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- kopiq posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.
Hi all, I was diagnosed by blood work about 2 months ago and have since went on a strict gluten free diet. I have an endoscopy in January and the GI dr said nothing about staying on gluten for it; hes aware i went no gluten. starting to heal symptoms include: (this is huge) sensation coming back to genitals and when having a bowl movement. everything... -
- trents replied to More2Learn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Celiac Maybe a Possibility?
Because you have significantly reduced your gluten intake over a considerable amount of time, it is likely that you will test negative on the antibody tests. However, if the $112 for the Quest test is not a burden, it wouldn't hurt to try. It tests for total IGA (to ascertain if you are IGA deficient) and tTG-IGA. If total IGA is deficient, it can result... -
- More2Learn replied to More2Learn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Celiac Maybe a Possibility?
These responses are all extremely helpful, ty. Really good reminder about omega 6. I also know I'm low in zinc; I took the zinc test where I drank it on a spoon and couldn't taste it. To that end, I try to eat a lot of oysters. I do think it would be a good idea to get the blood test. Two questions: 1- Is there any reason you wouldn't recommend... -
- Yaya replied to CeliacChica's topic in Related Issues & Disorders45Muscle Twitching
For me, with osteoporosis, Celiac and more than 1 heart condition, the slower, safer route is preferable. I'm on 5 meds per day. Too much of anything can disturb absorption of this or that. Have a Happy Thanksgiving. I'm gone for a few days. -
- Wheatwacked replied to CeliacChica's topic in Related Issues & Disorders45Muscle Twitching
It took me 2015 to 2021 at 10,000 IU a day to get to 80 ng/ml. In 2019 I was still only 47 ng/ml The highest it has reached is 93. Tested every 3 months. While a one time massive dose can be used to quickly raise vitamin D levels, its effects only last three months. Because vitamin D is stored in fat, an obese person would require more...
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0December 11, 2024 12:00 AM
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Hi all, I was diagnosed by blood work about 2 months ago and have since went on a strict gluten free diet. I have an endoscopy in January and the GI dr said nothing about staying on gluten for it; hes aware i went no gluten. starting to heal symptoms include: (this is huge) sensation coming back to genitals and when having a bowl movement. everything has been numb for a long time down there including lower belly button area. good size (not abnormal) bowel movements once a day or every two days. small dot size wart just fell off my finger that was there for years. have not broke out with a cold sore this winter (every winter prior for years i would develop a cold sore on my lip) Ongoing issues I don't sweat. not from my hands, or armpits or feet. I do not get butterflys in stomach. my hands have been so dry for years ive been using a crack cream as they crack and bleed very severely in the fall and winter. (since going gluten free ive not used crack cream but they are still very very dry and chapped/flaky, no sweat or moisture in palms of hands at all. I dont crave food. i have no cravings at all, not for pizza, ice cream , nothing. my cravings are dead. smell of foods kinda make me hungry, but my stomach blocks it. pins needles in feet get weak legs standing up from sitting and dizzy, things almost turn black. i cannot tolerate veggies or vitamins. Iam vitamin D deficient according to my Dr and Ive tried vitamin D pills. they give me a massive migraine for 8 hours and upset my stomach. the heat from the direct sun make me extremely tired to the point of wanting to pass out. again i don't sweat. broccoli gives me a migraine headache as well. mushrooms, bell peppers burn my stomach. fruits burn my stomach, fats (peanut butter, any oil or fat from meats make me sick to my stomach for a couple hours or longer. salt and pepper burns my stomach. all these issues cause pain at my belly button area and expand to the rest of my upper stomach and sides the more i ingest through out the day. I currently eat bland basmati rice, chicken, pork chops (fat trim), boiled russet potatoes no skin for three meals a day. my snacks are gluten free ground buckwheat flour pancakes. (just water, no oil , salt, dairy.) how am i to get vitamins in my system if i cannot tolerate them in my stomach? i mentioned epidermal vitamin patchs but dr said no. why cant i stand the heat from the sun ? why cant i sweat? thanks for any info. -
Because you have significantly reduced your gluten intake over a considerable amount of time, it is likely that you will test negative on the antibody tests. However, if the $112 for the Quest test is not a burden, it wouldn't hurt to try. It tests for total IGA (to ascertain if you are IGA deficient) and tTG-IGA. If total IGA is deficient, it can result in false negatives in other IGA tests. The tTG-IGA is the single most popular test ordered by physicians. The Quest test is not a complete celiac panel by any means (refer to the linked article above) but it might be a good place to start. Personally, I think you know enough to conclude that you need to get serious about avoiding gluten, whether you have celiac disease or NCGS. Human nature being what it is, however, many people seem to need an official diagnosis of celiac disease in order to stay on the bandwagon. Otherwise, they seem to rationalize cheating on the gluten-free diet. And there is this misconception out there that NCGS is inconvenient and uncomfortable but not harmful so it's okay to cheat. The more we learn about gluten-related disorders the more they seem to not fit into our neat little black and white categories. By the way, celiac disease is not a food allergy. It is classified as an autoimmune disorder.
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By More2Learn · Posted
These responses are all extremely helpful, ty. Really good reminder about omega 6. I also know I'm low in zinc; I took the zinc test where I drank it on a spoon and couldn't taste it. To that end, I try to eat a lot of oysters. I do think it would be a good idea to get the blood test. Two questions: 1- Is there any reason you wouldn't recommend that I just buy and take a test like this as a first step? 2- I've been somewhat gluten free since ~Jan 2023 (technically organic, gluten free, soy free, light on dairy). I eat a lot of meat, vegetables, rice -- a common breakfast for me is three eggs and a sausage link, and I can't remember the last time I had a sandwich or bread. However, because in my mind I didn't think I had an allergy, and I more was doing gluten free to avoid artificially iron-enriched foods, I do make exceptions. I'll eat breaded calamari. When my Dad visits, I split mozzarella sticks with him because he loves them so much. I'll eat the "gluten sensitive" items at a restaurant and if they asked, "is cross contamination ok?", I always said yes. Based on that, since I never probably fully eliminated gluten, but it was significantly reduced... is that good enough to take the blood test? Because the pain in my side gets SO bad (really sometimes I can't function, and I absolutely thought I was dying), I am hesitant to do the gluten challenge. Would it make sense to take the test, and if it's negative, then consider doing the challenge and seeing if I can deal with eating the bread every day? Thanks again! -
For me, with osteoporosis, Celiac and more than 1 heart condition, the slower, safer route is preferable. I'm on 5 meds per day. Too much of anything can disturb absorption of this or that. Have a Happy Thanksgiving. I'm gone for a few days.
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By Wheatwacked · Posted
It took me 2015 to 2021 at 10,000 IU a day to get to 80 ng/ml. In 2019 I was still only 47 ng/ml The highest it has reached is 93. Tested every 3 months. While a one time massive dose can be used to quickly raise vitamin D levels, its effects only last three months. Because vitamin D is stored in fat, an obese person would require more to raise blood level. Effect of High-Dose Vitamin D Supplementation on Volumetric Bone Density and Bone Strength The point of higher vitamin D is for the mental health and immune system requirements. Also this study included supplementing calcium. "Research suggests that women with low levels of vitamin D have a higher risk of breast cancer. Vitamin D may play a role in controlling normal breast cell growth and may be able to stop breast cancer cells from growing." This information is provided by Breastcancer.org. https://www.breastcancer.org/risk/risk-factors/low-vitamin-d-levels Higher vitamin D levels have been consistently associated with reduced risks of colorectal cancer https://www.cancer.gov/about-cancer/causes-prevention/risk/diet/vitamin-d-fact-sheet
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