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Running Out Of Foods To Eat


allergyprone

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Bubba's Mom Enthusiast

He did order blood tests. I know one was the genetic test. His office called the day after I saw him and said he ordered more blood tests. They faxed the order to the lab, so I don't know what they were? Haven't gotten the results back yet. I think the holidays are slowing things down?

I did get my vitamin/mineral levels run by a different Resident after mine refused. As luck would have it, there weren't any appointments available with her when I was supposed to go back for a follow up after she prescribed a sleep med.and additional anti-depressant. He found my iron levels were very low and said to start supplimenting.

I gave copies of all of my tests to the new GI. The fact that he ordered more tests after I saw him has given me hope that he's taking my case seriously?

After the scope he said there was obvious scalloping, and my stomach was very red, which it wasn't when the first scope was done. He said the biopsy should tell more.


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IrishHeart Veteran

He did order blood tests. I know one was the genetic test. His office called the day after I saw him and said he ordered more blood tests. They faxed the order to the lab, so I don't know what they were? Haven't gotten the results back yet. I think the holidays are slowing things down?

I did get my vitamin/mineral levels run by a different Resident after mine refused. As luck would have it, there weren't any appointments available with her when I was supposed to go back for a follow up after she prescribed a sleep med.and additional anti-depressant. He found my iron levels were very low and said to start supplimenting.

I gave copies of all of my tests to the new GI. The fact that he ordered more tests after I saw him has given me hope that he's taking my case seriously?

After the scope he said there was obvious scalloping, and my stomach was very red, which it wasn't when the first scope was done. He said the biopsy should tell more.

He sounds like a good GI to me!

allergyprone Contributor

Hey thanks for all the great ideas and help. I'm going to try culturelle and see if that helps. I am thinking of getting tested for a letex allergy and was wondering if anyone new how to go about this, like do i need to go to a dr or can i just do an elimination like test.

missy'smom Collaborator

Hey thanks for all the great ideas and help. I'm going to try culturelle and see if that helps. I am thinking of getting tested for a letex allergy and was wondering if anyone new how to go about this, like do i need to go to a dr or can i just do an elimination like test.

You will need to see an allergist for the latex testing. It might be a good idea to call and ask if they are knowledgeable about latex allergy. Be sure to mention your foods-esp. the banana and avacado but show them your list. The latex food cross-reactors are broken into 2 or 3 sections, with banana, avacdo and kiwi in the strong relationship category then there are lists for moderate relationship. Many of the foods on your avoids list(and mine)are on that list.

My son and I were dx via skin test. How they do the skin test and if and how many skin test sites they do depend on your allergist and your case history.

Here is more info on latex allergy Open Original Shared Link

Luddie Newbie

hi hun i know just how you feel

i have the same list of foods that my body just does not like and of course theyare all foods are are yummy lol

but like irisheart said probiotics and digestive enzimes are your friends i try to take them everyday im too on a limited budget i take 1-2 a day and my supplements have digestive enz in them i was not able to take them a month ago but with taking nystead oral liquid i am able to stop the burning and hurting

but with that being stoped i get in my head oh mabe i can try lactose lol yea right my body says i dont like lactose of any kind and hurts me for it lol

all i can do is just keep trying foods and if they react dont eat them and if they do react eat

its so frustrateing to have such limited food choices when everyone around you is eating what i like to call normal food

i too would love to eat something with out giving it a second thought but this is why we have brains for us to do what is right for our digestive tracks cuase our digestive tracks can not tell us no dont eat that it will hurt me

our bodies have a wonderful way of healing as long as we eat foods that dont cause dammage it sure is a life style change

and its hard i know i acutally hacve to change the channel when there are food comurcials on tv lol

i hope you can find some sort of relief soon and calm that gut down ofyours

huggs

Hi all,

Reading these posts gives me hope (and scares me a little, too!). What foods do you suggest I drop back to as "safe"? I've been eating corn grits, with salt and real butter on them, along with 1/2 and 1/2. Occasionally an egg. Some simple meats like beef patty, or steak, or once in a while lamb, and potatoes. I had been on an elimination diet and added real, unpasteurized sauerkraut with no problem and I think it helpd my gut! I suspect I can't eat rice (white or brown), maybe wild rice would be okay. What about vegetables? If these are all "moving targets" that may change what's the use. I'm getting pretty wierded out by all this! I've been trying to get this under control for several years, but I didn't really take it seriously at first. Now I do and I'm having more trouble than before. Your posts helped me to understand I'm not the only one who has experienced that.

Anyhow, what did you eat at first to get better?!

LUDDIE

Bubba's Mom Enthusiast

It can all be a bit overwhelming at first can't it? If we just went gluten-free and felt fine we wouldn't have to use ourselves as a science experiment!

If you're not sure what to eat, may I suggest the Specific Carbohydrate diet? You can find info online or get the book "Breaking the Vicious Cycle". The diet is aimed at healing the gut..and that's what we want to do.

