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Aching Bones


swittenauer

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swittenauer Enthusiast

Well, to add to the achy bones......he has a broken leg now.

  • 11 months later...

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kirsty101 Newbie
I was curious if aching bones & pain in general are part of having Celiac. My husband seems to ache & hurt all over. I would like to do what I can to help him feel better but am unsure what to do. Has anyone else experienced this & if so what can be done. It seems to be an ongoing problem for him.

Before I was diagnosed with coeliac the aching bones were my main symptom. It was abit strange how it all came about..I went to bed one night feeling fine..and woke up the next morning feeling as if I'd aged about 50 years over night. And from then on my bones ached constantly for about 2 years. It was only really in the last few months before they realised that I had coeliac that I started to get the stomach pains and all of that. One thing that did help a bit, for a little while at least with my aching..was accupunture. Well the doctors had no idea what was wrong with me..they thought I had some weird form of arthritis that didn't show up on any tests they did, then they thought it was bone cancer...it went on for months. The other thing is just to have plenty of hot baths and use hot water bottles, they can give you some relief as well.

take care,

Kirsty.

  • 4 weeks later...
Smooreberry Newbie
I was curious if aching bones & pain in general are part of having Celiac. My husband seems to ache & hurt all over. I would like to do what I can to help him feel better but am unsure what to do. Has anyone else experienced this & if so what can be done. It seems to be an ongoing problem for him.

I experienced the same thing! I got to the point that walking became hard. My hip joints were the worse. This actually helped me get diagnosed. I knew something was wrong when a 25 year old has trouble walking already from joint pain!!

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    • trents
      Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity) which some experts believe can be a precursor to celiac disease and is 10x more common than celiac disease. However, there is no test for it yet but it does share many of the same symptoms with celiac disease. Both require complete abstinence from gluten.  It is seldom the case during testing where all tests are positive, even for those who do have celiac disease. This is no different than when diagnosing other medical conditions and that is why it is typical to run numbers of tests that come at things from different angles when seeking to arrive at a diagnosis. It seems like you are at the point, since you have had both blood antibody testing and endoscopy/biopsy done, that you need to trial the gluten free diet. If her symptoms improve then you know all you need to know, whatever you label you want to give it. But given that apparently at least one celiac antibody blood test is positive and she has classic celiac symptoms such as slow growth, constipation and bloating, my money would be on celiac disease as opposed to NCGS.
    • ABP
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    • Scott Adams
      I guess using "GF" instead of "PL" would have been too easy! 😉
    • trents
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    • trents
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