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And Another Diagnosis...


glutenfreemamax2

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glutenfreemamax2 Enthusiast

ADD. I'm 30 years old. And then when I said something to my mom about it, she says "oh yeah, they told me you had that in preschool....". OMG. Information that would have been so useful much earlier in my life.

Anyone else with ADD?


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DonnaMM Explorer

I think a lot of people with celiac disease have add related to poor compliance with diet because I literally thought I had schiZophrenia I was going so crazy before I tried a gluten free diet and I got off Ativan vyvanse lamictal ad Zoloft all to keep me from crying randomly or screaming at my husband

sariesue Explorer

I have ADD, I was dx'd when I was 5 and continue to test positive for it almost 20 years later. It runs in my family, my dad has it, I have it and my younger sister have it. However, with medication I have no problems. The thing with ADD meds and really all psych meds is that if the first one doesn't work to try another. The nonstimulant ADD med guanificine was like taking a sugar pill for me but meds like ritalin and currently vyvanse work very well. If you do choose to take medication for ADD consider the once a day ones. I took ritatlin 3 times a day for my whole childhood and it sucked. I and my parents would sometimes forget to give me the meds so the first dose would be completely out of my system before the new one kicked in.

glutenfreemamax2 Enthusiast

I'm exclusively breastfeeding. I'm scared to take anything.

sandsurfgirl Collaborator

I'm exclusively breastfeeding. I'm scared to take anything.

I exclusively breastfed both my kids. Neither of them ever had a bottle or formula and I nursed both of them well into their toddler years. I wasn't diagnosed celiac and I had to take lots of antibiotics, allergy meds and asthma meds, etc. There are a lot of meds you can take safely while breastfeeding. If you need the medication to feel better ask what your options are. There are also cognitive behavioral therapies for ADD so if meds are out for now, you can look into that.

srall Contributor

If there is some sort of continuum for ADD I am probably somewhere on there. At this point in my life I sort of just cope. My daughter's teachers (she's 8) think I should have her tested for ADD or ADHD but after all the research I've done about everything over the past two years I will not medicate her. I try and manage her behavior with a strict diet, plenty of sleep, and some behavior modification, including behavior modification on my point. It makes sense that if you are malnourished that you will have some ADD issues.

glutenfreemamax2 Enthusiast

I steers therapy yesterday. She is the one who diagnosed it in one session. I started reading about it. The OCD diagnosis I believe wa wrong. I think it's add.

I just want the brainy fog, follow through, and motivation to improve. Hopefully I can do it without meds. I seem to clear up on anti anxieties. The dr gave me a script for Prozac. Scared to death the take it.


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sariesue Explorer

I'm exclusively breastfeeding. I'm scared to take anything.

Then you could try starting with coping skills and reconsider medications once you have weaned your child. I mentioned medications because depending on how severe your symptoms are you may need them to be able to really implement any major coping mechanisms. I know I do. I tried to do coping mechanisms alone and I found I was too disorganized to get organized. But, I don't just lose objects I tend to lose time. Without meds I will sit down to check my email and many hours later realize that what time it is. The good thing about medication treatment is that you always have the ability to reconsider.

Skylark Collaborator

Have a look at GAPS diet. It's supposed to help ADD. I'm having the brain fog/motivation issues too and they are getting better. Open Original Shared Link

Celtic Queen Explorer
The dr gave me a script for Prozac. Scared to death the take it.

I take Prozac for depression and I really like it. I was taking Zoloft and it stopped working for me. But I definitely understand your hesitation if you're breast feeding. I weaned myself off the zoloft when we began trying to conceive and kept off of it until after I was done breast feeding. I know the doctors will say some medicines are okay, but really how do they know the long-term effects?

T.H. Community Regular

I had ADHD-like symptoms (never went to get diagnosed for it). When I eliminated my food allergies (which I never knew I had, as i don't get hives) and went to a whole foods diet with little to no gluten-free processed foods, the symptoms went away. They come back when I screw up the diet.

I know that's not the answer for everyone, but keeping a food journal to see if there are any food connections to how you feel, and eating even healthier during pregnancy by going to whole foods, probably couldn't hurt, and might help, yeah?

domesticactivist Collaborator

Both my kids' ADD/ADHD/dyslexia has been greatly helped by GAPS. My mental health stuff is better, too. I've also used CBT and other techniques over the years. Medication is overrated.

11475 Apprentice

I agree with the previous posters about keeping a strict food diary so that you can work out if there is something else at play.

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    • Scott Adams
      I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue that gluten might be a trigger for you. It’s also worth noting that symptoms can be inconsistent, especially if your body is still healing or if there are other factors at play, like stress, cross-contamination, or other food intolerances. Do you have more info about your blood test results? Did they do a total IGA test as well? 
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      For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac red flags in bloodwork IGA tests. WIll be following up soon with GI Dr, but so far, my symptoms are intermittent. I go back and forth with gluten-free diet (especially this past year.... did two tests where the stomach pains I had went away without gluten in diet. HOWEVER, I added it back a third time and I didn't get the pains)   Anyway, I am so confused and scared to eat anything now because I recently had a few bites of a yeasty donut and I immediately got so sick. Any thoughts??
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