Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Have Soy If You Are Gluten Free?

quiltmom

By quiltmom
in Coping with Celiac Disease

Recommended Posts

quiltmom Newbie
quiltmom
Posted

I am now gluten intolerant. I am a little confused. Do you have to eliminate soy too? Lots of things are wheat free but then it has soy. Can we have soy?

Sue

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

Soy is gluten-free. Some people with celiac disease are also intolerant to soy, but certainly not all of us. I have no trouble with soy.

quiltmom Newbie
quiltmom
Posted
  • Author

Soy is gluten-free. Some people with celiac disease are also intolerant to soy, but certainly not all of us. I have no trouble with soy.

Thank you. I think I am getting the gluten free part. But still have confusion over things that are ingredients in products. I guess it is the wording that gets me.

I also have a burning in my mouth and gums. Could this be from being gluten intolerant?

Sue

Ellie84 Apprentice
Ellie84
Posted

I also have a burning in my mouth and gums. Could this be from being gluten intolerant?

Gum/enamel problems and sores are relatively common with people who have celiac disease, because most of us have some kind of vitamin deficiency. Smoking makes dental problems worse. Consult your dentist for advice on how to address these problems.

Reba32 Rookie
Reba32
Posted

everyone has different symptoms, it's hard to say if yours are specifically from gluten intolerance or from something else. Burning sensations in the mouth I think are more common with allergic reactions rather than an auto-immune reaction. When do you notice the burning? All the time, or only with certain foods?

Chad Sines Rising Star
Chad Sines
Posted

Many at least start off with issues to common allergens, soy, dairy, etc until things heal up. Dairy and soy get me bad. Heck, it seems like my GI accepts and rejects things at will with no rhyme or reason.

mamaw Community Regular
mamaw
Posted

Just a side note! Some products are wheat free but not gluten free, you will want to look for products that are labeled gluten free therefore making them wheat free...Wheat free means no wheat but could have rye or barley....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Katrala Contributor
Katrala
Posted

1. Look for "gluten-free" label ("a naturally gluten-free food" doesn't always mean the product is gluten-free; three cheers for Wal-Mart brand, which likes to screw up "naturally gluten-free foods" by adding "may contain wheat" disclaimers.) If it is certified gluten-free, stick it in your buggy and move on to the next aisle.

2. Look for wheat listed (I tend to look at 2 products from same brand - one of which I am certain has wheat in it - and compare how they list their ingredients.)

3. Look for barley, rye, malt (not maltodextrose - that is safe) in the ingredients list - this will not usually be listed in the allergens, etc. area.

P.S. - Yes, soy is safe in terms of being gluten-free.

While I am not condoning this practice, my allergy testing revealed both a soy and tomato allergy (some time before any celiac-related problems arose, etc.) I don't pay attention to either, only focusing on the gluten-free side of things.

quiltmom Newbie
quiltmom
Posted
  • Author

Just a side note! Some products are wheat free but not gluten free, you will want to look for products that are labeled gluten free therefore making them wheat free...Wheat free means no wheat but could have rye or barley....

This is good to note. I found some products at Walmart that are gluten free. Watching for the barley and rye too

quiltmom Newbie
quiltmom
Posted
  • Author

everyone has different symptoms, it's hard to say if yours are specifically from gluten intolerance or from something else. Burning sensations in the mouth I think are more common with allergic reactions rather than an auto-immune reaction. When do you notice the burning? All the time, or only with certain foods?

I have the burning most of the time. I don't know of a certain food that causes it. I don't eat things that are acid.

Katrala Contributor
Katrala
Posted

This is good to note. I found some products at Walmart that are gluten free. Watching for the barley and rye too

Be careful of Wal-Mart brands. Wal-Mart has done a better job at labeling their products, but they still sometimes have gluten in products that most other brands don't (canned vegetables, for example.)

  • 3 years later...
Drifter60 Newbie
Drifter60
Posted

I have just found out i am gluten intolerant and these posts have been very helpful in finding answers. And in one article (not on this site) said that soy is gluten free. I was excited cuz there is a lot  of soy in most everything it seems. But i also saw an article in "about Health" that says, 

 

Pure soybeans do not have gluten in them, Open Original Shared Link responsible for reactions in Open Original Shared Link andOpen Original Shared Link only occurs in the grains wheat, barley and rye.

