Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going Dairy Free


Booghead

Recommended Posts

IrishHeart Veteran

Thanks for all the input everyone. I think I will start dairy light. Stil use small amounts of butter and milk in baking products this week. Next time we go grocery shopping we'll buy some dairy free milk. Is silk a brand anyone uses? I see it all the time.

Hon, dairy LIGHT won't help you.

Take it OUT for awhile. Like a month...then add it back in later.

I'd skip the Silk soy milk.

Use coconut or almond milk.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celtic Queen Explorer

Just to clarify, for me I plan on going full dairy free after the holidays. I'm doing dairy light until then. I just didn't want to add one more thing on my plate this time of year. And my problems with it are annoying, but nothing I can't live with for a month. But come January 1st, I'm going fully dairy free. But for you it sounds like this is a lot more serious, so you may want to consider going straight to dairy free.

As for the Silk soy milk, I agree with IrishHeart. Skip it. I think it's pretty gross tasting myself, unless I get the vanilla flavored, which kind of disguises it. I much prefer the almond milk. It costs a little more but tastes so much better. I haven't tried the coconut yet. I also like the rice milk.

Korwyn Explorer

Hi Booghead,

I sympathize. Giving up cheese was (initially) for me the worst part of giving up dairy. I think after my initial few months of trying to cope with everything when I discovered I really did have to drop dairy it was harder than the gluten. At least with the gluten I started feeling better immediately. With the dairy there wasn't the dramatic improvement from dying to living. :) But I tested positive for IgA to beta-casein protein present in cow's milk.

I fell in love with goat cheese, but not goat milk (bleah :P ) and goat cheese is really expensive.

But...on that note...about six months ago I discovered (through a long story that I won't go into here) that I cannot tolerate pasteurized cow's milk. I can eat unpasteurized (cow) butter, cream, milk, and cheese to my hearts content.

I think that Open Original Shared Link contains part of the answer. Scroll down to the section: Nutritional Differences: Raw Milk and Pasteurized Milk.

Now all of that said, please note that the Federal Food and Drug Administration advises that people do not consume pasteurized dairy as they believe it carries significant health risks. I'm telling you what I have found for my personal health and well-being.

I will tell you that I still cannot tolerate pasteurized dairy much at all. If I have been eating or drinking raw milk in the previous few hours I can get away with some pasteurized dairy (I believe due to the presence of some small amounts of enzymes in by system) but if I haven't been, pasteurized dairy induces violent projectile vomiting within a short period of time (minutes to a couple hours depending on quantity).

MenHen Rookie

I completely sympathize! I was so excited, because I didn't think I had a lactose problem. Now I realize I do. It is only minor as far as I can tell and am very hopeful its just temporary and not casein. My big question - Is there a replacement for sour cream? I love sour cream.

I watched an interesting movie on Netflix the other night called "Forks Over Knives." Basically the movie supports a plant-based, vegan diet. But one of the interesting things in the movie was how dairy really is bad for us. We are the only species that drinks the milk of other animals. And countries that have the highest milk intake, like the U.S., actually have one of the lowest rates of calcium absorption. They talk about how this big push for dairy being an important part of our diets was created by marketing done by the dairy council. And that it, just like wheat, is not really necessary to have a healthy diet.

I will have to check out that movie. I have said for over awhile now that dairy is very unncessary for us and that it was all a marketing ploy for $$. Of course, I love dairy. I could care less about milk, but all the cheeses and sour cream - yum.

MenHen Rookie

Well, as it turned out, they were not "false positives" were they? :rolleyes: Perhaps the doctor just 'believes' there are false positives and that makes them so?

That is such a crazy article! Maybe it will help someone though. I think he said that to make his money. He had done all this work for her, but he most likely needed to see her to make the money!

Celtic Queen Explorer

Interesting link about the unpasturized milk. They sell it at one of the farmer's markets here and they have to label it "not for human consumption" because of the regulations. But of course everyone is buying it to drink it. Our ancestors survived drinking it without it killing them.

MenHen, do check out the movie. It was very interesting. I'm probably too much of a meat eater to go vegan, but it really did make me think that I need to cut back on the amount of meat and dairy I eat. They had one woman on there who had her breast cancer go into remission by eating a plant based diet. She was in her 60s and training for the iron man triathalon. And there was an interesting study linker cancer to diets in China that they talk about in the movie.

Bettina Newbie

So, I've been gluten free for about 10 months, and have noticed some random stomach pains here and there, but nothing worth really doing anything about until the other night ..I was having horrible stomach pains (very similar to when I was eating gluten) for almost an entire day, getting worse as the day went on. So, I thought back on what I ate, and came to the conclusion that it must be some kind of dairy issue. (I am absolutely positive I didn't come in contact with any gluten.) All I had eaten that day and the day before were dairy products (really, lots of ice cream, butter, and milk :P).

So, I decided to try going off dairy for a week and then eating a decent amount of it again to see if I get sick. Question is, should I wait longer than a week? If so, how long?

