Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hair Loss?

SandyShoes

By SandyShoes
in Coping with Celiac Disease

Recommended Posts

Mag-d Newbie
Mag-d
Posted

hello there,

just out of curiosity, for those of you who experienced hair loss due to being a celiac... how long did it take for it to stop falling out & for regrowth to begin?

thanks :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Tigercat17 Enthusiast
Tigercat17
Posted

hello there,

just out of curiosity, for those of you who experienced hair loss due to being a celiac... how long did it take for it to stop falling out & for regrowth to begin?

thanks :)

I think mine took about 4-6 months, but I think everyones different. :)

SoyBoy Rookie
SoyBoy
Posted

Hi everyone.... I really need some help here! I am getting so frustrated with this disease.. I feel like I am aging so fast, I feel that my skin, eyes and hair have taken a huge hit and its making me so so depressed. I spend so much money on healthy foods that are gluten free and vitamin supplements and nothing is working... I cant stand looking into the mirror any more. I know I have to give it time... I have only been gluten free for 4 months... How long could this take.... Does it get better? Could there be a chance I wont get better? My hair is so freakin thin I dont even look the same as I did 1 year ago......

Can you list your supplements (including quantities / dosages)? Maybe someone here can help.

K8ling Enthusiast
K8ling
Posted

We found out that I had Celiac BECAUSE I was losing hair from malabsorption. Hair is a big indicator (I have been told). The good news is, my hair grew back when I started getting the stuff I needed :)

smc Rookie
smc
Posted

Wow I hope all the hair loss gets better as you heal! You may want to check your thyroid out. Abnormal thyroid can cause hair loss too and celiac and thyroid conditions can go hand in hand.

cait k Newbie
cait k
Posted

I have lost a ton of hair over the past few years and my doctors told me the same sorts of things...everyone loses hair as they get older, your hair looks fine, and my favorite--you certainly don't look malnourished! All of my tests have come back normal (except for once my thyroid was slightly low but then it recovered). They always told me I was fine. Then in my most recent bout of tests, a month ago, I had low iron levels. So then I asked to look at all of my test results and pretty much everything they tested was at the low end of normal....and the normal range for these things is huge! So I'm wondering is normal for me the same as normal for a 60 year-old man? If anyone knows how these normal ranges were developed I would like to know.

Kallie

Same. and i am only 23! before i was officially diagnosed i lost SO much hair and so much weight that i looked sickly. I have been completely gluten-free for a year now and regained the weight and hair started growing back in..but now that im super stressed out again with law school finals everything is going to hell again. My hair is once again falling out, i cant see the board in class (eyes apparently going), i have horrible skin (acne and weird dermatitis on arms), and also a horribly pale and deathly complexion. In addition to all the usual digestive symptoms. I am taking vitamins too and i eat healthy. This probably does not help you but take comfort in knowing that you are not alone. I am depressed over it as well. I wish there was a simple fix. I have heard that the best thing is to go get a blood workup to see what we are deficient in and try and supplement those areas. I am planning on doing that once school ends.

ravenwoodglass Mentor
ravenwoodglass
Posted

Same. and i am only 23! before i was officially diagnosed i lost SO much hair and so much weight that i looked sickly. I have been completely gluten-free for a year now and regained the weight and hair started growing back in..but now that im super stressed out again with law school finals everything is going to hell again. My hair is once again falling out, i cant see the board in class (eyes apparently going), i have horrible skin (acne and weird dermatitis on arms), and also a horribly pale and deathly complexion. In addition to all the usual digestive symptoms. I am taking vitamins too and i eat healthy. This probably does not help you but take comfort in knowing that you are not alone. I am depressed over it as well. I wish there was a simple fix. I have heard that the best thing is to go get a blood workup to see what we are deficient in and try and supplement those areas. I am planning on doing that once school ends.

I wouldn't wait to long before getting that blood work done. I know you must be really stressed out but you will do better on those finals if your health isn't compromised. Is there anything you are eating that you weren't before you got so busy? Like are you eating at the school cafe more often, grabbing coffee at a coffee shop, added any supplements that you haven't had the time to confirm are gluten-free? In another post I seem to remember you saying you had been doing pretty well before you came under the stress, is there anything at all that you can pinpoint that has changed? One other thing that may not apply to you is that for me soy also causes hair loss and while the GI symptoms I get are different from what I get from gluten soy still leads to a lot of problems for me. If you consume soy you may want to try dropping it for a bit to see if it helps.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 6 months later...
JuliaSam Newbie
JuliaSam
Posted

A few months ago I started getting an extremely itchy scalp and people said it was probably dirty, but when I would wash it it would still itch and it itched bad! Then, my hair started to fall out more in bigger amounts. I was very tired as well so I went to the doctor etc many times before being diagnosed with celiac disease. Most doctors don't know about celiac/don't consider it. I've been off gluten for about a month, but I did eat it once by accident (maybe more too). Does an itchy scalp and hair fallout mean DH? Sorry if thats a really stupid question. I haven't really noticed blisters or anything. And I'm only 17, how long do you think it will take for my hair to stop falling out? It has thinned out a lot. :[ It's depressing. Also, should I try to find gluten free hair products and makeup? I don't know how important this is. Thanks =]

rosetapper23 Explorer
rosetapper23
Posted

I would venture to guess that you're probably deficient in certain nutrients (e.g., zinc, B vitamins, and/or silicon), and that's what is making your scalp itch and your hair to fall out. For me, those symptoms were relieved by taking zinc. If you decide to take zinc, it should be chelated zinc, and you'll need to take copper with it. Perhaps your doctor would be willing to check your nutrient levels (??). Some of us here have been helped by a product called BioSil, which contains silicon.

