Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Gluten Withdrawal


Jatsa

Recommended Posts

Jatsa Newbie

Hello,

I am one of those, who have been suffering from quite vague symptoms (brain fog, fatigue, general weakness, dysphoria, blurred vision, dullness, etc.) since the age of 11 or 12 (now 25). I've decided to give a try to gluten-free diet and I have to say my symptoms are even worse than before (this is the day 3 of my trial) + headaches, irritability etc. Is it possible I am experiencing something like "fasting blues" (because to me, gluten-free trial is mainly about fasting) or is this the classic example of gluten withdrawal?

Is gluten withdrawal experienced only among people being intolerant to gluten or is it a common experience among many others, who've decided (from whatever reason) to stop eating gluten containing food?

Thank you for your replies.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Uhm, you're not supposed to be "fasting," you're supposed to be eating other things.

My reaction to fasting is that I get very clear headed, as long as I don't give up caffeine completely.

Tom2 Rookie

Hi Jatsa, Judging from your symptoms I would say welcome to the family. To answer your question, I would have to say that everyones reaction are different to gluten. I was self diagnosed last November with most of the same symptoms as yourself. My whole famiy has Celiac but only my Mother, youngest brother and myself are gluten free. My family are all different in our symptoms and illness and for myself, I saw relief from most of the symptoms in a few days but then got worse.

I am still learning about cross contamination here on these priceless posts and encourage you to continue with your gluten free lifestyle while you read all the different post here. There are many VERY Knowledgeable people here who can help you recover and get better.

By the way - I agree, this is not a fast, learn what you can eat and don't deprive your body of it's much undernourished vitamins and minerals or you will get worse.

Welcome and good luck in your new quest!!!

rainer83 Newbie

Your body needs time to adjust to the changes, just like anything. But don't fast, eat gluten free. You're not supposed to be fasting, especially if your body is in the process of healing. If you find that on a non-fasting gluten free diet, after 8 weeks or so that nothing gets better, then you might need to look at something else that's causing these problems. It took me 6-8 weeks on a strict gluten free diet before I actually started to feel 100% again and I've been gluten free ever since. If gluten is the case, you've done a lot of damage to your intestines, and that needs time to heal. Best of luck to you, it's not an easy transition.

Celtic Queen Explorer

For me it is like a withdrawal. I start craving gluten. I get very irritable and tired. Hang in there. Like everyone else said, it takes time to heal. Give your body a chance to recover. It will be worth it in the long run when you're clear headed and full of energy.

kitgordon Explorer

Fasting will certainly give you headaches, irritability, dizziness and other symptoms. For goodness sake, eat! Your body needs nourishment to heal if you are celiac, and to function even if you aren't. There are LOTS of foods out there that don't contain gluten! Meat, fruits, vegetables, dairy if you tolerate it, rice, potatoes, Rice Chex, Corn Chex, Fritos, Potato chips, yogurt, ice cream, nuts, chocolate, and if you must - gluten-free breads, bagels, cookies, etc. Just read labels on processed foods to be sure they are safe.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,165
    • Most Online (within 30 mins)
      7,748

    jennwith3
    Newest Member
    jennwith3
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kj44
    • mariamccl
      Hi, 25f who recently had a endoscopy procedure to diagnose celiac disease. Mum and uncle are both diagnosed celiacs. I've had symptoms over the past year - headaches that have become debilitating and frequent, feeling faint and nauseous with high heart rate, diarrhea and constipation, anemia, and recently my periods have become almost non existent. My doctor sent me a letter yesterday saying this " biopsies from the duodenum show some very mild features that could be in keeping with celiac disease but also could be due to other causes". I am waiting on an appointment to see him in the clinic to discuss this but in the meantime I wanted to check if anyone else has experienced this? I was eating plenty of gluten before my camera test and for the past 2 weeks have completely cut it out of my diet and I'm seeing changes in my bowel movements for the first time in my life! Headaches, dizziness etc are still there but maybe it takes longer for them to go away? Any help would be so appreciated -  I feel so lost in this whole process!! 
    • trents
      Did your symptoms improve after going on a gluten-free diet?
    • Scott Adams
      Thank you for sharing your genetic test results and background. Your results indicate you carry one half of the DQ2 heterodimer (DQA1*05), which is associated with a very low celiac disease risk (0.05%). While most celiac patients have either DQ2 or DQ8, these genes are also present in people without celiac disease, so the test alone doesn’t confirm a diagnosis. Since you’ve been gluten-free for 10 years, traditional diagnostic methods (like endoscopy or blood tests) would not be reliable now. If an official diagnosis is important to you, consider discussing a gluten challenge with your doctor, where you reintroduce gluten for a period before testing. Alternatively, you could focus on symptom management and dietary adherence, as your gluten-free diet seems to be helping. Consulting a gastroenterologist or celiac specialist could provide further clarity.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      @cvz Thank you for sharing your daughter’s story. It sounds like she is managing multiple complex conditions with great care and diligence. It’s encouraging to hear that she is compliant with her gluten-free diet and that her Addison’s disease symptoms are under control. The addition of electrolytes seems like a thoughtful suggestion, especially given her fluid intake. It’s also reassuring that she hasn’t shown noticeable symptoms from accidental gluten exposure, though it’s understandable how challenging it can be to monitor for such incidents. The unexplained high lipase levels are intriguing—perhaps further investigation or consultation with a specialist could provide more clarity. Wishing you both continued strength and success in managing her health. Please keep us updated on her progress!
×
×
  • Create New...