Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Celiacs In Blairsville Pa Area?


ravenwoodglass

Recommended Posts

ravenwoodglass Mentor

Hi, I have a 22 yr old son who has been gluten-free for over 2 years. It remains to be determined how thrilled he is with me when he finds out I did this. I am NOT posting to find him romance, (he can take care of that fine himself) but it would be nice if there is a celiac or 2 at wyotechs campus or vicinity for ya'all to maybe get together. He is a 'motorhead', also into art, computer games and photograpy. He is an avid pool player and was a member of the APA when he lived in NJ. He is respectfull and polite and while he can be very quiet when he firsts meets people he relaxes quickly. He does not smoke or do drugs and is a very light drinker, and yes, I know I'm Mom but we talk extensively. Anyway any of us out there in his age range?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I'm 18 but I live about 3 hours away in MD. Always looking for other celiacs my age to hang out with as friends. I have relatives up in PA so I am up there sometimes too. :D

judy05 Apprentice
I'm 18 but I live about 3 hours away in MD. Always looking for other celiacs my age to hang out with. I have relatives up in PA so I am up there sometimes too.  :D

<{POST_SNAPBACK}>

I'm not young or single but I live in the area. Just wanted to let you know that a doctor in Indiana, Pa. has diagnosed at least 200 people in the past year or so and they have Celiac Support meetings at the Indiana Hospital, which isn't very far from Blairsville. They also have a new terrific Health Food Store which carries a lot of gluten-free foods, just thought he might like to know.

ravenwoodglass Mentor
I'm not young or single but I live in the area. Just wanted to let you know that a doctor in Indiana, Pa. has diagnosed at least 200 people in the past year or so and they have Celiac Support meetings at the Indiana Hospital, which isn't very far from Blairsville. They also have a new terrific Health Food Store which carries a lot of gluten-free foods, just thought he might like to know.

<{POST_SNAPBACK}>

Thanks for your reply. Do you know the name of the store and the street it's on? Also do y'all have Wegmans in PA? I wish every company would label their gluten-free foods. It would make life so much easier. Best wishes.

judy05 Apprentice
Thanks for your reply. Do you know the name of the store and the street it's on? Also do y'all have Wegmans in PA?  I wish every company would label their gluten-free foods. It would make life so much easier. Best wishes.

<{POST_SNAPBACK}>

I'll call tomorrow to find out, it's posted at my GI doc's office.

  • 1 month later...
Guest The Weasel

I live about forty minutes from Indiana, PA which is close to Blairsville. I go to the University of Pittsburgh at Greensburg campus and am 21 years old. I'm also interested in knowing about the doctor and food store in Indiana as there's not much around here. We have an East End Food Co-Op on the outskirts of Pittsburgh, you can take Route 22 all the way from Indiana to there. There's also a store called Nature's Way in Greensburg near my campus. Also, Giant Eagle the local grocery chain has started to incorporate gluten-free/wheat-free foods into their special foods/vegetarian/organic section so if he has one of those near he could check into that.

  • 2 weeks later...
ravenwoodglass Mentor
I live about forty minutes from Indiana, PA which is close to Blairsville.  I go to the University of Pittsburgh at Greensburg campus and am 21 years old.  I'm also interested in knowing about the doctor and food store in Indiana as there's not much around here.  We have an East End Food Co-Op on the outskirts of Pittsburgh, you can take Route 22 all the way from Indiana to there.  There's also a store called Nature's Way in Greensburg near my campus.  Also, Giant Eagle the local grocery chain has started to incorporate gluten-free/wheat-free foods into their special foods/vegetarian/organic section so if he has one of those near he could check into that.

<{POST_SNAPBACK}>

Thanks for your reply, I will be sure to let him know about golden eagle. Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,355
    • Most Online (within 30 mins)
      7,748

