Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Have To Vent....


Hennessey

Recommended Posts

Hennessey Rookie

My hubby gave my son pasta that was in the fridge left over from this afternoon. I guess I have to put it on BIG BOLD LETTERS NOT FOR NIKOLAS>...

oh, please , i can't even leave the house without worrying...what is up with that...I am supposed to go away Wed night to the cape until Fri with the other 2 kids....oh like now I am going to be able to relax. What was he thinking? I specifically said make him chicken, brocoli and a fruit, and he gave him chicken, wheat pasta and nothing else....UGH!!!!! just had to get that out...no need to reply..... :angry::angry::angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast

Been there...

Two incidents that come to mind are:

My husband is Filipino, went to the Filipino market and got some wheat based treats. Then as he is standing in the kitchen eating it he offers a bite to my 4 year old daughter who just started the diet and didn't know better. She takes a bite just as I am walking into the room. Boy did I let him have it. His response was "I forgot". <_<

Then more recent was February. I had surgery and a few days later I am recovering in bed, and he takes the kids to a family party out of town. I had packed food for them to eat. Instead of him feeding the kids what I packed he fed them chicken and rice at the party. (He didn't even tell them there was gluten-free cup cakes for them in the bag and it was a b-day party!) Now of course the chicken was marinated in soy sauce (they are Filipino remember) and all 3 kids came home sick. So there I was recovering from surgery and then I had to take care of my poor sick kids. :blink:

Sometimes it can be stressful, but the good news is that he is getting better. It just takes time and there will always be mistakes along the way.

God bless,

Mariann

Hennessey Rookie
Been there...

Two incidents that come to mind are:

My husband is Filipino, went to the Filipino market and got some wheat based treats.  Then as he is standing in the kitchen eating it he offers a bite to my 4 year old daughter who just started the diet and didn't know better.  She takes a bite just as I am walking into the room.  Boy did I let him have it.  His response was "I forgot".  <_<

Then more recent was February.  I had surgery and a few days later I am recovering in bed, and he takes the kids to a family party out of town.  I had packed food for them to eat.  Instead of him feeding the kids what I packed he fed them chicken and rice at the party.  (He didn't even tell them there was gluten-free cup cakes for them in the bag and it was a b-day party!)  Now of course the chicken was marinated in soy sauce (they are Filipino remember) and all 3 kids came home sick.  So there I was recovering from surgery and  then I had to take care of my poor sick kids.  :blink:

Sometimes it can be stressful, but the good news is that he is getting better.  It just takes time and there will always be mistakes along the way.

God bless,

Mariann

<{POST_SNAPBACK}>

well you are so nice to reply...I am still p'd off though!! Seriously, my son has an epi-pen for wheat, eggs, dairy, soy, certain fruits, etc.....I can't take it anymore. I know good days and bad, but what is with men!!! No offense I'm sure not all are like this although I have not met any... ;) Just very frustrated! And as mad as I am I really didn't give it to him, not like I wanted to, cause I know he was just being stupid and didn't know...but the way I look at it, if you don't know don't do it. I specifically said what to give to him!! I mean that is bad enough that I had to even tell him what to feed him! UGH!! It is nice to know that I am not alone, although it is sad to know in a way that I am not alone......certain people need to get with it!! Thanks for the reply, although you didn't need to, I know I am impossible right now and just needed to vent, but i do appreciate your reply.

Guest nini

I feel ya... I'd be seriously pissed too. My DH was kinda unconcerned at first about having to be so vigilant on the diet until one night when he was watching her while I was out and he fed her something with gluten and she got seriously ill... Ever since then he's been very vigilant. I dunno what it takes for some people to "get it"...

KaitiUSA Enthusiast
well you are so nice to reply...I am still p'd off though!!  Seriously, my son has an epi-pen for wheat, eggs, dairy, soy, certain fruits, etc.....I can't take it anymore.  I know good days and bad, but what is with men!!!  No offense I'm sure not all are like this although I have not met any... ;)   Just very frustrated!  And as mad as I am I really didn't give it to him, not like I wanted to, cause I know he was just being stupid and didn't know...but the way I look at it, if you don't know don't do it.  I specifically said what to give to him!!  I mean that is bad enough that I had to even tell him what to feed him! UGH!!  It is nice to know that I am not alone, although it is sad to know in a way that I am not alone......certain people need to get with it!!  Thanks for the reply, although you didn't need to, I know I am impossible right now and just needed to vent, but i do appreciate your reply.

