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Possible Help For Those Who Can't Take Dapsone.

frenchiemama

By frenchiemama
in Dermatitis Herpetiformis

Recommended Posts

frenchiemama Collaborator
frenchiemama
Posted

I went to my dermatologist about 2 weeks ago, and she started me on a new regimine that is supposed to help with breakouts the way that dapsone does.

I'm taking 500mg of tetracycline and 500mg of nicotinamide twice a day. Today is the first day that I think I have evidence that it is actually working. I think I got glutened a little last night, and I HAVEN'T broken out! I have some spots that are a tad itchy, and there are some faint bumps but NO blisters and NO severe itching.

Hopefully this stuff really works to contain breakouts, that would be great.

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Janelson Apprentice
Janelson
Posted
I went to my dermatologist about 2 weeks ago, and she started me on a new regimine that is supposed to help with breakouts the way that dapsone does.

I'm taking 500mg of tetracycline and 500mg of nicotinamide twice a day. Today is the first day that I think I have evidence that it is actually working. I think I got glutened a little last night, and I HAVEN'T broken out! I have some spots that are a tad itchy, and there are some faint bumps but NO blisters and NO severe itching.

Hopefully this stuff really works to contain breakouts, that would be great.

<{POST_SNAPBACK}>

For the first time I broke out in that rash on my ankles! I didn't even notice it until one night I just say a little red rash and I looked closer I say little blisters. It doesn't itch or anything but I thought it was so weird! I didn't even know much about it until I finally came on here and looked it up! Well anyways I hope your new medication works!!!!

  • 3 weeks later...
Connie37 Newbie
Connie37
Posted

the cream triamcinolone acetonide usp 0.1% is helpfull. This is not an instant cure, but it is good. I hope your meds do the trick. Nicotina is a beautiful plant, I wonder if that med comes from that plant.

God Bless You,

Connie

frenchiemama Collaborator
frenchiemama
Posted
  • Author

Connie, I was using triamcinolone before but recently I was given clobesterol (sp?). It's similar, but stronger and it works MUCH better for me. If your stuff ever seems like it's not working anymore I would try the clobesterol.

Nicotina is one of my favorites, the blossoms are so fragrant. I don't know if it's related or not. Nicotinamide is just vitamin B3, but maybe that is the source. Interesting if it was...

  • 2 weeks later...
floridanative Community Regular
floridanative
Posted

Carolyn,

I'm using Clobetasol too and I love it! But I'm not off gluten yet, waiting on more tests.... In any case, I read the insert for the Embeline brand I have and it says not to use it for more than two weeks at a time. Well that isn't very helpful for me since if I stop using it my scalp dermatitis comes right back. I called the pharmacy and they said it's fine to keep using it continuously but I don't want to make myself sick. It is a steriod after all. What has been your experience/time of use with it?

Tiffany

frenchiemama Collaborator
frenchiemama
Posted
  • Author

I actually rarely use the steroid cream. That tetracycline + B3 works so well that my DH doesn't really break out anymore. I do use it occasionally for pompholyx (sp? hand eczema).

But if it makes you feel any better, I used the triamcinolone (different steroid cream) for 2 straight years nearly every single day with no ill effects.

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