Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The News


BearRJ

Recommended Posts

BearRJ Newbie

The odd thing about this is I saw on the news I know this is going to sound horrible to most of us. It did to me when I first heard it. I'm just starting the journey to see if I have Celiac Disease. I saw a clip on the news the other night that the Gluten free diet is now the new Diet craze. Can you believe that. I'm thinking why any normal person espically one that's already healthy want to make that kind of a change. For those of us who are truly sick with celiac disease and probably a host of other illnesses is a matter of life and death. I know a bit dramatic. We don't have a choice. I guess that was the thing that bothered me the most. The people that go on the diet just because it's the new diet. When the rest of us have to go through all the testing and labs to find out our answers and sometimes we're left with more questions than answers. It kind of agrivated me when I saw it though. I wish more people would understand more about autoimmune diseases. I call it the silent killer. It kind of is when you think about it. All we can do is live one day to the next and hope that we have a good day. I never get up feeling the same way twice. I wish I did. I never get up having energy two days in a row. One day I might get up feeling good and the next day I feel lousy. Its all connected in the autoimmune world. I have read that if you have one autoimmune disease that really opens the door for others to appear. I have 3 autoimmune diseases and I'm only 37. It all started with Thyroid problems(hypo) and it's been a bumpy ride ever since to say the least.

anyway, I do wish everyone the best of luck. If we don't fight for our health and a good quality of life no one else is going to do that for us. By the way how long should I expect to wait for my lab results. I'm so anxious. I want to get this ball rollin. I go for a colonoscopy after the first of the year. I know what a way to start the new year, but it was the soonest I could get a 7:30a.m. appointment.

So out of curiousity how many autoimmune diseases do you have?

Hashimoto's Disease

Raynaud's Disease

ITP

Hypothyroidism


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,775
    • Most Online (within 30 mins)
      7,748

    Maria Makiling
    Newest Member
    Maria Makiling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bebee
      Thank you knitty kitty!!  I appreciate your help and knowledge!
    • knitty kitty
      Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea.   Usually a gluten challenge is done before endoscopy with biopsies taken,  however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have so many concurrent autoimmune diseases.   You can still have the endoscopy with biopsy samples taken now.  After several months with dietary changes, you can have another to compare results and check that intestinal health has improved.   You can get a genetic test for Celiac disease which shares genetics with other autoimmune diseases that you have.  Eating gluten is unnecessary for genetic tests. For the rosacea, get checked for SIBO (Small Intestinal Bacterial Overgrowth) that could be causing gastrointestinal symptoms as well as causing skin issues.  Our skin is a reflection of our gastrointestinal health.     Following the Autoimmune Protocol Diet has been helpful in keeping my own rosecea, eczema, and dermatitis herpetiformis and other autoimmune diseases in check.   Be sure to be checked for nutritional deficiencies that occur easily in gluten free and dairy free diets. Keep us posted on your progress! References: Clustering of autoimmune diseases in patients with rosacea https://pubmed.ncbi.nlm.nih.gov/26830864/ And... Celiac disease and risk of microscopic colitis: A nationwide population-based matched cohort study https://pubmed.ncbi.nlm.nih.gov/36939488/
    • Bebee
      I am new here, I have been diagnosed with Microscopic Colitis (Lymphatic) years ago and have been gluten-free, DF since, but I still can have occasional bouts of diarrhea (still trying to figure that out).  I also have MS, Hypothyroid, Arthritis, Reynaud's and my rosacea has been acting up lately.  What treatment is suggested to help with rosacea?  I would like to know too if there is a test for celiac if you have been gluten-free?   Thank you, Barb    
    • bluebird2032
      Gluten free/ non dairy , low calorie pudding ideas please?
    • K6315
      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
×
×
  • Create New...