Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Off Gluten 2 Weeks!


kathrynk

Recommended Posts

kathrynk Rookie

I am STILL waiting on my blood-test results for the celiac panel. The labs came back on Wed of this past week. I have been calling daily, and they are on the Doctors desk for review. I still have not heard from him. I have a feeling it was negative because (I assume) he would have called otherwise? I will try again on Monday...

I have been off gluten for about 2 weeks now. The gas pain and bloating that occurred almost every evening has stopped! My mood is feeling better, I lost a few pounds, and my skin looks great!

I was wondering if the reynauds/sjrogrens symptoms will subside or slow down as well? Has anyone seen changes with these autoimmune issues by removing gluten? The reynauds started last year and seems to be getting progressively worse (especially with the cold weather settling in).

Also...I am still working on the thyroid stuff...I requested my test results for hashimatos, and will post them on here once I get them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Booghead Contributor

I don't think him not calling means its negative. It means the people at the office are lazy :P lol, don't know about sjrogens and gluten free but I do think most find it to improve off gluten. Thyroids are nasty things. Luck with that one too!

P.S. adorable kid in your profile pic. gotta love that curly hair B)

kathrynk Rookie

I don't think him not calling means its negative. It means the people at the office are lazy :P lol, don't know about sjrogens and gluten free but I do think most find it to improve off gluten. Thyroids are nasty things. Luck with that one too!

P.S. adorable kid in your profile pic. gotta love that curly hair B)

thank you! That is my 2 year old :) I can't bring myself to cut his curls! Thyroids are nasty-I haven't even began to figure that one out yet. I'm taking it one day at a time, and learning a ton!

IrishHeart Veteran

I am STILL waiting on my blood-test results for the celiac panel. The labs came back on Wed of this past week. I have been calling daily, and they are on the Doctors desk for review. I still have not heard from him. I have a feeling it was negative because (I assume) he would have called otherwise? I will try again on Monday...

I have been off gluten for about 2 weeks now. The gas pain and bloating that occurred almost every evening has stopped! My mood is feeling better, I lost a few pounds, and my skin looks great!

I was wondering if the reynauds/sjrogrens symptoms will subside or slow down as well? Has anyone seen changes with these autoimmune issues by removing gluten? The reynauds started last year and seems to be getting progressively worse (especially with the cold weather settling in).

Also...I am still working on the thyroid stuff...I requested my test results for hashimatos, and will post them on here once I get them.

Kathy,

Yes, many people see a remission/improvement in many other autoimmune conditions. My alleged Hashimito's before DX? --well, I do not even have it-- and I took meds for 2 years for no good reason. :angry: That was my experience, though. My thyroid is perfectly fine.

Look under the forum for RELATED Disorders or use the Search Forum up at the top of the screen and you will see that MANY people have posted about Raynaud's and Sjrogen's and Hashi's. Posting these questions under the topic "Off gluten 2 weeks" may not get you any answers as no one knows you are asking about these things in particular.

Okay? okay! ;)

Best wishes, IH

kathrynk Rookie

Kathy,

Yes, many people see a remission/improvement in many other autoimmune conditions. My alleged Hashimito's before DX? --well, I do not even have it-- and I took meds for 2 years for no good reason. :angry: That was my experience, though. My thyroid is perfectly fine.

Look under the forum for RELATED Disorders or use the Search Forum up at the top of the screen and you will see that MANY people have posted about Raynaud's and Sjrogen's and Hashi's. Posting these questions under the topic "Off gluten 2 weeks" may not get you any answers as no one knows you are asking about these things in particular.

Okay? okay! ;)

Best wishes, IH

gotcha-I am not good at forums, or where to post things. I'm learning!

IrishHeart Veteran

gotcha-I am not good at forums, or where to post things. I'm learning!

I was lost the first month or so, but people helped me :) and so, I wanted to point you in the right direction as well.

How you entitle your post --and in the right section---will get you the most responses!

If I can help you in any other way, I will. If I do not know the answer, I may know who will. These folks are the best! :)

Booghead Contributor

thank you! That is my 2 year old :) I can't bring myself to cut his curls! Thyroids are nasty-I haven't even began to figure that one out yet. I'm taking it one day at a time, and learning a ton!

I was going to say cute little boy, but my sisters little girl is always called a little boy so I thought I would tread on the side of caution. I wouldn't cut the hair either. Too cute! My little niece has curly hair but it is so thin and it doesn't grow much (shes 3 and it isn't even an inch long). I'd say a good time to cut it is when he starts running into the walls because he can't see :P Or when he can't walk because he trips on his hair. Either-or.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - PixieSticks replied to PixieSticks's topic in Super Sensitive People
      2

      Working in a kitchen with gluten?

    2. - BoiseNic replied to BoiseNic's topic in Dermatitis Herpetiformis
      11

      Skinesa

    3. - knitty kitty replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill

    4. - Scott Adams replied to Brianne03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Advantages vs. Disadvantages of having an official Celiac diagnosis

    5. - Scott Adams replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,530
    • Most Online (within 30 mins)
      7,748

    AnnmarieR
    Newest Member
    AnnmarieR
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • PixieSticks
      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
    • BoiseNic
      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
    • Scott Adams
      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    • Scott Adams
      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
×
×
  • Create New...