Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D Supplement

Tigercat17

By Tigercat17
in Super Sensitive People

Recommended Posts

Tigercat17 Enthusiast
Tigercat17
Posted

HI everyone,

I've been doing really good on the gluten free diet and ever since I stopped all my vitamins seven months ago.

Just some past information- I got extremely sick for vitamins that were supposed to be gluten free last year.

I feel really good now, but I just got my blood work back and I'm a little low on vitamin D. It was 23. So now my doctor wants me to take a vitamin D supplement, but I'm really scared to take any vitamins even if they say gluten free.

Does anyone take a vitamins D supplement that they trust and are super sensitive?

My endo doctor suggested taking a 5,000 prescribed dose once a month that he was going to prescribe for me , but I'm not sure about that either.

Thanks everyone! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sa1937 Community Regular
sa1937
Posted

Have you checked into Bluebonnet vitamins? I'm taking their chewable Vitamin D3 (2000 IU) that I buy at my local health food store. Open Original Shared Link

Free of milk, egg, fish, crustacean shellfish, tree nuts, peanuts, wheat and soybeans.

Also free of yeast, gluten, barley, rice and sodium.

Hope this helps...

rosetapper23 Explorer
rosetapper23
Posted

I agree--Bluebonnet is a good supplement manufacturer, and I've used a number of their products. Currently, I take a Vitamin D supplement (50,000 iu) from a compounding company, and it also has never given me any cc trouble.

By the way, 5,000 iu on a monthly basis is an extremely low dose. Many of us take 10,000 iu daily....and now I'm forced to take 50,000 iu several times a week during the winter months.

domesticactivist Collaborator
domesticactivist
Posted

Fermented cod liver oil is a good way to get vitamin d and a. Green pastures tests for mercury and has good practices. They are having a really good sale right now so it might be a good time to try it out.

dilettantesteph Collaborator
dilettantesteph
Posted

Hi, I am another who felt much better when I stopped taking vitamins and supplements. Then, I too tested low for vitamin D. I looked into liquid vitamin D. I thought that with the most concentrated form possible, the little bit that I would have to take would be unlikely to cause a reaction. I got one for which my daily dose is a fraction of a drop. I diluted it with a bit of safe oil so that I need one drop a day. It is labelled gluten etc. free. It's LifeExtension Vitamin D3 2,000 IU Liquid Emulsion.

In the summer I don't take it since I spend enough time outdoors.

Tigercat17 Enthusiast
Tigercat17
Posted
  • Author

HI everyone! Thank you for taking the time to reply. I really appreciate all the advice. :)

My doctor just called me and he's going to put me on 50,000 vitamin D once a week for 6 weeks and then recheck my vitamin D counts. I'll have to call the pharmacy to find out if it's gluten free.

No wonder I'm getting colds more often... in the last two months I got three colds. When I was gluten free and taking vitamins I never got sick, but I know I was still getting CC from a lot of the gluten free vitamins. And then all of the sudden I got extremely sick from them. I would really love to find a multi that I could take. Even though I eat pretty healthy, I'm sure I'm not getting all the vitamins I need. I'll have to start another post just for multi's. :D

Hugs to you all! Thank-you! :)

TeknoLen Rookie
TeknoLen
Posted

Sounds like you are all set going forward. I have had good luck so far with Xymogen brand D3 drops, 5000 IU per day...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Tigercat17 Enthusiast
Tigercat17
Posted
  • Author

By the way, 5,000 iu on a monthly basis is an extremely low dose. Many of us take 10,000 iu daily....and now I'm forced to take 50,000 iu several times a week during the winter months.

Sorry -I meant to say 50,000 iu. :D

AndrewNYC Explorer
AndrewNYC
Posted
Open Original Shared Link
  • 3 weeks later...
Scotslass Newbie
Scotslass
Posted

Hey..:)

I'm in Scotland and I get calcium and vitamin D3 chewable on prescription so its free.. I have to take it because my bone density test showed I had a degree of osteopenia.. :(

So like living with coeliacs I just have to get used to taking that for the rest of my life.

  • 3 weeks later...
abaker521 Rookie
abaker521
Posted

I am discovering I'm a "super sensitive" celiac too and got sick off several vitamins that were organic and labeled "naturally gluten free." I too just discovered I was low on vitamin D (my level was at 19 when normal is around 30-40). My doctor recommended 400IU daily.. which seems very minimal compared to other dosages I'm reading here. I went to Walgreens and got D3 in the "Finest Natural" brand. I have been fine using it so far. It makes me laugh because I used to buy the most expensive, organic vitamins and they all made me sick.. but a $3.00 brand from Walgreens works best for me. My body is silly. :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,878
    • Most Online (within 30 mins)
      7,748
    DJWI
    Newest Member
    DJWI
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      9 year old- questionable results

      By trents · Posted

      Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity) which some experts believe can be a precursor to celiac disease and is 10x more common than celiac disease. However, there is no test for it yet but it does share many of the same symptoms with celiac disease. Both require complete abstinence from gluten.  It is seldom the case during testing where all tests are positive, even for those who do have celiac disease. This is no different than when diagnosing other medical conditions and that is why it is typical to run numbers of tests that come at things from different angles when seeking to arrive at a diagnosis. It seems like you are at the point, since you have had both blood antibody testing and endoscopy/biopsy done, that you need to trial the gluten free diet. If her symptoms improve then you know all you need to know, whatever you label you want to give it. But given that apparently at least one celiac antibody blood test is positive and she has classic celiac symptoms such as slow growth, constipation and bloating, my money would be on celiac disease as opposed to NCGS.
    • ABP
      9 year old- questionable results

      By ABP · Posted

      My nine-year-old daughter has suffered with severe constipation and bloating for years as well as frequent mouth sores, and keratosis Polaris on her arms. She also has recently decreased on her growth curve her % going down gradually.  After seeing a gastroenterologist, her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4 while her IGA was normal. Her TISSUE TRANSGLUTAMINASE AB, IGA was 11.9.  Most recently her genetic test for celiac was positive.  After an endoscopy her tissue showed inflammation of the tissue as well as , increased intraepithelial lymphocytes (IELs) but there was no blunting of the change in the villi.    It seems that every result that we get one out of two things positive rather than all leading to an inconclusive diagnosis. While we do have another appointment with the doctor to go over the results. I'm curious based on this information what others think.    I would hate to have her eliminate gluten if not necessary- but also don't want to not remove if it is necessary.    Signed Confused and Concerned Mama
    • Scott Adams
      Gluten Free ADHD medications

      By Scott Adams · Posted

      I guess using "GF" instead of "PL" would have been too easy! 😉
    • trents
      Help with blood test result

      By trents · Posted

      I was wrong, however, about there being no particular health concerns associated with high total IGA: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ So maybe the physician's "borderline" remark is relevant to that.
    • trents
      Help with blood test result

      By trents · Posted

      Sometimes that is the case but what is curious to me is the remark by your physician about being "borderline". I assume he was referring to the total IGA score but it just seems like an irrelevant remark when it is on the high side rather than being deficient.
×
×
  • Create New...