But unfortunately, that's not the end of the story for soy and gluten.

Soybeans commonly are grown in rotation with wheat crops. That means the farmers use the same fields to grow soy and wheat, along with the same combines to harvest them, the same storage facilities to keep them and the same trucks to transport them to market. As a result, soy can be subject to Open Original Shared Link — in some cases, lots of gluten cross-contamination.

For example, a 2010 study by celiac dietitian Tricia Thompson on Open Original Shared Link found that soy was one of the worst offenders — in fact, one sample of soy flour contained a whopping 2,925 parts per million of gluten (for comparison, Open Original Shared Link generally is considered "gluten-free," although many people react to even Open Original Shared Link than that). This gluten free living is very confusing. So i guess its back to no soy again.  :(

Jays911 Contributor
Jays911
Posted

Soy sauce caN be an issue. Most has gluten, but gluten free versions are available, and most good sushi joints now carry them.

LauraTX Rising Star
LauraTX
Posted

Welcome to the forum, Drifter! :)  This thread is a few years old but it is always a good idea to make sure what we buy is truly gluten-free.  Soy, like anything else, can be CC'd when processed, especially when milled into a flour.  While most processed food containing soy has fairly small amounts of it and won't have much issue from field cc (like soy lecithin, etc), something like a soy flour (or any flour) definitely needs to be verified gluten-free before consumption, as it may be processed in a facility or on equipment with gluten containing grains.  This is why it is a best practice when buying gluten-free grains to get certified gluten-free or from a company that can verify its practices, since those are the most likely whole foods to be contaminated.  Now, whole soy things like edamame are an example of where CC isn't going to be as big of a deal.  But any processed food does need to be checked before we eat it.

Drifter60 Newbie
Drifter60
Posted

Welcome to the forum, Drifter!  :)  This thread is a few years old but it is always a good idea to make sure what we buy is truly gluten-free.  Soy, like anything else, can be CC'd when processed, especially when milled into a flour.  While most processed food containing soy has fairly small amounts of it and won't have much issue from field cc (like soy lecithin, etc), something like a soy flour (or any flour) definitely needs to be verified gluten-free before consumption, as it may be processed in a facility or on equipment with gluten containing grains.  This is why it is a best practice when buying gluten-free grains to get certified gluten-free or from a company that can verify its practices, since those are the most likely whole foods to be contaminated.  Now, whole soy things like edamame are an example of where CC isn't going to be as big of a deal.  But any processed food does need to be checked before we eat it.

 

Thank you Laura and this has been very helpful.  :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. glucel
      - glucel replied to Bindi's topic in Super Sensitive People
      36

      Refractory or super sensitive?

      I don't react the same way to all of them but do react badly to many of them where others may not. I also have a touch of hypochondria so when the labs come back too high or makes me anxious. I am dismayed but not really surprised that I may be in the small group of people to suffer a particular side effect. I was originally on warfirin. I think that was...
    2. trents
      - trents replied to Bindi's topic in Super Sensitive People
      36

      Refractory or super sensitive?

      What do you mean when you say, "blood thinners are all the same to me"? Do you mean you react negatively in the same way to all of them? Otherwise, they are not all the same. They work in different ways. Aspirin causes the platelets to be less sticky. Warfarin and related meds work by reducing the production of platelets. You might talk to your doctor about...
    3. glucel
      - glucel replied to Bindi's topic in Super Sensitive People
      36

      Refractory or super sensitive?

      That's interesting because I think that the lousy 81 mg irritates my gut. I'm sensitive to drugs in general and blood thinners are all the same to me so aspirin necessary evil. As they say, better to be a live chicken than a dead duck.
    4. Scott Adams
      - Scott Adams replied to Tonya Kane's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters and gluten

      I've been using a Brita water filter for well over a decade without any issues. I seriously doubt that these water filter companies would use glues that would end up in your water, as that would be counter to what they are trying to do, which is to purify tap water. Please provide some specific evidence to back this claim up, as such speculation can...
    5. trents
      - trents replied to aperlo34's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      2 months in... struggling with symptoms

      Welcome to the forum, @aperlo34! You said you had a colonoscopy "ordered" in July? Has that procedure happened yet? A colonoscopy cannot be used to diagnose celiac disease so I assume the order for the colonoscopy is to check for something else. The procedure used to diagnose celiac disease is the endoscopy. So, I assume you have had blood antibody testing...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,938
    • Most Online (within 30 mins)
      7,748
    Songbird64
    Newest Member
    Songbird64
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • glucel
      Refractory or super sensitive?