<{POST_SNAPBACK}>

Wow did he have to use the epipen? Maybe your husband either needs to play a bigger role and learn this or you should say maybe we should only keep food in the house that your son can have if he is going to feed him stuff he can't have.

That would make me mad too so I completely understand where you are coming from. Did he not know it was wheat or something? Why would he give it to him? It's like hello-anybody up there.

Hennessey Rookie
Wow did he have to use the epipen? Maybe your husband either needs to play a bigger role and learn this or you should say maybe we should only keep food in the house that your son can have if he is going to feed him stuff he can't have.

That would make me mad too so I completely understand where you are coming from. Did he not know it was wheat or something? Why would he give it to him? It's like hello-anybody up there.

<{POST_SNAPBACK}>

ugh...he says he thought it was just for Nikolas since it was in a tupperware container, he didn't think I saved anything unless it was for Nikolas. I am not a big left over person, so I can kind of see his point (but not really). I mean if he even looked at the pasta it is clearly different looking....I'm sorry he is just not on my A-list tonight. I will get over it by tomorrow. I clearly know I am alone on this one. I am going to the cape (MA) this wed until Fri with the other two kids and I am going to fill this house with notes everywhere. Oh and no he didn't need to use epi-pen, he wouldn't have even known where to look probalby. One is in my pocketbook and the other in the diaper bag. From now on, one is taped to fridge and I said who ever takes Nikolas out has to take the other epi-pen with them....what a nightmare.

Jnkmnky Collaborator

Sharpie markers are great for labeling. I also used to use those colored circle stickers you buy to mark prices on yard sale items.... You know what I mean? I would put a colored sticker dot on my son's foods. For us the main thing to do has always been to write the kid's name on the food that was for him. Or write in great big letters..."NO...." I always, always, always tell my husband what I just labeled. I just mention it in a simple and direct way and we're good to go. I would suggest you try a shelf dedicated to the celiac kid. A low shelf so that he can also begin to see where his stuff is and reinforce your belief that this is important for him. Some kids dig the exclusive shelf and pantry privledges and it helps create a positive attitude towards this life-long disease.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

Sometimes, I think whoever wrote that book "Men are from Mars, Women from Venus" (or something along those lines.....), had incredible insight into the male psyche.

I have been celiac for years now, but hubby brings home some Granny brand butter tarts from the supermarket, and he bought the "club pack" version, LOTS of butter tarts. He says, "You can have these, right?"

DUH, HELLO, MCFLY, ANYBODY HOME?????? <_<

Men, God's anomaly..............

Karen

Hennessey Rookie
Sometimes, I think whoever wrote that book "Men are from Mars, Women from Venus" (or something along those lines.....), had incredible insight into the male psyche.

I have been celiac for years now, but hubby brings home some Granny brand butter tarts from the supermarket, and he bought the "club pack" version, LOTS of butter tarts.  He says, "You can have these, right?"

DUH, HELLO, MCFLY, ANYBODY HOME??????  <_<

Men, God's anomaly..............

Karen

<{POST_SNAPBACK}>

ah ha ha....thanks I needed that....still laughing!! :lol:

Hennessey Rookie
Sharpie markers are great for labeling.  I also used to use those colored circle stickers you buy to mark prices on yard sale items.... You know what I mean?  I would put a colored sticker dot on my son's foods.  For us the main thing to do has always been to write the kid's name on the food that was for him.  Or write in great big letters..."NO...."  I always, always, always tell my husband what I just labeled.  I just mention it in a simple and direct way and we're good to go.  I would suggest you try a shelf dedicated to the celiac kid.  A low shelf so that he can also begin to see where his stuff is and reinforce your belief that this is important for him.  Some kids dig the exclusive shelf and pantry privledges and it helps create a positive attitude towards this life-long disease.