As for shampoos and personal care products, I am a strong believer that they need to be gluten free. Two very good brands of shampoo are Dessert Essence Organics and EO, which are both formulated with essential oils.

AVR1962 Collaborator
AVR1962
Posted

Body is more than likely suffering form lack of nutrients. I too had hair loss. I started taking an extra zinc along with my multi and BioSil drops and my hair stopped falling out. I know someone that used Primrose tabs and that helped her.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,035
    • Most Online (within 30 mins)
      7,748
    Hanks
    Newest Member
    Hanks
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • kate g
      Are they close to a drug that will help celiacs with cross contamination

      By kate g · Posted

      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
    • cristiana
      Celiac pain relief

      By cristiana · Posted

      Hi @Karmmacalling I'm very sorry to hear you are feeling so unwell.  Can you tell us exactly what sort of pain you are experiencing and where the pain is?  Is it your lower abdomen, upper abdomen etc?  Do you have any other symptoms? Cristiana
    • trents
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By trents · Posted

      The NIH article you link actually supports what I have been trying to explain to you: "Celiac disease (celiac disease) is an autoimmune-mediated enteropathy triggered by dietary gluten in genetically prone individuals. The current treatment for celiac disease is a strict lifelong gluten-free diet. However, in some celiac disease patients following a strict gluten-free diet, the symptoms do not remit. These cases may be refractory celiac disease or due to gluten contamination; however, the lack of response could be related to other dietary ingredients, such as maize, which is one of the most common alternatives to wheat used in the gluten-free diet. In some celiac disease patients, as a rare event, peptides from maize prolamins could induce a celiac-like immune response by similar or alternative pathogenic mechanisms to those used by wheat gluten peptides. This is supported by several shared features between wheat and maize prolamins and by some experimental results. Given that gluten peptides induce an immune response of the intestinal mucosa both in vivo and in vitro, peptides from maize prolamins could also be tested to determine whether they also induce a cellular immune response. Hypothetically, maize prolamins could be harmful for a very limited subgroup of celiac disease patients, especially those that are non-responsive, and if it is confirmed, they should follow, in addition to a gluten-free, a maize-free diet." Notice that those for whom it is suggested to follow a maize-free diet are a "very limited subgroup of celiac disease patients". Please don't try to make your own experience normative for the entire celiac community.  Notice also that the last part of the concluding sentence in the paragraph does not equate a gluten-free diet with a maize-free diet, it actually puts them in juxtaposition to one another. In other words, they are different but for a "limited subgroup of celiac disease patients" they produce the same or a similar reaction. You refer to celiac reactions to cereal grain prolamins as "allergic" reactions and "food sensitivity". For instance, you say, "NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing" and "IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. I need to remind you that celiac disease is not an allergy, it is an autoimmune disorder. Neither allergy testing nor food sensitivity testing can be used to diagnose celiac disease. Allergy testing and food sensitivity testing cannot detect the antibodies produced by celiac disease in reaction to gluten ingestion.  You say of me, "You must be one of those who are only gluten intolerant . . ." Gluten intolerance is synonymous with celiac disease. You must be referring to gluten sensitivity or NCGS (Non Celiac Gluten Sensitivity). Actually, I have been officially diagnosed with celiac disease both by blood antibody testing and by endoscopy/positive biopsy. Reacting to all cereal grain prolamins does not define celiac disease. If you are intent on teaching the truth, please get it straight first.
    • Bebygirl01
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By Bebygirl01 · Posted

      Perhaps you would still like to answer the questions I posed on this topic, because that is all I asked. I am curious to know the answers to those questions, I do not care about the background of Dr. Osborne as I am more aware of the situation than you are, and he is also one of the best known authors out there on Celiac disease. But did you even bother to read the three Research Papers I posted by NIH? You must be one of those who are only gluten intolerant and not yet reacting to all glutens aka grains, but I AM one of those who react to ALL the glutens, and again, that is one of the two questions I originally posted on this matter. NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing. I started with the failed FDA explanation of what Gluten Free is and I stayed sick and got even sicker. It wasn't until I came across NIH's papers and went off all grains that I realized that in fact, I am Celiac and reacting to all the glutens. IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. Those who are just getting started with learning about grains etc., can take it easy by just being "grain free' and eating a lot of meat, vegetables, etc. or whole foods as God has intended, without buying so called gluten free garbage out there that is making them sick and the whole reason they are not better. I tried the stupid gluten free garbage and it didn't work, and that will make anyone want to give up, it is better to teach the entire truth and let the patient decide, rather than give them misinformation and lies.
    • Nicola McGuire
      My son newly diagnosed

      By Nicola McGuire · Posted

      Thank you so much I will speak to the doctor for dietician apt . Thank you for your advice Beth much appreciated 
×
×
  • Create New...