I've cut out absolutely everything dairy related. Cheese, butter, milk ..and it's driving me crazy! But I want this test to work, so I'd rather wait another week now as opposed to later.

---

Also, a kind of unrelated question: Does anyone get weird cravings for the texture of regular bread/baked goods? Like, I'll watch somebody eat a muffin and FEEL the texture of that muffin in my mouth, as if I were just about to eat it/currently eating it. It's weird and frustrating and I really would like it to go away. I grew up on bread, pizza, and cheese pretty much. So the diet I grew up with has been almost completely eliminated, and it's having this weird effect on my body. Anyone have a similar feeling?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Chad Sines Rising Star

I get the texture issue. I often crave the feeling of bread for a sandwich or a nice tortilla. Too many of the substitutes taste too unnatural for me to appreciate.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,159
    • Most Online (within 30 mins)
      7,748

    Elaine Gilbert
    Newest Member
    Elaine Gilbert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Did your symptoms improve after going on a gluten-free diet?
    • Scott Adams
      Thank you for sharing your genetic test results and background. Your results indicate you carry one half of the DQ2 heterodimer (DQA1*05), which is associated with a very low celiac disease risk (0.05%). While most celiac patients have either DQ2 or DQ8, these genes are also present in people without celiac disease, so the test alone doesn’t confirm a diagnosis. Since you’ve been gluten-free for 10 years, traditional diagnostic methods (like endoscopy or blood tests) would not be reliable now. If an official diagnosis is important to you, consider discussing a gluten challenge with your doctor, where you reintroduce gluten for a period before testing. Alternatively, you could focus on symptom management and dietary adherence, as your gluten-free diet seems to be helping. Consulting a gastroenterologist or celiac specialist could provide further clarity.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      @cvz Thank you for sharing your daughter’s story. It sounds like she is managing multiple complex conditions with great care and diligence. It’s encouraging to hear that she is compliant with her gluten-free diet and that her Addison’s disease symptoms are under control. The addition of electrolytes seems like a thoughtful suggestion, especially given her fluid intake. It’s also reassuring that she hasn’t shown noticeable symptoms from accidental gluten exposure, though it’s understandable how challenging it can be to monitor for such incidents. The unexplained high lipase levels are intriguing—perhaps further investigation or consultation with a specialist could provide more clarity. Wishing you both continued strength and success in managing her health. Please keep us updated on her progress!
    • Kj44
      Hello I received this in a genetic lab test I requested from my provider.    The patient is positive for DQA1*05, one half of the DQ2 heterodimer. The celiac disease risk from the HLA DQA/DQB genotype is approximately 1:1842 (0.05%). This is less than the 1% risk in the general population. Allele interpretation for all loci based on IMGT/HLA database version 3.55 HLA Lab CLIA ID Number 34D0954530 Greater than 95% of celiac patients are positive for either DQ2 or DQ8 (Sollid and Thorsby, (1993) Gastroenterology 105:910-922). However these antigens may also be present in patients who do not have Celiac disease.   Some background, I have been eating gluten free for about 10 years now. I have never had an official celiac diagnosis due to endoscopy and labs tested after I had already been eating gluten free for over 1 year. I was constantly sick and told you slowly remove foods and see what effects my symptoms. I have also come to realize that I have other symptoms of celiacs and recently requested the genetic testing shown above.    I am looking to see if anyone has other recommendations for testing or just to clarify the results for me as I feel the official diagnosis could be helpful but I am not positive that it is even true for me. 
    • cvz
      My daughter, age 48, has Down syndrome, hypothyroidism, Addison's disease, and Celiac disease, which was diagnosed based on blood tests last July.  After a small intestine biopsy last fall, we were told that she has severe celiac disease.  She is taking both levothyroxine and leothyronine for her hypothyroidism and both hydrocortisone and fludrocortisone for Addison's disease.  She also takes Folic acid, magnesium, vitamin B-12, DHEA (DAGA), and a multivitamin.  In July, she started on a gluten-free diet and is very compliant.  She has had constipation and diarrhea issues all her life and now controls the constipation with Miralax, prunes, and apricots.  Shel has only very occasional syncopes or vasovagal events and muscle aches in her upper back and neck.  She drinks 4-6 or more 12 oz bottles or of liquid per day.  Her doctor has just suggested adding electrolytes to one of those bottles daily.   We are sorry to learn about the issues you are having and would like to stay in touch.  We do not know anyone else with both Addison's disease and celiac disease.  So far, she has no recognizable symptoms.  We are doing our best to keep her gluten-free, but have no way of knowing if she has had an exposure to it unless we catch it ourselves.  For example, a few weeks ago, a restaurant mistakenly breaded her fish, and I did not notice it until she had eaten most of it.  She had no identifiable symptoms of the exposure then or days later. By the way, the reason she was screened for Celiac disease was that her blood lipase levels were unexplainably high.  They still are.  We have no idea why.    
×
×
  • Create New...