Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Don't Care What The Docs Say


stanleymonkey

Recommended Posts

stanleymonkey Explorer

the specialist at our local childrens hospital told us our daughter in no way had issues with gluten as her ttg was normal the two times it was tested, and the fact she was growing

well we decided to trust mommy instinct, and 2 days gluten free i have my happy, spunky, funny 2 yr old back, no 2 hr tantrums, no clinging to my side

we are going back to our original gastro, he suggested gluten-free no matter what the tests said, and he was right!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Good for you, and good for your original gastro!!

Roda Rising Star

I've found that my mommy instinct has served me well. I'm glad you are getting you little one feeling better!

Bella001 Explorer

the specialist at our local childrens hospital told us our daughter in no way had issues with gluten as her ttg was normal the two times it was tested, and the fact she was growing

well we decided to trust mommy instinct, and 2 days gluten free i have my happy, spunky, funny 2 yr old back, no 2 hr tantrums, no clinging to my side

we are going back to our original gastro, he suggested gluten-free no matter what the tests said, and he was right!

I don't care what a test says...it can be wrong! If she's better off of it, keep it that way! Glad you trusted yourself!

AVR1962 Collaborator

Yay! All four of my grands are off gluten, no testing done. The stuff is bad, more people need to be as smart as yourself!!

stanleymonkey Explorer

well, day 3 gluten free, And all I have to say is who is this child? Can't wait for our appointment with our original gastro because that man needs a great big hug. He is the only one who never brushed us off with toddler diahrrea and withholding stool and a phase

any parents in Vancouver b.c. Need to see Dr mark riley in north van

  • 5 weeks later...
kaity Apprentice

i agree with all of you, i have the same problem with my son, one doctor said that he has celiac ad another said that he is lactose intollerant not celiac, i am doing him some tests now, if i am not convenced with the results i am going to make him gluten free


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stanleymonkey Explorer

trust your instinct, we are now 1 month gluten free and she is a different child! We have however now her huge belly has gone discovered a lump in he belly right next to her belly button that you can see even when she is lying down, I'm hoping its a hernia from being so swollen and nothing else

back to the docs to gloat and ask to have the lump checked

salexander421 Enthusiast

trust your instinct, we are now 1 month gluten free and she is a different child! We have however now her huge belly has gone discovered a lump in he belly right next to her belly button that you can see even when she is lying down, I'm hoping its a hernia from being so swollen and nothing else

back to the docs to gloat and ask to have the lump checked

Our youngest has a little lump above her belly button. I asked her ped about it and she listened to it with the stethoscope and told me what it was but forgot the name. She said it's nothing to worry about but I keep a close eye on it.

Yay for everyone trusting their mommy instincts! If I didn't trust my mommy instincts I would have two very sick girlies right now!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,482
    • Most Online (within 30 mins)
      7,748

    laurihip
    Newest Member
    laurihip
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • dublin555
      I’ve been through something similar recently, and I know how frustrating it can be when nothing seems to work. Based on what you’ve described, it might be worth considering dermatitis herpetiformis, especially with the family history of celiac disease. Testing could give you some answers, and while online kits aren’t as reliable as a GP, they’re a good start if appointments are hard to get. I also found relief through medical cannabis for my eczema, at Releaf, a clinic in the UK that offers eczema medical cannabis treatment. They start with a low dose, adjust weekly, and track progress through online consultations.
    • trents
      Welcome to the forum, @Jaylan! Almost all of the symptoms and medical conditions you describe have been found to be associated with celiac disease. But they can also be caused by other things as well. There certainly is enough circumstantial evidence in your list of medical problems to warrant being tested for celiac disease. Ask your physician to order a celiac panel consisting of, at the very minimum, these two blood antibody tests: total IGA and tTG-IGA. Please do not attempt to limit your gluten intake before the blood draw is taken or you will invalidate the testing. Incidentally, celiac disease is often misdiagnosed as IBS.
    • Jaylan
      Hi there!  I’ve recently been tested for celiac disease, along with other autoimmune diseases. My symptoms started back in 2018 with joint pain in my knees. Since then, it has progressively worsened. I now have joint pain in both knees, elbows, and sometimes my shoulders. The pain is almost unbearable. I feel so stiff in the mornings, and this stiffness can last the whole day. I also experience swelling and warmth around those areas.   Other symptoms include IBS (diagnosed at age 16), restless legs, chest pain, tiredness, miscarriages, bloating, and sharp pain on the right side of my stomach. In the past, I’ve also had problems with a vitamin D deficiency, and my serum folate levels recently came back very low.   My question is: How likely is it that I have celiac disease?    
    • Rebeccaj
    • jimmydee
×
×
  • Create New...