    Nebulae77
    Newest Member
    Nebulae77
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Lynnard
      Thank you - that makes perfect sense and I understand. celiac disease is an autoimmune disease which will cause further damage while gluten sensitivity is different. Based on my symptoms and bloodwork, I am almost certain I have celiac disease.  I kind of hate to hope for a positive biopsy but a negative one would be frustrating for sure. Regardless, I have done a lot of research on gluten-free diet and am prepared to begin a new lifestyle journey - with a lot of questions along the way.  I appreciate your information and advice! 
    • trents
      Let's talk about terminology for the sake eliminating (as much as possible) confusion. Unfortunately, the terms "gluten sensitive" and "gluten intolerant" have, historically, been used indiscriminately. There are two primary categories of gluten disorders whose "official" terms are 1. celiac disease and 2. Non Celiac Gluten Sensitivity or NCGS for short.  I believe there is an evolution toward using the term "gluten intolerance" to refer to celiac disease and "gluten sensitive" to refer to NCGS. I say that because the words "gluten sensitivity" are actually found in the official medical term for the non celiac medical disorder involving gluten. Does that make sense? The difference between celiac disease and NCGS is that celiac disease causes inflammation in the small bowel lining and (over time) does damage to it so that it becomes inefficient in absorbing nutrients from what we eat. This is the area of the intestinal track where all of our nutrients are absorbed. Of course, this can lead to any number of other medical problems. NCGS, on the other hand, does not cause inflammation or damage to the lining of the small bowel and therefore does not produce the antibodies that celiac disease antibody tests look for. Neither will NCGS, therefore, produce a positive biopsy result. NCGS and celiac disease, however share many of the same symptoms in the area of GI distress and NCGS is 10x more common than celiac disease. There is, at the present time, no defining test for NCGS so an NCGS diagnosis is arrived at by first eliminating celiac disease for which we do have tests for. Having said that, some experts believe that NCGS can be a precursor to celiac disease.  Yes, you are correct in stating that both conditions require a gluten free diet.  So, in the absence of official testing for celiac disease (and official testing done under the proper conditions) a person who is experiencing distress when consuming gluten cannot be certain whether they are dealing with celiac disease or NCGS. Not to have an official diagnosis of celiac disease while actually having the condition makes it difficult for some folks to stay on the gluten free bandwagon. It's just the psychology of the situation and wanting to rationalize away a very inconvenient and socially isolating medical condition.
    • Lynnard
      Thank you!  This is super helpful and confirms everything I have read. I was definitely eating lots of gluten before both testing and endoscopy. If the biopsies do come back negative, I'm wondering how conclusion/distinction is made between celiac and gluten intolerance is made.  Or does it matter because presumably recommendation of gluten-free diet will be the protocol??  
    • trents
      You are welcome! We frequently get similar comments. Knowledge about celiac disease in the medical community at large is, unfortunately, still significantly lacking. Sometimes docs give what are obviously bum steers or just fail to give any steering at all and leave their patients just hanging out there on a limb. GI docs seem to have better knowledge but typically fail to be helpful when it comes to things like assisting their patients in grasping how to get started on gluten free eating. The other thing that, to me at least, seems to be coming to the forefront are the "tweener" cases where someone seems to be on the cusp of developing celiac disease but kind of crossing back and forth over that line. Their testing is inconsistent and inconclusive and their symptoms may come and go. We like to think in definite categorical terms but real life isn't always that way.
    • Rogol72
      Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back positive for dermatitis herpetiformis. The important thing is to get a definitive diagnosis of dermatitis herpetiformis. What you've described sounds like classic dermatitis herpetiformis though. Hopefully, your Dermatologist has come across dermatitis herpetiformis before and performs the skin biopsy correctly as trents mentioned. I've had the blisters on the knees, hips, forearms/elbows or anywhere that pressure is applied to the skin ... from clothing or otherwise. They itch like nothing on earth, and yes salt from sweat or soaps/shower gels will irritate a lot. I've been on Dapsone and it is very very effective at eliminating the dermatitis herpetiformis itch, and improved my quality of life in the early stages of getting on top of dermatitis herpetiformis while I adjusted to the gluten-free diet. But it does have various side effects as trents said. It can effect the red blood cells, lowering hemoglobin and can cause anemia, and requires regular blood monitoring whilst on it. You would need to consider it carefully with your Dermatologist if you do have dermatitis herpetiformis. Here's a very informative webinar from Coeliac Canada discussing everything dermatitis herpetiformis related.  https://www.youtube.com/watch?v=PAdmsNiyfOw I've also found this recent interview with a Dermatologist about dermatitis herpetiformis to be educational.  https://www.youtube.com/watch?v=rZnLeKutgUY Keep the chin up and keep advocating for yourself for a proper diagnosis. Though it sounds like you're on top of that already. Are you in the UK or Ireland? I'm curious because your surname is Irish. 
×
×
  • Create New...