Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pre-Diabetic?


saintmaybe

Recommended Posts

saintmaybe Collaborator

I took it upon myself to do some at home glucose measurements, because I've had a candida infection that is basically unresponsive to treatment. The doctor has never looked for underlying causes-- the rheumatologist seemed to think I should bloody SUE for malpractice over this.

Anyway, my fasting blood sugar has pretty reliably come up at 93-95. This is on the high end of normal according to the ADA, but I've read in several places now that the ADA's numbers are way too high to begin with. I've read that their research and recommendations are paid for by bigAgra, so you can't really trust them. Should I be concerned?

Blood glucose monitors are also plus or minus 10%, so it could be 85, or it could be 105. One of which is normal, and one of which is definitely prediabetic. Thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Ask your doctor for a fasting glucose and an A1C. Make sure you haven't eaten or drunk anything other than water for 12 hours before the test.

If you are pre-diabetic try to eat low glycemic index foods and cut your carb consumption.

Your rheumy can order the tests for you if you don't trust your regular doctor.

RollingAlong Explorer

I think that focusing on your blood glucose levels is a great way to tackle a stubborn candida infection. In my opinion, it is much easier to be concerned about and to remedy a blood sugar issue before it hits the ADA's idea of a problem. At the very least, using your meter to get some more information is a prudent things to do.

The meters aren't perfect, but they can show a consistent trend. If you prefer a more accurate meter, Dr Bernstein (Bernstein Diabetes Forum) currently recommends the Accucheck Aviva. His diet is very low carb and gluten free friendly. The forum is a great place if you have questions specific to blood glucose and there are several people with celiac and other food intolerances posting there.

But you may not need to get quite that far into it. For starters, getting a baseline A1c is fine, and you can use that opportunity to test your meter against your doctors.

But if you don't want to or can't see a doc right away, read one more page over at Bloodsugar101 - How to lower your bloodsugar:

Open Original Shared Link

It is basically a summary of Doc B's approach. You see, when your blood sugar is high is almost as important as how high it goes.

A fasting number indicates one thing, but you also want to see what happens:

right before you eat

and again 1 hour after the first bite of the meal

and again 2 hours after the first bite of the meal

So this is a lot of testing, and a manageable way to do it is to rotate though the week.

So on Sunday you test in the morning, which gives you a fasting #, and again 2 times after breakfast.

On Monday, you check before lunch and 2 times after

Tuesday, before dinner and 2 times after

Wednesday brings you back to breakfast

You'll be recording what you ate and noting exercise can help to. Snacking will cloud the picture, but if you do, just keep track of times.

You'll soon know if you need the pre-meal checks at all. You can then just check fasting once a week, but rotate it between weekdays and weekends for more accurate picture.

And you can see which meals or foods may be part of the problem, if there is one. in other words, this is a lot of trouble, but it is possible that your BG is reacting to just one food or food group. Even casein can raise your BG levels, but it may not ever spike them. In other words, BG responds to inflammation; food intolerances can cause inflammation even in the absence of the symptoms we usually notice, such as digestive distress.

If you decide to try this, feel free to post some of your meals and results here or to PM me or post over at Bernstein's - lots of help there!

ravenwoodglass Mentor

A fasting number indicates one thing, but you also want to see what happens:

right before you eat

and again 1 hour after the first bite of the meal

and again 2 hours after the first bite of the meal

Excellent advice. I did those checks myself at every meal and it was quite helpful in showing me what increased my BS the most.

