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mom2vanna

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mom2vanna Newbie

Hi everyone. I have been reading posts for a while now, but this is my first post. I was diagnosed with Celiac about 2 years ago. My baby is 12 months now and was just diagnosed with three positive blood tests and we had the biopsies done on Tuesday. He has been so sick and I am so relieved to finally have a diagnosis. (the stupid doctors kept telling me he was too young to be tested and his horrible diarrhea was just from the antibiotics form his millions of ear infections) Anyway, my question is, after his endoscopy, he was diagnosed with a hiatal hernia and then the doctor said he also noticed that the mucosa of the duodenum was nodular. What does that mean?? All the doctor would say was that he wouldn't know anything until the biopsy results came back. Can this be from celiac damage or cancer or what? I am going crazy with worry and the results won't be back until mon. Please, if any of you have any answers, I would appreciate it. Thanks!!


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lbsteenwyk Explorer

I read an article recently about endoscopies and biopsies in celiac disease patients. It said that occasionally there are "suggestive" changes in the duodenal mucosa that can be seen during the endoscopy with the naked eye. I can't remember if these were described as nodular. I have the article at work and I'm at home now. Anyway, I think your doctor was may have been saying that he was suspicious of celiac just because of the way the mucosa looked, but of course he doesn't want to say your son has celiac until the biopsies are examined microscopically.

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    • ZandZsmom
      Are you using the same mixer that you used for your gluten containing baking? That could be your culprit.
    • trents
      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Thank you for the reply. It was the TTG IGA that was within normal limits
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