Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free Vegetarian, Menopause & Weight Gain


JudyZ

Recommended Posts

JudyZ Newbie

Hi there -

I'm Judy, and new to this forum. I'm wondering if folks here can give my any leads about my body's stubborn refusal to loose weight.

I've been gluten free over 1 1/2 years now. I tested positive for anti-gliadin antibodies, and began to feel tremendously better within a couple of weeks of going off gluten. I've not had any other testing for celiac, so I can't say for sure I have it, but I know from my diet change that I've hit what's been bothering me. One bit of gluten...and I get horrendous bloating, joint pain, fatigue, and diarrhea. I had been treated for giardia about a year before going off gluten, and knew from that experience that I could not longer tolerate any milk - I get diarrhea, bloating & cramps within an hour of ingestion (I later tested positive for milk allergy). The only animal products I consume are eggs.

I was lean, fit, and athletic before I got giardia, and after recovery from that (I lost 14 pounds from that) I started gaining weight. By the time I was told I had "gluten sensistive enteropathy" (my doc's term) a year later, I had re-gained the 14 pounds and put on another 10. I tested below threshold twice for thyroid problems (I had excessively long menstrual periods before I went into menopause). My naturopath did other testing and treatment, and now my b12 levels, D3, and bacterial flora in my gut are all fine. I take multivitamins with iron, b12, calcium daily, and probiotics periodically.

So, if I don't do dairy, meat, and am gluten-free, eating very little processed gluten-free food (I bake), and have continued my excercise program (weight training 2x/week, 1-2 harder cardio workouts/wk, 1-2 long walks (3-5 miles) per week....why haven't I lost any weight? I eat about 2000 calories per day. I'm 172 pounds at 5'6", and am 51 years old. My clothes fit better now, but I still can't get into my pre-giardia pants. I would have thought my gut has healed by now, and that my metabolism would have recovered.

I'm grateful to know there's a community out there. It's lonely at times, when I'm surrounded by all this gluten (and meat & dairy).

In peace,

Judy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeNewB Rookie

Judy,

In order to lose weight, you should probably be eating around 1400-1500 calories per day. Stop eating those baked goods and rely on lean meats, fruits and veggies and those stubborn pounds should come right off!

domesticactivist Collaborator

I wonder about how much sugar you are eating? When I stopped thinking about sugar as just what was in sweets and reevaluated my perspective to see the sugar in all starchy things, fruits, and grains it became so clear that it was a much bigger part of my diet than I had realized.

Our family changed to the GAPS diet and while I never struggled with my weight or dieted for weight loss before, I immediately lost the 25 lbs that I'd previously thought was just the way my body would always be after having babies. The weight loss was so fast that it was almost alarming, but the minute I got to my pre-baby weight (which I hadn't seen in 12+ years), it stabilized. The weight has stayed off all year.

This diet is based on the Specific Carbohydrate Diet and is high in saturated fat, high in pasture-raised meats, poultry, eggs, and fish, high in vegetables, high in fermented foods, includes only cultured dairy, and is very low in sugar.

I've been eating wheat for a week now - the bare minimum for a gluten challenge - and I've started gaining weight back already.

My exhusband was vegan for many years and vegetarian before that, my daughter was vegetarian for 8 years, and my partner and I have both had vegetarian stints. We believed it was better for our health and the planet, but have since changed our perspectives on that.

If you get rid of grains, starchy foods, and most sugar you will probably discover that you are really, really hungry. I don't think it's probably possible for a vegetarian to cut out these foods and get enough protein and calories, especially if they don't do dairy.

burdee Enthusiast

Hi there -

I'm Judy, and new to this forum. I'm wondering if folks here can give my any leads about my body's stubborn refusal to loose weight.