<{POST_SNAPBACK}>

Oh you can bet I will have the sharpie out...I had already marked some things in the cabinet prior to this happening. I will mark the tupperware containers from now on as well, and verbally tell him that they have been marked. After last night I think he is starting to understand more. Nikolas will be 1yr in a couple of weeks and my husband can see today what external damage it caused him from having the wheat...it won't be happening again.

tarnalberry Community Regular

I think that the point of remembering to verbally tell the other person what you did is a good one. I can't think of how many times I assumed that my written instructions were obvious, only to find out that some other person didn't think so. It's happened both from my own mistakes, and from it just being the other person (as confirmed when other people *did* understand it just fine). Though remembering to do that verbal communication can be tough some times, 'cause it just seems so darned obvious to us! :-)

I'm glad to hear, though, that he's starting to understand the seriousness of it, and see what the effects are.

Joan L. Hawkins Newbie
well you are so nice to reply...I am still p'd off though!!  Seriously, my son has an epi-pen for wheat, eggs, dairy, soy, certain fruits, etc.....I can't take it anymore.  I know good days and bad, but what is with men!!!  No offense I'm sure not all are like this although I have not met any... ;)   Just very frustrated!  And as mad as I am I really didn't give it to him, not like I wanted to, cause I know he was just being stupid and didn't know...but the way I look at it, if you don't know don't do it.  I specifically said what to give to him!!  I mean that is bad enough that I had to even tell him what to feed him! UGH!!  It is nice to know that I am not alone, although it is sad to know in a way that I am not alone......certain people need to get with it!!  Thanks for the reply, although you didn't need to, I know I am impossible right now and just needed to vent, but i do appreciate your reply.

<{POST_SNAPBACK}>

my son is 10 and can't eat EGGS, SOY, CORN, WHEAT 100%. 32 other foods all together.. tomatoes, watermeleon, etc. Sometimes I go nuts. :huh:

I have to think he has his eye's to see and arms and legs and can walk and talk :D

Joan

Rachel--24 Collaborator
I have been celiac for years now, but hubby brings home some Granny brand butter tarts from the supermarket, and he bought the "club pack" version, LOTS of butter tarts.  He says, "You can have these, right?"

DUH, HELLO, MCFLY, ANYBODY HOME??????  <_<

<{POST_SNAPBACK}>

:lol: Ha-Ha...that was funny!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to kate g's topic in Gluten-Free Restaurants
      1

      Nandos improper preparion celiac childrens food

    2. - Scott Adams replied to Di Wallace's topic in Related Issues & Disorders
      2

      Mucus discharge

    3. - Scott Adams replied to Captain173's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused with test results

    4. - Captain173 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused with test results

    5. - Beverage replied to cameo674's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,827
    • Most Online (within 30 mins)
      7,748

    Gary Briz
    Newest Member
    Gary Briz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
    • Scott Adams
      I had this symptom when I was diagnosed. Are you sure that your diet is 100% gluten-free?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):      
    • Scott Adams
      Based on your results, it seems unlikely that you have celiac disease. A negative endoscopy and the absence of HLA-DQ2/DQ8 genes (the primary genetic markers for celiac) strongly suggest you do not have the condition. However, the elevated TTG-IgA (22) could indicate a temporary immune response or another issue, such as a different autoimmune disorder, intestinal infection, or even a lab anomaly. The presence of DQA1*05 alone is not diagnostic for celiac. Meeting with an allergist and GI specialist is a good next step to explore other potential causes for the high antibodies, such as non-celiac gluten sensitivity or other immune-related conditions. Keep a detailed food and symptom diary to help guide further testing and discussions with your doctors. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Captain173
      I had celiac panel done back in October, only ttg iga came back high  (22 with positive being over 3). Endoscopy done in January, it was  negative. Genetic test done after endoscopy, negative for both hla dq2 & dq8. Did show positive for dqa1*05.  Scheduled to meet with an allergist next week. Not scheduled to meet with GI specialist till after allergist. Confused if I have celiac or what caused high the antibodies originally if I do not.
    • Beverage
      Tums is an antacid.  Calcium (also vitamin D) need it acidic for absorption, so you're not really getting any calcium benefit.  Try DGL, it coats rather than counteracts acid. You need acid anyway to digest and get those vitamins. It's usually not too much acid that causes heartburn, it's not enough acid which causes food to rot and ferment in the stomach. Try DGL, everyone I've gotten to actually try it has had great relief. https://www.amazon.com/dp/B001IAJW0K  
×
×
  • Create New...