Open Original Shared Link

Open Original Shared Link

dilettantesteph Collaborator

If we just went gluten-free and felt fine we wouldn't have to use ourselves as a science experiment!

Isn't that the case. My life seems like a science experiment. Everything that goes in my mouth and the mouths of my children has to be monitored. It gets tiresome.

But, it is great to be healthy again! Life is good.

As far as safe foods to start, I would say produce and meat roasts packaged at a meat only facility. Plus probably a good idea to avoid common problem foods like grains, nightshades, mushrooms, seafood, nuts, milk, eggs and soy.


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allergyprone Contributor

So I've been trying culturelle for about a week now and I have been getting D,nausea, really bad stomach cramps and have pretty much lost my apitite. I was wondering if this is normal and will pass or can I not tollerate the good bacteria <_< . At first I thought it was just the death of the bad bacteria but now I'm thinking its time to stop taking it, but I couldn't find any information about side effects or stuff like that. So should I stop or will this pass in a couple of days?

IrishHeart Veteran

So I've been trying culturelle for about a week now and I have been getting D,nausea, really bad stomach cramps and have pretty much lost my apitite. I was wondering if this is normal and will pass or can I not tollerate the good bacteria <_< . At first I thought it was just the death of the bad bacteria but now I'm thinking its time to stop taking it, but I couldn't find any information about side effects or stuff like that. So should I stop or will this pass in a couple of days?

Taking probiotics is beneficial and should not harm you--unless you have pancreatitis and/or Crohn's--from what I understand. Then, it is not recommended.

There are no major harmful side effects that I have ever read about either, but they may cause some gas and mild bloating, but rarely Diarrhea. Since it is used to treat diarrhea, I am honestly not sure why you are having a bout of it. Sorry! Unless you are just getting used to them in your system.

Yes, you could quite possibly be killing off something in your gut and crowding our the bad bacteria to balance it out.

Drink a lot of water when you take them!

It could also be something IN the formula does not agree with you--did you get the one that is also DAIRY FREE?

Another way to minimize the risk of any of these uncommon probiotics side effects, is to start off slowly--take them every other day at first---and then work your way up slowly.

Here is what they do:

Open Original Shared Link

Much has been studied about their usefulness in treating leaky guts and possible side effects when introducing them into your GI tract. These symptoms are usually transient and subside. But ANY dose may be a lot for you to handle at first.

"Probiotic users have reported cases of bloating, gas, and lower abdominal pain when trying a new formula that they did not introduce in small incremental stages." The full report is here:

Open Original Shared Link

Like anything else, what works for one person may not work for you.

Sorry for your discomfort. I had some myself when I started, but I had testing done when I was quite ill from celiac and I had NO detectable good bacteria at all. :unsure: and I HAD to supplement. I started with low doses of powdered form and eventually went to the Culturelle as it was convenient and my GI doctor felt is was backed by enough research to be good.

After several months, because it took me a awhile to start to heal and I am still healing, I was regular for the first time in my life :) and my GI tract stopped burning,the abdominal and rib cage pain I had suffered for 3 years subsided and the 24/7 histamine response calmed down.

This was my experience--- others may be different, of course.

Best wishes, IH

Bubba's Mom Enthusiast

So I've been trying culturelle for about a week now and I have been getting D,nausea, really bad stomach cramps and have pretty much lost my apitite. I was wondering if this is normal and will pass or can I not tollerate the good bacteria <_< . At first I thought it was just the death of the bad bacteria but now I'm thinking its time to stop taking it, but I couldn't find any information about side effects or stuff like that. So should I stop or will this pass in a couple of days?

Maybe you should try lower doses of the probiotic? Maybe take it a couple of times a week to start? Cuturelle also has Inulin (chicory root extract), so maybe you're reacting to that?

I'm taking Culturelle AND Power Dophilus, so I have a variety of good guys to fight my battles in there. ;)

My son has had a horrible cold and I'm shocked that I haven't caught it, given my poor health in general right now. I was surprised to see that they said using probiotics could shorten the duration of a cold when I read the link given.

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    • trents
      I'm a little confused. In your second post you said, "but these symptoms have been ongoing for a long time before the pregnancy" while in your most recent post you say, "I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea." CBC = Complete Blood Count. This is the typical bloodwork most people would have done routinely with an annual wellness checkup. I would include things like iron levels, various blood cell counts including reds and whites and other infection fighters. CMP = Complete Metabolic Panel. This would measure things like blood sugar, kidney and liver function, plasma proteins and various enzymes. Non cellular things that the body produces. Also typical of an annual wellness check. Have you tried cutting out dairy and oats? These two are the most common cross reactors in the celiac community. I know it must be tough trying to get adequate calories and nutrition when you are pregnant while at the same time eliminating foods that are good sources of those things.
    • Maura Gissen
      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
    • trents
      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
    • trents
      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
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