I've been gluten free over 1 1/2 years now. I tested positive for anti-gliadin antibodies, and began to feel tremendously better within a couple of weeks of going off gluten. I've not had any other testing for celiac, so I can't say for sure I have it, but I know from my diet change that I've hit what's been bothering me. One bit of gluten...and I get horrendous bloating, joint pain, fatigue, and diarrhea. I had been treated for giardia about a year before going off gluten, and knew from that experience that I could not longer tolerate any milk - I get diarrhea, bloating & cramps within an hour of ingestion (I later tested positive for milk allergy). The only animal products I consume are eggs.

I was lean, fit, and athletic before I got giardia, and after recovery from that (I lost 14 pounds from that) I started gaining weight. By the time I was told I had "gluten sensistive enteropathy" (my doc's term) a year later, I had re-gained the 14 pounds and put on another 10. I tested below threshold twice for thyroid problems (I had excessively long menstrual periods before I went into menopause). My naturopath did other testing and treatment, and now my b12 levels, D3, and bacterial flora in my gut are all fine. I take multivitamins with iron, b12, calcium daily, and probiotics periodically.

So, if I don't do dairy, meat, and am gluten-free, eating very little processed gluten-free food (I bake), and have continued my excercise program (weight training 2x/week, 1-2 harder cardio workouts/wk, 1-2 long walks (3-5 miles) per week....why haven't I lost any weight? I eat about 2000 calories per day. I'm 172 pounds at 5'6", and am 51 years old. My clothes fit better now, but I still can't get into my pre-giardia pants. I would have thought my gut has healed by now, and that my metabolism would have recovered.

I'm grateful to know there's a community out there. It's lonely at times, when I'm surrounded by all this gluten (and meat & dairy).

In peace,

Judy

If you have celiac disease, you could have Hashimoto's thyroiditis or autoimmune hypothyroidism. Your TSH can be normal, but you thyroid antibodies can be positive for Hashimoto's. Did you have a full panel of thyroid tests run? What were your free T3, free T4, TPOab (thyroid antibodies) test results? What was the 'normal' range for your TSH score? What was your TSH result?

JudyZ Newbie

Thanks for the suggestions.

I only got TSH checked, not any of the others. I'll ask about more tests at my next doctor visit. My TSH was 2.75. Aside from the weight gain, I don't really have any other big symptoms of which I'm aware. I tire more easily, and retain more fluid than before, but those differences don't seem huge.

And yes, I am hungry a lot. I do track my daily protein intake, to keep it around 50 grams. Protein more than fat intake is related to perceptions of hunger. Maybe it's time to do a few days of food diary again, just to be sure I'm not eating more calories. I can see where I might be stuffing in calories when what I really need is more protein. As long as my nail beds and cuticles are in good shape, I'm getting enough protein. They're the first to go when my protein intake goes down.

Blessings to you all,

Judy

  • 1 month later...
thefreespirit Rookie

Hi Judy

I am newly diagnosed but do know something about diet. More protein in your diet should help you feel more satisfied with your food and less prone to snack on starchy carbs. Recent thinking suggests that although for many years we were told that 50g of protein is sufficient for an adult, if we eat more protein it will keep the hunger pangs at bay. That's probably what you need, as it may simply be snacking that is your problem.

Also do make sure you drink enough water. You may be a little dehydrated, which may cause your body to hang on to some fluid, which will contribute to any feelings of bloatedness and will cause temporary weight gain (fluid imbalence) and tightness on your clothing.

Blessings - FS x

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,041
    • Most Online (within 30 mins)
      7,748

