is a large source of protein for me. Especially since I wasn't able to eat a lot of my "veggie" substitutes I had at home. I've heard from so many places that when you're first diagnosed with celiac disease that you should go dairy free, but I don't entirely understand it. It depends on the point I guess. If I shouldn't eat it because my small intestine is trying to heal and it could harm/prolong that, then I would abstain. But if it's just because you may be sensitive to stomach upset, then I would continue to eat it. So right now I'm eating it and debating about what to do....so I'm glad you posted this topic!!

T.H. Community Regular
T.H.
Posted

If you try the dairy and you DO need a dairy free chocolate, Enjoy Life brand chocolate is pretty good. It's gluten free, dairy free, and free of a few other allergens, too. They make chocolate chips and chocolate bars, both. You'll likely be able to order on-line, if you don't see any in your local stores. :)

This chocolate doesn't melt as nice as dairy chocolate, but if you just BARELY soften it in a microwave, you can sometimes use it to coat things. My kids were softening it and mixing it with Erewhon gluten-free rice krispy type cereal for a while to make a kind of gluten-free chocolate rice krispy bar. :D

Also pretty good when they made Pamela's brand gluten-free pancakes, poured it on the skillet, and then sprinkled these chocolate chips over it before they were flipped to cook the other side.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,166
    • Most Online (within 30 mins)
      7,748
    Mills Millington
    Newest Member
    Mills Millington
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Kj44
      Testing

      By Kj44 · Posted

      Yes
    • mariamccl
      Help with results

      By mariamccl · Posted

      Hi, 25f who recently had a endoscopy procedure to diagnose celiac disease. Mum and uncle are both diagnosed celiacs. I've had symptoms over the past year - headaches that have become debilitating and frequent, feeling faint and nauseous with high heart rate, diarrhea and constipation, anemia, and recently my periods have become almost non existent. My doctor sent me a letter yesterday saying this " biopsies from the duodenum show some very mild features that could be in keeping with celiac disease but also could be due to other causes". I am waiting on an appointment to see him in the clinic to discuss this but in the meantime I wanted to check if anyone else has experienced this? I was eating plenty of gluten before my camera test and for the past 2 weeks have completely cut it out of my diet and I'm seeing changes in my bowel movements for the first time in my life! Headaches, dizziness etc are still there but maybe it takes longer for them to go away? Any help would be so appreciated -  I feel so lost in this whole process!! 
    • trents
      Testing

      By trents · Posted

      Did your symptoms improve after going on a gluten-free diet?
    • Scott Adams
      Testing

      By Scott Adams · Posted

      Thank you for sharing your genetic test results and background. Your results indicate you carry one half of the DQ2 heterodimer (DQA1*05), which is associated with a very low celiac disease risk (0.05%). While most celiac patients have either DQ2 or DQ8, these genes are also present in people without celiac disease, so the test alone doesn’t confirm a diagnosis. Since you’ve been gluten-free for 10 years, traditional diagnostic methods (like endoscopy or blood tests) would not be reliable now. If an official diagnosis is important to you, consider discussing a gluten challenge with your doctor, where you reintroduce gluten for a period before testing. Alternatively, you could focus on symptom management and dietary adherence, as your gluten-free diet seems to be helping. Consulting a gastroenterologist or celiac specialist could provide further clarity.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or Addison's complications? Can someone share their experience?

      By Scott Adams · Posted

      @cvz Thank you for sharing your daughter’s story. It sounds like she is managing multiple complex conditions with great care and diligence. It’s encouraging to hear that she is compliant with her gluten-free diet and that her Addison’s disease symptoms are under control. The addition of electrolytes seems like a thoughtful suggestion, especially given her fluid intake. It’s also reassuring that she hasn’t shown noticeable symptoms from accidental gluten exposure, though it’s understandable how challenging it can be to monitor for such incidents. The unexplained high lipase levels are intriguing—perhaps further investigation or consultation with a specialist could provide more clarity. Wishing you both continued strength and success in managing her health. Please keep us updated on her progress!
×
×
  • Create New...