      By glucel · Posted

      I don't react the same way to all of them but do react badly to many of them where others may not. I also have a touch of hypochondria so when the labs come back too high or makes me anxious. I am dismayed but not really surprised that I may be in the small group of people to suffer a particular side effect. I was originally on warfirin. I think that was the one where I had trouble with vitamin k numbers and or was anemic with low hemoglobin, red blood cells etc.  My blood pressure drops to very low numbers after taking something as simple as turmeric for a few weeks. My diastolic had touched 50 one day before I finally figured out that the herb was the problem. No intention to go for 40 so never looked back. I wanted to try benfothiamine but one of the listed side effects is bradycardia and other stuff that I am not going to challenge esp since I have had and still have to a lesser degree heart rhythm problems. 
    • trents
      Refractory or super sensitive?

      By trents · Posted

      What do you mean when you say, "blood thinners are all the same to me"? Do you mean you react negatively in the same way to all of them? Otherwise, they are not all the same. They work in different ways. Aspirin causes the platelets to be less sticky. Warfarin and related meds work by reducing the production of platelets. You might talk to your doctor about alternatives to aspirin. 
    • glucel
      Refractory or super sensitive?

      By glucel · Posted

      That's interesting because I think that the lousy 81 mg irritates my gut. I'm sensitive to drugs in general and blood thinners are all the same to me so aspirin necessary evil. As they say, better to be a live chicken than a dead duck. 
    • Scott Adams
      Water filters and gluten

      By Scott Adams · Posted

      I've been using a Brita water filter for well over a decade without any issues. I seriously doubt that these water filter companies would use glues that would end up in your water, as that would be counter to what they are trying to do, which is to purify tap water. Please provide some specific evidence to back this claim up, as such speculation can cause undo fear, as well as reputational damage to these companies. Don't get me wrong here, I am not saying that this isn't possible, but is very unlikely.
    • trents
      2 months in... struggling with symptoms

      By trents · Posted

      Welcome to the forum, @aperlo34! You said you had a colonoscopy "ordered" in July? Has that procedure happened yet? A colonoscopy cannot be used to diagnose celiac disease so I assume the order for the colonoscopy is to check for something else. The procedure used to diagnose celiac disease is the endoscopy. So, I assume you have had blood antibody testing done and it was positive and then you had an endoscopy/biopsy done to confirm those results? That is the normal process for diagnosing celiac disease. Have your constipation/irregularity problems improved since going gluten free? Some of the continuing symptoms you describe would seem to fall into the category of neurological effects (muscle twitching, shakiness, weakness and headaches) and others such as dry eyes, fatigue, stiffness and joint aches sound like they could be autoimmune effects. Are you taking any high potency to vitamin and mineral supplements? Celiac disease often/typically results in vitamin and mineral deficiencies due to malabsorption from the damage to the small bowel lining it causes. I note that your vitamin D levels are barely within normal range and the only B vitamin testes is B12. The B vitamins and D3 are very important to neurological health. And the several B vitamins all work together synergistically. So, they all need to be up to snuff, not just B12. I would suggest starting on D3 supplementation in the amount of about 5000 IU daily and also a high potency B-complex. Costco's Nature Made and Kirkland brand products are good quality and priced well and usually gluten free (and will state so on the packaging). Realize also that gluten free flours and facsimile foods are not fortified as are their FDA mandated gluten equivalents. So, when you cut out gluten, you cut out a significant source of vitamins. One thing to be aware of is that Celiac disease is an autoimmune disorder and autoimmune disorders tend to cluster. That is, when you have one you there is a good chance you will develop others in time. I don't wish to alarm you because I know you have said you already struggle with heath anxiety but many of your symptoms make me think you have some other autoimmune condition going on in addition to celiac disease. Have you been checked for Sjogren's or lupus for instance?  Finally, I am including an article that is helpful to newly diagnosed celiacs in getting a head start on the learning curve of eating gluten free:   
×
×
  • Create New...