    LAJAD
    Newest Member
    LAJAD
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
    • KRipple
      Hello, My husband has had issues with really bad diarreah for over nine months now. In mid November, he went to the doctor for what they thought was a bad cold, which two weeks later was diagnosed as bronchitis. A week later, in December, I had to take him back to urgent care and from there, to the emergency room cause his vitals were too low. They said he was having an Addisionan crisis and he spent five days in the ICU. Since my husband has Autoimmune Polyendocrine Syndrome Type II (type 1 diabetes, Addison's and Hashimoto's), I fought for a blood test to determine if he had Celiacs. Given the results of the test, he was told to go to a gastro for an endoscopy. It took two months to get his first appointment with the gastro. Still waiting for the endoscopy appointment. He stopped eating gluten in the hospital and has followed a gluten-free diet since. His diarreah continues to be as bad as before he stopped eating gluten. Still has a horrible cough that makes him hack. His energy is so depleted he pretty much goes to work, comes home and goes lie in bed. He is having issues regulating body temperature. He is barely eating (he's lost 20 pounds since mid-December). Body aches. Totally run down. He has been taking more prednisone lately to try to counter the symptoms.  Today, we went to his endo to discuss these things. She said to continue taking increased amount of prednisone (even though I explained that the increased dosage is only allowing him to do the bare minimum). According to the endo, this is all related to Celiacs. I am concerned because I know that both Celiacs and Addison's can have similar symptoms, but don't know if he would still be having these many symptoms (worsening, at that) related to the Celiac's after stopping gluten two months ago. If anyone in this group has a combination of Celiacs and Addison's, could you please share your experience? I am really concerned and am feeling frustrated. His primary care provider and endocrinologist don't seem to consider this serious enough to warrant prompt attention, and we'll see about the gastro.  Thanks.
    • cristiana
      Hi @Karmmacalling I'm very sorry to hear you are feeling so unwell.  Can you tell us exactly what sort of pain you are experiencing and where the pain is?  Is it your lower abdomen, upper abdomen etc?  Do you have any other symptoms? Cristiana
    • trents
      The NIH article you link actually supports what I have been trying to explain to you: "Celiac disease (celiac disease) is an autoimmune-mediated enteropathy triggered by dietary gluten in genetically prone individuals. The current treatment for celiac disease is a strict lifelong gluten-free diet. However, in some celiac disease patients following a strict gluten-free diet, the symptoms do not remit. These cases may be refractory celiac disease or due to gluten contamination; however, the lack of response could be related to other dietary ingredients, such as maize, which is one of the most common alternatives to wheat used in the gluten-free diet. In some celiac disease patients, as a rare event, peptides from maize prolamins could induce a celiac-like immune response by similar or alternative pathogenic mechanisms to those used by wheat gluten peptides. This is supported by several shared features between wheat and maize prolamins and by some experimental results. Given that gluten peptides induce an immune response of the intestinal mucosa both in vivo and in vitro, peptides from maize prolamins could also be tested to determine whether they also induce a cellular immune response. Hypothetically, maize prolamins could be harmful for a very limited subgroup of celiac disease patients, especially those that are non-responsive, and if it is confirmed, they should follow, in addition to a gluten-free, a maize-free diet." Notice that those for whom it is suggested to follow a maize-free diet are a "very limited subgroup of celiac disease patients". Please don't try to make your own experience normative for the entire celiac community.  Notice also that the last part of the concluding sentence in the paragraph does not equate a gluten-free diet with a maize-free diet, it actually puts them in juxtaposition to one another. In other words, they are different but for a "limited subgroup of celiac disease patients" they produce the same or a similar reaction. You refer to celiac reactions to cereal grain prolamins as "allergic" reactions and "food sensitivity". For instance, you say, "NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing" and "IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. I need to remind you that celiac disease is not an allergy, it is an autoimmune disorder. Neither allergy testing nor food sensitivity testing can be used to diagnose celiac disease. Allergy testing and food sensitivity testing cannot detect the antibodies produced by celiac disease in reaction to gluten ingestion.  You say of me, "You must be one of those who are only gluten intolerant . . ." Gluten intolerance is synonymous with celiac disease. You must be referring to gluten sensitivity or NCGS (Non Celiac Gluten Sensitivity). Actually, I have been officially diagnosed with celiac disease both by blood antibody testing and by endoscopy/positive biopsy. Reacting to all cereal grain prolamins does not define celiac disease. If you are intent on teaching the truth, please get it straight first.
×
×
  • Create New...