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Abdominal Pain Only - Normal Stool?


Now What?

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Now What? Newbie

First, I think it is incredible and priceless that this website exists, along with its Forum. This is worth more than a dozen GI consultations.

I guided my GP to test me for antibodies and got back my extremely high tTG 2 days ago. I've had random diarrhea along with weight loss for 3-4 years. Never had abdominal pain!! Finally decided to get tested and got my confirmation.

My question for fellow sufferers - after being gluten/dairy free for a week, my diarrhea is gone but abdominal pain appeared and remianed mostly on the right side, liver area, with some on the left as well. My abdominal CT is normal, aside from "prominent subcentimeter meseneterial lymph nodes" (which are known as frequent with celiac disease).

Of course, I am concerned about possible intestinal malignancy (as it is a known consequence of neglected celiac disease), but reading dozens of pages here - I see that there is a variety of symptoms and levels and combinations of signs, so I would appreciate anyobody's input - is it possible to have just the pain and gurgling after going Gluten/Dairy Free?

Also, I am very much aware that the recovery road is extremely long and not expecting anything major in less than few months. Thank you all!


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Meatballman Rookie

Can only speak for myself.Yes after close to 14 months gluten free i still get occasional gurgling and abdominal pain.In the begining I would also get rib pain and what i would swear was gallbladder and liver pain.Ct and ultrasound came out clear.It takes time but keep your chin up you will improve.Good luck.

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    • trents
      Welcome to the forum, @Jason Hi! First, we need to deal with some squishy terminology. There are two terms which are, unfortunately, used interchangeably and indiscriminately to refer to two different gluten-related disorders. The two terms are "gluten sensitive" and "gluten intolerant". Because these terms are used carelessly we are not certain what you mean when you say your doctor told you that your are likely "gluten sensitive". The actual medical terms for these two gluten disorders are: "celiac disease" and "Non Celiac Gluten Sensitivity" or NCGS for short. The test you had run by the GI doc are intended to check for celiac disease. There is no test for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out.  Because these terms are used by many people interchangeably I'm not sure that your doctor, after running the tests, was intending for you to understand that he believes you have celiac disease or NCGS. So, to clear up the confusion, can you post the results of your blood test, not just the test scores but the reference ranges used by the lab analyzing the blood sample to determine negative/positive or normal/high? The difference between celiac disease and NCGS is that celiac disease damages the lining of the small bowel over time whereas NCGS does not. However, they may share many of the same gastro intestinal symptoms. Both need to be addressed with a gluten free diet but the tax breaks and work place accommodations you speak of would likely only accrue from an official celiac disease diagnosis. So, can you post the blood test results along with the reference ranges and also the endoscopy report. We can help you decipher whether or not the doc was suggesting you may have celiac disease or NCGS if you will do that.
    • Jason Hi
      I recently had an upper gastrointestinal endoscopy and blood tests, and my gastroenterologist concluded that I’m “likely gluten sensitive.” However, they wouldn’t provide a prescription or a formal doctor’s note—just a test result saying I’m likely gluten sensitive, along with the advice to avoid gluten. I’m frustrated because I know that proper documentation could help with tax breaks for gluten-free foods and even workplace accommodations. I’m also not willing to go through another gluten challenge—it was rough! Does anyone have recommendations for a doctor (U.S. based preferably Texas) who is more understanding and willing to provide the necessary documentation for gluten sensitivity? I’d really appreciate any suggestions!
    • ALBANICKAP
      Hi, I'm very frustrated with my problems related to the above.  I find Gluten to be easier than fructose, at times even lactose b/c I love cheese.  I do buy lactose free dairy products but still have problems.  Have recently been adding more bread to bulk up my stools.  Any suggestions for products that might help? Thx. AP  
    • Scott Adams
      Welcome to the forum, your symptoms are certainly consistent with possible celiac disease. Were you eating lots of gluten daily in the 6-8 weeks before the test? If not it could lead to false negative results. When you post your results please also include the reference ranges, as each lab uses their own. Good luck!
    • Celiacandme
      Keep us posted on your results. I hope you don't have to wait too long. Are you planning to have your son tested? Do you feel your father might get tested? Wishing you all better health.🍀
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