Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Discussing Endoscopic Procedure With 7 Year Old


jsmasudek

Recommended Posts

jsmasudek Rookie

My seven year old son will be undergoing an endo procedure soon. He had this done 4 years ago when he was diagnosed but does not remember it. Anyone know of any books/pamphlets on explaining this to a child of his age?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Be careful about explaining it...to someone of any age it can be scary to know what will actually go on...try not to tell him what goes on technically, but just that he'll be going to the hospital and the doctors will make him go to sleep and then they'll do a test to make sure he's ingesting no gluten (is that way the endo??) and then he'll wake up and go home.

gf4life Enthusiast

It probably wouldn't be a bad thing to let your son know that they will be puting a thin plastic tube down his throat with a tiny camera in it to take pictures. That shouldn't scare him, and he might even think it is cool. My son did!

If it were me I would let him know that it won't hurt, he can still breathe and swallow while the tube is in his throat and that he will be asleep during it, but that the tube might rub on his throat a little bit and if it is a little sore after he wakes up that you can give him some medicine that can help it not be sore.

My kids are pretty brave I guess, but I also believe that they need to know at least some of the details of what is going to happen to them during any medical procedure, from routine tests, more invasive tests like MRI's, CT scans, Endoscopy and Colonoscopy exams (all of which at least one of my kids have had) and even surgeries (two had their tonsils out by 7 years old and the other has had 2 sinus surgeries, the first at 7 years old). I feel that the more aware they are of what is going to happen to them, then the less scared they are. I do NOT go into extreme detail and I don't tell them the risks of complications, just a basic description of the procedure and how they might feel afterwards.

You should decide what is best for your son, based on you knowledge of how he reacts to things like this. You know your son better than anyone else.

God bless,

Mariann

Guest nini

may I ask why he's going to have another one after 4 years?

Hennessey Rookie
My seven year old son will be undergoing an endo procedure soon.  He had this done 4 years ago when he was diagnosed but does not remember it.  Anyone know of any books/pamphlets on explaining this to a child of his age?

<{POST_SNAPBACK}>

I had it done a couple of months ago to widen my esophagus, unrelated to celiac, and I didn't recall anything. I think if it were my child I would just say the doctor is going to take a peek in your mouth, serioulsy by the time the medication kicks in he won't even remember a thing. I don't have any recolection of any tube in my throat at all. I was just laying on my side and that was it.....your son will be fine, I don't know if you can be in the room, if you can that would be great and I hope you can be, but seriously once they make him groggy he won't even remember a thing....but i know just the getting him there is the tough part, I have a 10, 3 and 1 yr old, all have been hospitalized for one thing or another. It's not easy, but he will be ok and you will be ok too.

Hennessey Rookie
I had it done a couple of months ago to widen my esophagus, unrelated to celiac, and I didn't recall anything.  I think if it were my child I would just say the doctor is going to take a peek in your mouth, serioulsy by the time the medication kicks in he won't even remember a thing.  I don't have any recolection of any tube in my throat at all.  I was just laying on my side and that was it.....your son will be fine, I don't know if you can be in the room, if you can that would be great and I hope you can be, but seriously once they make him groggy he won't even remember a thing....but i know just the getting him there is the tough part, I have a 10, 3 and 1 yr old, all have been hospitalized for one thing or another.  It's not easy, but he will be ok and you will be ok too.

<{POST_SNAPBACK}>

I just had to add that you have to take into consideration he is 7, no matter what other advice you may get from well meaning people, he is just 7, a baby. The less said the best...take it from a teacher, special ed, preschool, elementary, mom...and you know your child best....7yr old doesn't need all that technical information....again my advice say as little as possible to keep him comfortable and once they make him feel comfortable the rest in in the hands of the specialist, and it will be about 10-15 minutes max that he won't even remember, best to keep it simple. :D

jsmasudek Rookie
may I ask why he's going to have another one after 4 years?