missy'smom Collaborator

I second what ravenwood and rolling along said. The more data the better ;)And I am one who would agree that the ADA numbers are too high. Too many go undx that way and blood sugar issues are so much more easily managed with early intervention. The docs and I believe that I may have gone undx 10 years! I am officially a type 1, insulin deficient not resistant, most likely LADA also called type 1.5. I still make some of my own insulin and I can get 85 fasting without any meds or injected insulin. I was in that range on testing day. I was dx with an oral glucose tolerance test, but later on had antibody and other tests. The primary times my fasting goes up to or over 100, regardless of whether or not I use injected insulin to cover my meals, is when my allergy bucket gets too full or I am sick or I consume casein, to which I am allergic. I have about 20 food allergies. Individually they don't all impact my BG noticeably but the combo can and some individuals do. Following the methods and advice that rolling along gave I can have completely non-diabetic numbers, but if I eat fast acting carbs-grains, fruit, and starchy vegetables, I need some injected insulin. I can be 85 fasting or pre-meal and be up close to 300 after a meal-without mangement that is ;)That's why it's important to check not only fasting but post meal numbers as well-especially ones with fast-acting carbs. You can have diabetes and eat a low-carb meal or meal and not see high numbers so keep that in mind when you evaluate your results. Someone without diabetes will have steady, low numbers even after a load of carbs. I've tested famiy members just to see for myself ;)

GFinDC Veteran

I used to eat a lot of rice but had to stop it. My BG was around 110 wen eating the rice but dropped back to 90's when I stopped it. I was waking up with cramps in my legs after eating rice so I figured that was the problem. I am going for a low carb diet and no sugar now. I think it's working.

Juliebove Rising Star

With pre-diabetes and even with full blown diabetes, you can have perfectly normal fasting BG (blood glucose) and even a normal A1c. When are you testing yourself? If you are typical and have BG issues, then your highest numbers would occur around 1 hour after eating. If you eat a high fat meal or have digestive issues like I do then your high number could come at the 2 or 3 hour mark.

What you should probably do is ask for the OGTT test. You will be asked to drink a sickeningly sweet drink and blood will be drawn three or more times to see if you are getting a spike.

You might also ask for a C-Peptide test. This will measure the amount of insulin you are producing. In my daughter's case, she didn't have overtly high BG. In fact her highest numbers were like yours. But she was producing almost as much insulin as I am as a full blown type 2 diabetic.

Are you seeing an Endocrinologist? If not, you should. The other Drs. my daugher was seeing said she was fine in the blood sugar department. She wasn't!

Another factor could be thyroid. If yours is low, it could in and of itself elevate your BG.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RollingAlong Explorer

I think the thyroid suggestion is an excellent one; but I think it is a little early for an OGTT and a c-peptide test. Unless you're seeing post meal data over 150 or so.

On the other hand, it is not too early to get on the waiting list to see and endocrinologist; it can take a long time to get an appointment!

An OGTT will tell you if you tolerate glucose, but you could pass that and still have a blood sugar problem caused by casein, or some other intolerance. My spouse passed his OGTT and his fasting numbers were much higher than yours, averaging 110.

Keep us posted, please!

Juliebove Rising Star

I think the thyroid suggestion is an excellent one; but I think it is a little early for an OGTT and a c-peptide test. Unless you're seeing post meal data over 150 or so.

On the other hand, it is not too early to get on the waiting list to see and endocrinologist; it can take a long time to get an appointment!

An OGTT will tell you if you tolerate glucose, but you could pass that and still have a blood sugar problem caused by casein, or some other intolerance. My spouse passed his OGTT and his fasting numbers were much higher than yours, averaging 110.

Keep us posted, please!

My daughter wasn't seeing high numbers but I am very glad she got the C-Peptide test done. She is on the max dose of Metformin now. And her A1c has come down.

missy'smom Collaborator

C-peptide is a useful test Julie. Glad that you have a clearer picture of where your daughter is at so she can get the treatment she needs.

I asked for it a few months after dx because I suspected that I had gone undx SO long and wanted to know where I stood. Eventually it was run twice and the results consistantly showed I was very insulin deficient, which helped clarify that I am a T1, not a T2 as I was originally dx. My numbers were high enough at times but not what the doc was used to seeing with either a T1 or T2. My presentation of diabetes was/is unsual.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.