Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sarcasm About Celiac

Kimbalou

By Kimbalou
in Coping with Celiac Disease

Recommended Posts

cougie23 Explorer
cougie23
Posted

LOL...I haven't run into any sarcastic comments....this is how I explain it to friends and family members (this allways shuts them up)!

"Yeah I found out I have Celiacs...yeah I was having horible migraines and muscle cramps,and I allways looked 7 months pregnant, and was allways sick....yeah I had to go to the hospital because I had a seizure! Celiacs...can you beleive it!!! It's an auto imune deisese..caused by Gluten..Yeah,wheat...but it's NOT an allergy...thats diferent...this is much more sinister...it does damage even when its not obvious! We thought I had Multible sclorosis for YEARS...found out all this time it was celiacs...makes sense though...it mimics MS..there both auto imune deseises!YEAH IT MAKES THE BODY ATTACK ITSELF...JUST LIKE ms ATTACKS THE NERVES..THE GLUTION SPREADS AROUND AND YOUR BODY MISTAKES IT FOR THE BAD GUYS AND ENDS UP ATACKING ITSELF...THATS WHY MY ARMS AND LEGS HURT SO MUCH...I GET SEVERE MUSCLE CRAMPS AND CAN'T MOVE BECAUSE IT HURTS SO BAD! alot of people have it but just don't know it...Yeah because it damages the stomache and intestinal tract lining...you can't absorbe nutrishion ...if the Celiacs does'nt mess you up the malnoutrishion will!!!Look at all the weight I've lost...my body thought it was starving..so it packed on the pounds...now that I've cut gluten and dairy out of my diet...no more inflamation and I'm starting to get noutrishion again!!!I've dropped 2 dress sizes! I feel SOOOOO much better!!!"

After that speach...And I recomend you be aggressive..don't let them interupt you...your audience will look around like the boogie man is going to pop out and infect them if they're not careful!! LOL people are so much more understanding when you Mention MS symptoms being the same as Celiacs...make it scary and they don't want to laugh...they start thinking about their OWN aches and pains...makes their brains work!!! LOL

TRUE STORY...and yes for the last 20 years we wern't sure if I had MS or not...took all the Nurological tests and the doctor said 50/50 couldn't say yea or nay...man was I pissed!!! Those tests were torturous...extreamly painful (should be illeagal)...20 years later...over 45 years of undiagnosed Celiacs (not to mention the nurrological damage caused by it)...I am FINALLY diagnosed...(July 2011)....CASIEN INTOLERENT AND NIGHTSHADE INTOLERENT AS WELL!!!

BUT THEY DON'T GIVE ME s$#&!!! IF THEY START TO I TELL'EM ABOUT THE boogie man AND THEY STOP IN THEIR TRACKS!!!! LOL :blink::unsure::D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 50
  • Created
  • Last Reply

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,843
    • Most Online (within 30 mins)
      7,748
    Gustavous
    Newest Member
    Gustavous
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • ABP2025
      Guidance on next steps after the lab tests

      By ABP2025 · Posted

      Thanks sending me additional links including how to test for thiamine deficiency. With regards to your first link, I wasn't diagnosed with giardiasis and I didn't take antibiotic for it. I try to generally stay away from antibiotic unless absolutely necessary as it might affect gut health. For treating phimosis, the doctor didn't give me antibiotics. I need to have a circumcision surgery which I haven't got around to schedule it.
    • ABP2025
      Guidance on next steps after the lab tests

      By ABP2025 · Posted

      I'm not vegan, just vegetarian. I consume dairy but not egg. So I have started including some Vitamin D fortified milk as well as a multivitamin with 2000 IU daily. For Vitamin B12, like you said it's very difficult to get it from just vegetarian sources and have started consuming Vitamin B Complex daily. My PCP was worried when my Vitamin D result came out as It was 3.7 ng/ml last year. He said that being low for a lengthy time could have done some damage to the body over the years. Now, though Vitamin D level has improved after the supplements, I'm not sure if the neurological damage has already been done. I'll continue including the supplements and see if my symptoms improve. I'll also get tested for celiac to see if I need to be in gluten-free diet.
    • dublin555
      9 Year Old test results - help interpret

      By dublin555 · Posted

      The positive DQ2 result is important since it suggests a genetic predisposition to celiac, but the bloodwork not showing clear signs is confusing. The inflammation in her stomach could still be related, and it’s worth pushing for more tests, like a biopsy or a deeper look at other possible causes. It’s a tough spot, but you’re on the right track trying to get clarity.
    • dublin555
      Being a burden to family/friends

      By dublin555 · Posted

      I totally agree, it’s so much more than just the physical struggle that occurs, there is the emotional struggle that goes along with it. It’s almost like you’re always navigating people who are uncomfortable with your needs and that pressure really wears you down. The fact is, the one that really did care will understand. This has nothing to do with you being a burden, it’s about protecting your health, first and foremost. If they don’t like being honest, that’s their problem.
    • knitty kitty
      Guidance on next steps after the lab tests

      By knitty kitty · Posted

      @ABP2025, Here's some studies and articles that will help you learn more about thiamin and all... I will write more later. It's possible that your antibiotic for giardiasis has caused thiamine deficiency.   https://hormonesmatter.com/metronidazole-toxicity-thiamine-deficiency-wernickes-encephalopathy/ And... https://hormonesmatter.com/thiamine-deficiency-testing-understanding-labs/ And... Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/ and... Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/      
×
×
  • Create New...