<{POST_SNAPBACK}>

Thanks to all who have replied. Matthew is a very curious type of boy and will need some inormation. As for why the test, his original test should some results not typical with Celiac. There is some concern that he may have something else going on as well as he continues to have sme stomach pain and recurrent soft bowel movement. His movements have never been what I would consider normal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,917
    • Most Online (within 30 mins)
      7,748

    Jo Pelly
    Newest Member
    Jo Pelly
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • jadeceoliacuk
      Thank you Cristiana. I will check them out.
    • knitty kitty
      Hi, @Dawn R., I get gluten ataxia.  It's very disconcerting.   Are you still experiencing gluten ataxia symptoms eating a gluten free diet?  
    • knitty kitty
      @Jordan Carlson, Sorry to hear you're having a bumpy journey right now.  I've been there.  I thought I was never going to stop having rashes and dermatitis herpetiformis breakouts and hives, oh, my! I went on a low histamine Autoimmune Protocol Diet (AIP diet).  It gave my digestive system time to heal.  After I felt better, I could add things back into my diet without reactions.   In Celiac Disease, we make lots of histamine as part of the autoimmune response.  There's also histamine in certain types of food.  Lowering histamine levels will help you feel better.  Foods high in histamine are shellfish, crustaceans, fermented foods like pickles and sauerkraut, canned foods, processed meats and smoked meats like bacon and ham, and aged cheeses.  Grains and legumes can also be high in histamine, plus they contain hard to digest Lectins, so they go, too.  Cutting out corn made a big improvement.  Some Celiacs react to corn as though it were gluten.   Dairy can be problematic, so it goes.  Some Celiacs have lactose intolerance because their damaged villi cannot make Lactase, the enzyme that digests lactose, the carbohydrate in dairy, while some Celiacs react to Casein, the protein in dairy that resembles gluten.  Dairy is high in iodine, which makes dermatitis herpetiformis flare up badly.  Eggs are high in Iodine, too.  I even switched to pink Himalayan salt, instead of iodized salt.  Avoid processed gluten free facsimile foods like cookies and breads because they have lots of additives that can cause high histamine, like carrageenan and corn.   Yes, it's a lot.  Basically veggies and meat and some fruit.  But the AIP Paleo diet really does help heal the intestines.  My digestive tract felt like it was on vacation!   I'd throw meat and veggies in a crock pot and had a vacation from cooking, too.  Think easy to digest, simple meals.  You would feed a sickly kitten differently than an adult cat, so baby your tummy, too! Take your vitamins!  It's difficult to absorb nutrients from our food when everything is so inflamed.  Supplementing with essential vitamins helps our absorption while healing.  Niacin B3, the kind that flushes (nicotinic acid -not the same as nicotine in cigarettes, don't worry!) REALLY helps with the dermatitis herpetiformis flares.  Niacin and Thiamine make digestive enzymes so you can digest fats.  Add in healthy Omega Three fats, olive oil, flaxseed oil, avocado oil, coconut oil.  Vitamin D helps lower inflammation and regulates the immune system.  Thiamine helps mast cells not to release histamine at the slightest provocation.  Benfotiamine, a form of Thiamine B1, has been shown to promote intestinal healing.  Pyridoxine B6, Riboflavin B2, Vitamin C and Vitamin A help heal the digestive tract as well as the skin.  Our outside skin is continuous with our digestive tract.  When my outside skin is having breakouts and hives, I know my insides are unhappy, too.   Talk to your doctor and nutritionist about supplementing.  Blood tests are NOT accurate measurements of B vitamin deficiencies.  These tests measure what's in the bloodstream, not what is inside cells where vitamins are used.  Supplementing with essential vitamins and minerals made a big difference with me.  (My blog has more of my bumpy journey.) Let me know if you have more questions.  You can get through this!    
    • Jordan Carlson
      Hey there @knitty kitty! Thanks for checking in. Things are not really going as planned for myself unfortunately. As much as I feel better than I did while eating gluten, I still seem to be reacting to trace amounts of gluten in gluten free foods. I constantly break out in rashes or hives after eating. My dermatitis is constantly flaring up. I take every precaution possible to be as gluten free as I possibly can and have simplified my diet as much as I possibly can but still cant get past this point in my recovery. If this is the case, I believe it would be considered non-responsive Celiac Disease or Refractory Celiac Disease. The only time I have ate gluten purposely in the last year was for the 3 weeks leading up to my endoscopy for diagnosis. Aside from that, the last year has been a constant disappointing effort to be gluten free with the same result of getting stuck at this point. I have a appointment with my doctor next week to discuss some treatment options and what the next steps are in trying to get my body to push past this point.   I will keep you posted! 
    • knitty kitty
      @GardeningForHealth, How are things going for you?   I found another topic you might be interested in... To Be or Not to Be a Pathogen: Candida albicans and Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6906151/
×
×
  • Create New...