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- Tyoung replied to birdboyden's topic in Related Issues & Disorders4Bile reflux with celiac
Hey! How is your daughter doing now? I am dealing with very similar issues! All started after going gluten free after being diagnosed with celiacs -
- larc replied to Jhona's topic in Meet Up Room13Does anyone here also have Afib
Thanks for your thoughts on this. My reactions to gluten are complex and involve more than just my heart and arteries. The problems with what It does to my cardiovascular system do present me with a bit of a conundrum at times. For instance, I had cardio bypass surgery in 2002 (at age 53) and then again had angina and artery issues in 2006. At the same time... -
- trents replied to Jessica H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Help Interpreting My Lab Results? (updated)
Migraines are a recognized symptom of celiac disease. The incidence of it is higher in the celiac community than in the general population. It is one of mine. Well, keep us posted. Do you have a follow up appointment scheduled yet? Again, let me stress that it is important to not begin the gluten free diet or even a reduced gluten diet until all testing... -
- Jessica H replied to Jessica H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Help Interpreting My Lab Results? (updated)
No other testing has been done at this point, though I wonder if my diagnosis will prompt that. My main symptoms have been bowel related and I’ve had severe migraines for several years now but I’ve been seeing a neurologist for that and have it under control, though I now wonder if the migraines have been a symptom of Celiac all along. -
- trents replied to Jessica H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Help Interpreting My Lab Results? (updated)
They do use stages but only when evaluated the damage done to the villi of the small bowel after looking at the biopsy samples. I'm referring to the "Marsh" scale. As far as I know, "stages" has never been applied to blood antibody test scores. It would not be appropriate to assign stages based on antibody scores as the damage done would depend not only...
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Hey! How is your daughter doing now? I am dealing with very similar issues! All started after going gluten free after being diagnosed with celiacs -
Thanks for your thoughts on this. My reactions to gluten are complex and involve more than just my heart and arteries. The problems with what It does to my cardiovascular system do present me with a bit of a conundrum at times. For instance, I had cardio bypass surgery in 2002 (at age 53) and then again had angina and artery issues in 2006. At the same time, I was also suffering symptoms of early onset dementia while also experiencing symptoms of psychosis. That was when I discovered I had celiac and went on a. gluten-free diet. On that diet, my psychosis disappeared, my chest pain stopped and my cognitive issues also cleared up. Subsequently I began running and exercising again with no cardio problems. And my stress tests and cardio exams since then showed no evidence of artery problems. Plus, my lipid panels showed significant changes. My arteriosclerosis had started in 1992. At that time, my HDL cholesterol had always been measured in the 20s even though I exercised religiously, ate what was supposed to be a heart-healthy diet and was never overweight. After going on a gluten-free diet in 2006, my HDLs have been in the 60s and 70s. Since then, my usual symptoms of ingesting gluten are a temporary increase in blood pressure and certain intense types of hypnogogic hallucinations. The Afib stuff is a recent development. I will be discussing all of this again with my cardiologist in May. I discuss some of this in my substack (no paywall) at https://diaryofapreviouslydementedpoet.substack.com/
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Migraines are a recognized symptom of celiac disease. The incidence of it is higher in the celiac community than in the general population. It is one of mine. Well, keep us posted. Do you have a follow up appointment scheduled yet? Again, let me stress that it is important to not begin the gluten free diet or even a reduced gluten diet until all testing related to celiac diagnosis is complete.
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No other testing has been done at this point, though I wonder if my diagnosis will prompt that. My main symptoms have been bowel related and I’ve had severe migraines for several years now but I’ve been seeing a neurologist for that and have it under control, though I now wonder if the migraines have been a symptom of Celiac all along.
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They do use stages but only when evaluated the damage done to the villi of the small bowel after looking at the biopsy samples. I'm referring to the "Marsh" scale. As far as I know, "stages" has never been applied to blood antibody test scores. It would not be appropriate to assign stages based on antibody scores as the damage done would depend not only the antibody levels in the blood at the time of testing but the duration of it and the intensity of it over time since the onset. And those are all very subjective things. I understand your concern about irreparable damage done to body systems but you are fairly young and your body still has very good rejuvenation powers. Is there laboratory or medical evidence that anything other than the lining of your small bowel has been compromised yet? Do you have bone demineralization for instance or unexplained dental decay or neurological deficits? Stuff like that? It took 13 years to arrive at a diagnosis of celiac disease in my case from the first laboratory evidence (elevated liver enzymes) of onset and by that time I had developed osteopenia. I was 50 or 51 at the age of diagnosis.
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