Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Don't Care What The Docs Say

stanleymonkey

Recommended Posts

stanleymonkey Explorer
stanleymonkey
Posted

the specialist at our local childrens hospital told us our daughter in no way had issues with gluten as her ttg was normal the two times it was tested, and the fact she was growing

well we decided to trust mommy instinct, and 2 days gluten free i have my happy, spunky, funny 2 yr old back, no 2 hr tantrums, no clinging to my side

we are going back to our original gastro, he suggested gluten-free no matter what the tests said, and he was right!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Good for you, and good for your original gastro!!

Roda Rising Star
Roda
Posted

I've found that my mommy instinct has served me well. I'm glad you are getting you little one feeling better!

Bella001 Explorer
Bella001
Posted

the specialist at our local childrens hospital told us our daughter in no way had issues with gluten as her ttg was normal the two times it was tested, and the fact she was growing

well we decided to trust mommy instinct, and 2 days gluten free i have my happy, spunky, funny 2 yr old back, no 2 hr tantrums, no clinging to my side

we are going back to our original gastro, he suggested gluten-free no matter what the tests said, and he was right!

I don't care what a test says...it can be wrong! If she's better off of it, keep it that way! Glad you trusted yourself!

AVR1962 Collaborator
AVR1962
Posted

Yay! All four of my grands are off gluten, no testing done. The stuff is bad, more people need to be as smart as yourself!!

stanleymonkey Explorer
stanleymonkey
Posted
  • Author

well, day 3 gluten free, And all I have to say is who is this child? Can't wait for our appointment with our original gastro because that man needs a great big hug. He is the only one who never brushed us off with toddler diahrrea and withholding stool and a phase

any parents in Vancouver b.c. Need to see Dr mark riley in north van

  • 5 weeks later...
kaity Apprentice
kaity
Posted

i agree with all of you, i have the same problem with my son, one doctor said that he has celiac ad another said that he is lactose intollerant not celiac, i am doing him some tests now, if i am not convenced with the results i am going to make him gluten free

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


stanleymonkey Explorer
stanleymonkey
Posted
  • Author

trust your instinct, we are now 1 month gluten free and she is a different child! We have however now her huge belly has gone discovered a lump in he belly right next to her belly button that you can see even when she is lying down, I'm hoping its a hernia from being so swollen and nothing else

back to the docs to gloat and ask to have the lump checked

salexander421 Enthusiast
salexander421
Posted

trust your instinct, we are now 1 month gluten free and she is a different child! We have however now her huge belly has gone discovered a lump in he belly right next to her belly button that you can see even when she is lying down, I'm hoping its a hernia from being so swollen and nothing else

back to the docs to gloat and ask to have the lump checked

Our youngest has a little lump above her belly button. I asked her ped about it and she listened to it with the stethoscope and told me what it was but forgot the name. She said it's nothing to worry about but I keep a close eye on it.

Yay for everyone trusting their mommy instincts! If I didn't trust my mommy instincts I would have two very sick girlies right now!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,886
    • Most Online (within 30 mins)
      7,748
    Katsuan 63
    Newest Member
    Katsuan 63
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Gluten Free ADHD medications

      By knitty kitty · Posted

      I had ADHD symptoms but taking Thiamine (Benfotiamine and Allithiamine TTFD), magnesium and potassium really helped with symptoms.   A diet high in carbohydrates can precipitate Thiamine deficiency symptoms that resemble ADHD.  Extra thiamine is needed to convert carbohydrates to energy.  Dr. Derrick Lonsdale has an explanation...  https://hormonesmatter.com/adhd-diet-thiamine/ https://hormonesmatter.com/sugar-intake-and-thiamine/ Hope this helps!
    • Scott Adams
      Gluten Free ADHD medications

      By Scott Adams · Posted

      Does it do well for your BP control?
    • Scott Adams
      Celebrity Cruise for Gluten Free

      By Scott Adams · Posted

      It's great to hear that cruise lines are stepping up and offering better and more quality gluten-free options for their guests! Given the fact that on a ship you're basically trapped with whatever food options there are, it makes a lot of business sense for all cruise lines to cater to the growing gluten-free crowd.
    • knitty kitty
      9 year old- questionable results

      By knitty kitty · Posted

      @ABP, "her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4"  In young children, the DGP IgG tests may be the only positive blood test because the immune system is not mature and doesn't produce tTg IgA until older.  Iron deficiency and thiamine deficiency can cause poor tTg IgA production. "her genetic test for celiac was positive." Must have at least one gene to develop Celiac Disease. "Increased intraepithelial lymphocytes (IELs)"  Increased intraepithelial lymphocytes (IELs) occurs in early stages of celiac disease. "...severe constipation and bloating...frequent mouth stores...keratosis Pilaris...decreased growth curve..."  These symptoms can be related to nutritional deficiencies. Keratosis Pilaris occurs in Vitamin C deficiency, Niacin B 3 deficiency, and Vitamin A deficiency.   Mouth sores can also occur with any of these deficiencies as well as in B12 deficiency.  Decreased growth can occur in iron deficiency, Vitamin D deficiency and Vitamin A deficiency.  Constipation and bloating occur in Thiamine B1 deficiency and magnesium deficiency.   Has your daughter been checked for nutritional deficiencies?  
    • knitty kitty
      Ground meat absolutely full of gluten?

      By knitty kitty · Posted

      @GardeningForHealth, About that study... The scientists were testing how well different gluten detection tests were at detecting gluten in different kinds of food products.   The scientists knew the meat had gluten in it already.  They "spiked" the samples. "...we selected a set of 32 samples (Table 2) to represent a wide range of grains and gluten concentrations and to encompass a wide range of food matrices. All the samples had previously tested at levels of between 5–1000 ppm gluten by the RIDASCREEN® Gliadin kit or the RIDASCREEN® FAST Gliadin kit, except for the raw meat sample which was previously tested to contain more than 1000 ppm gluten but was chosen to include a meat matrix. Samples were processed to provide a relatively uniform distribution of sample material prior to extraction. Raw meat was blended using a Cuisinart Mini-Prep Plus® processor (Model DLC-2A)."
×
×
  • Create New...