Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"my Kids Can't Have Gluten So I Have To Get Whole Wheat Spaghetti For Them"


their-aunt

Recommended Posts

Takala Enthusiast

Now I hoard food - not in a bad way. I don't buy lots of snacks, but I have enough food to make it through about two weeks to a month if a disaster happened.

This isn't such a bad idea for people who have to have restricted diets for medical reasons. I learned this the hard way when we lost our electricity the better part of a week several winters ago, and there was not only significant flooding that limited road access, there was no electricity in many of the surrounding small towns - one assumes one can just drive somewhere and grocery shop.... not if there's no electricity, duh. I was damned lucky to find a functional gas station in a little patch of rural service area that hadn't lost power about 4 miles north of here, because if it had been known they were still open by the general public at large, they would have sold out quickly. I found ONE open grocery about 40 miles away, and they were scrambling to keep what food they had on the shelves. You should have seen the detours due to flooding.... try driving that with hundreds of other cars in pitch blackness. I had to stop at one point and get out with a flashlight and check what intersection I was at, to make absolutely sure I was not going to do something stupid. (the detour signs were taking us near river levees :ph34r: ) And the local news media was USELESS on covering this. That was the shocking part. It was as if it were not happening. None of the local radio stations are live content any more, all pre- recorded.

I follow the weather forecasts a lot more closely now. We purchased a generator (and have used it since then). I also drive my spouse a little batty sometimes with insisting we keep a lot of non perishable, back- up foods stocked in the pantry. This was when I also started experimenting with seeing if I could expand my diet if I had to, because it is more difficult to cook gluten free and grain free foods when you don't have electricity.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,567
    • Most Online (within 30 mins)
      7,748

    Eve06
    Newest Member
    Eve06
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TerryinCO
      I beleive so.  Waiting for response from NP.
    • ShRa
      Is Gliadin X recommended/safe for accidental glutening or where there is a risk of cross contamination? Or is there any other recommendation in such case? We travel alot to meet family and dine out as well. There is always risk of accidental glutening and cross contamination. Thanks.   
    • trents
      So, is their reasoning for doing another biopsy after you've been gluten free for awhile to get a comparison of before and after? In other words, there should be healing of the SB lining if you go gluten free for awhile if you have celiac disease?
    • trents
      Welcome to the forum, @Tazzy11! Yes, your DGP-IGG test is positive. It means you could have celiac disease. But there are other possible causes for an elevated DGP-IGG count. I note that your TTG-IGA was not positive. The TTG-IGA is considered the chief celiac antibody test and a bit more reliable than the DGP-IGG. But let me ask you an important question. Prior to the blood draw, had you already begun to limit your intake of gluten? Also, were these the only two tests ordered to check for celiac disease? A physician should always order what we call the "total IGA" test (it goes by other names as well) to check for IGA deficiency. If you are IGA deficient, the scores for individual IGA celiac antibody tests, such as the TTG-IGA will be falsely low. By the way you spelled "coeliac" I judge you must be in the UK. There are several other antibody tests that can ordered when checking for celiac disease in order to get a more complete picture. Here is an article outlining the various tests:  
    • Scott Adams
      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    Per this article: They will likely schedule an endoscopy to see if you have celiac disease, and for this they would want you to continue eating gluten daily until that test is completed.
×
×
  • Create New...