Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Too Much B12?

bbdailey

Recommended Posts

bbdailey Explorer
bbdailey
Posted

My B12 was 200 before going gluten free in May of this year. I have been taking 2000 units of B12 a day since then and now my B12 level just came back at 1500. Could this high of a level be bad?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Booghead Contributor
Booghead
Posted

Might be, depending on how you feel. It can cause tachycardia, angnia-chestpain, or panic/anxiety attacks. In studies done with animals, given high b-12 supplements. The animals with high b-12 compared to the animals with no supplements, high b-12 caused more cancer.

I do not think your levels are high enough to be of worry. Unless you get dizzy or have any of the above symptoms. I would probably reduce the amount you take to be safe. IF you are having symptoms I would quit the b-12 for a little while. B)

ravenwoodglass Mentor
ravenwoodglass
Posted

Your not that much over the upper level. I wouldn't worry about it but you should cut down your supplements level a bit as you are basically peeing away your money. Go to every other day or even every three days. Have your doctor check your levels again on your next visit to make sure the levels have gone down a bit and that they haven't dropped too far.

pondy Contributor
pondy
Posted

This is interesting. I thought that B12 helped with anxiety/panic - not caused it. Those symptoms, as well as heart related issues is why I started supplementing.

Last check (last month) mine was 1482. Had high Folate also.

I'm taking a break from it now 'cause I feel a bit better.

ravenwoodglass Mentor
ravenwoodglass
Posted

This is interesting. I thought that B12 helped with anxiety/panic - not caused it. Those symptoms, as well as heart related issues is why I started supplementing.

Last check (last month) mine was 1482. Had high Folate also.

I'm taking a break from it now 'cause I feel a bit better.

Good plan but do keep an eye on those levels. Be aware that if you are supplementing folate that can cause a falsely high reading on the B12. After you have been on the break from both for a couple months or so have your doctor check you levels again.

pondy Contributor
pondy
Posted

I'm actually not supplementing Folate - it was just naturally high (can't recall the number).

I do plan to have all my vitamins & minerals rechecked on Jan. 5th.

Thanks :)

RiceGuy Collaborator
RiceGuy
Posted

All the research I've done on B12 indicates that there is no known upper limit. No ill effects have ever been found. There have been studies showing that even as much as 60mg (60,000 mcg) per day can be beneficial for certain conditions such as MS. However, the method of testing may be in question, as there are at least two different tests which I'm aware of. And from what I've read, the different tests can give different readings. Just having a high serum B12 level doesn't mean the body stores are also high.

The form of B12 you take is also important, though I think that's for absorption and assimilation. I don't recall seeing anything about different forms at different levels within the body.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,073
    • Most Online (within 30 mins)
      7,748
    David Croft
    Newest Member
    David Croft
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      @KRipple, thank you for the lab results from your husband's celiac disease blood antibody testing. The lab result you share would seem to be the tTG-IGA (Tissue Transglutaminase IGA) and the test result is in excess of 10x normal. This is significant as there is an increasing tendency for physicians to grant a celiac disease diagnosis on the basis of antibody testing alone when the scores on that particular test exceed 10x normal. This trend started in the UK during the COVID pandemic when there was tremendous pressure on the medical system over there and it has spread to the USA. The tTG-IGA is the centerpiece of celiac disease blood antibody testing. All this to say that some doctors would grant a celiac disease diagnosis on your husband's bloodwork alone and not feel a need to go forward with an endoscopy with biopsy. This is something you and your husband might wish to take up with his physicians. In view of his many health issues it might be wise to avoid any further damage to his small bowel lining by the continuing consumption of gluten and also to allow healing of such to progress. The lining of the small bowel is the place where essentially all of our nutrition is absorbed. This is why celiac disease when it is not addressed with a gluten free diet for many years typically results in additional health problems that are tied to nutritional deficiencies. The millions and millions of tiny finger-like projections that make up the nutrient absorbing surface of the small bowel lining are worn down by the constant inflammation from gluten consumption. In celiac disease, the immune system has been tricked into labeling gluten as an invader. As these finger-like projections are worn down, the efficiency of nutrient absorption becomes more and more compromised. We call this villous atrophy.   
    • KRipple
      Celiac or Addison's complications? Can someone share their experience?

      By KRipple · Posted

      Thank you so much! And sorry for not responding sooner. I've been scouring the hospital records and can find nothing other than the following results (no lab info provided): Component Transglutaminase IgA   Normal Range: 0 - 15.0 U/mL >250.0 U/mL High   We live in Olympia, WA and I will be calling University of Washington Hospital - Roosevelt in Seattle first thing tomorrow. They seem to be the most knowledgeable about complex endocrine issues like APS 2 (and perhaps the dynamics of how APS 2 and Celiacs can affect each other). His diarrhea has not abated even without eating gluten, but that could be a presentation of either Celiac's or Addison's. So complicated. We don't have a date for endoscopy yet. I will let my husband know about resuming gluten.    Again, thank you so much for sharing your knowledge with me!
    • Jmartes71
      Celiac pain relief

      By Jmartes71 · Posted

      Ginger is my best friend, it helps alot with tummy issues..
    • aattana
      Positive gliadin (deamidated) IgG, normal everything else?

      By aattana · Posted

      Hi Phosphone, did you ever figure out what elevated your DGP?  I am in the same boat. 
    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
×
×
  • Create New...